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13 Weeks Pregnant- Not Sure If Celiac

Ali Arizona

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Ali Arizona Newbie
Ali Arizona
Posted

Hi everyone-

I am new here. iw as dx with IBS many years ago and then with hashimotos Thyroidosis last year. I had a m/c after my dx and am now pregnant again. After my m/c in December 06 i did a tone of research that showed some links between Hashimotos and Celeiac Disease. i asked me dr. to test me and he said no so i startred a gluten-free diet and have been on it ever since. My pregnancy has been great this time and thyroid - perfect levels. My question "If i bring gluten back into my diet will I hurt my baby? Will i have a reaction that will indicate that i truly do i gluten senstive? I am willing to do anything to have healthy baby but if i don't have to gluten free I don't want to be. if i intruduced gluten slowly in my diet, could i get a new dr. to test me ( I know I should have done that before)? Or if you were me would you just stick out the gluten free diet and then get tested after the baby is born. Thanks for your help!

Ali

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alamaz Collaborator
alamaz
Posted

Definitely stick to the gluten-free diet right now. If you start to add back in gluten and you do react then you are putting your body and your baby under stress. Many people on these boards say the diet is good enough with out a diagnosis. If you try and the diet and things turn around as they did in your case, stay on the diet. The definition here for IBS is "I Be Stumped" it is not a realy disease, just a name the doctors give to patients who they don't know what is wrong with them. IMO, get a new doctor who would not refuse to test you for a disease that you have so many symptoms of! Otherwise, stick to the diet, have a wonderfully healthy pregnancy and congratulations!

Phyllis28 Apprentice
Phyllis28
Posted

In my opinion take no chances, stick to the gluten free diet.

happygirl Collaborator
happygirl
Posted

I'd definitely get a new doctor, but that's just me :)

from another thread about pregnancy (but, this poster was dx'ed)

Open Original Shared Link

from the above story:

"I now felt encouraged to explore further. In August of 2000, I attended the 9th International Symposium on Celiac Disease in Baltimore, Maryland. The very first lecture solved my mystery. Not only is there a problem with fertility, repeated spontaneous abortions (yes, my miscarriages) and amenorrhea in untreated celiac disease patients, but celiac disease causes

Guhlia Rising Star
Guhlia
Posted

Definitely wait to try gluten again until you've had the baby AND are done breastfeeding. IF you have Celiac Disease, then you will be unable to absorb key nutrients if you're eating gluten. These nutrients are what feeds your baby and prevents him/her from having birth defects, low birth weight, etc... It really isn't worth the risk. These nutrients are also what you will be passing through your breastmilk if you breastfeed. Please be careful.

Ali Arizona Newbie
Ali Arizona
Posted
  • Author

Thank you so much for all your quick responses!!!!! I will definetly stick to the gluten free diet for the rest of my pregnancy and BF and then will get tested by a new doctor. I do not want to take any chances. Thanks you agian soo much. Good luck to all of you!

Ali

  • 4 weeks later...
loraleena Contributor
loraleena
Posted

Stick to the diet, but the test will be innacurate because you are gluten free. I would suggest a stool test now from enterolabs. They can test even though you are gluten free. Do not consume gluten during your pregnancy or breastfeeding!!

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    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
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