Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Did It. I Sent My Son On A School Trip For The Weekend

Karwei5

Recommended Posts

Karwei5 Apprentice
Karwei5
Posted

My son is 19 and has Down syndrome. He was just diagnosed in Jan.

This is the first trip I have had to send him on.

He is going to state Special Olympics.

I packed a bunch of food for breakfast lunch and snacks.

They are able to go to get take outs for him for supper.

So far I have figured out Culvers chicken cashew salad is ok.

I am still looking up some where else. He will be there Friday Sat and Sunday morning.

It is a lot different this year sending him with Celiac disease.

I am sure he will be fine but I an nervous. My stomach is in knots.

Karol

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


angel-jd1 Community Regular
angel-jd1
Posted
My son is 19 and has Down syndrome. He was just diagnosed in Jan.

This is the first trip I have had to send him on.

He is going to state Special Olympics.

I packed a bunch of food for breakfast lunch and snacks.

They are able to go to get take outs for him for supper.

So far I have figured out Culvers chicken cashew salad is ok.

I am still looking up some where else. He will be there Friday Sat and Sunday morning.

It is a lot different this year sending him with Celiac disease.

I am sure he will be fine but I an nervous. My stomach is in knots.

Karol

Karol-

First congrats to your son on being able to go to State Special Olympics!! That is a great accomplishment. I am sure he is SUPER excited! What event does he do? I have a friend that participates and she does the softball throw and speed walking. Probably not in your state though.

It's natural for you to worry. I'm sure that if you have provided the coaches and sponsors with the information they will take good care of him. Are you able to go and watch the events? If so, you could always take some more food with you just incase.

Maybe they could also do a grocery store run if needed. Grab some lunch meat and cheese and make lunch meat roll-ups. Fruit would be easy to pick up.

If they have an outback steakhouse nearby they have outback-to go. You call ahead and they bring it to the car. Chipotle is also good (burrito bol's). Wendy's has a few things, mcd's has a few things, both have information on their websites as to specific menu items that would be ok.

-Jessica :rolleyes:

blueeyedmanda Community Regular
blueeyedmanda
Posted

Karol-

I am so glad you son has made it to the State Special Olympics, that is an honor. I am sure he will have a lot fun. I bet this year was more difficult due to the celiac but it sounds as if you had everything under control. Good Job!!!

natalie Apprentice
natalie
Posted

It is wonderful that he is going to the special Olympics...you must be SO proud. I'm sure he'll be just fine with the meals you sent. The Outback has delicious gluten-free food and we have never had a problem there. Let us know how it went. :)

kbtoyssni Contributor
kbtoyssni
Posted

Congrats to your son and also to you for letting him go! What events is he participating in?

Karwei5 Apprentice
Karwei5
Posted
  • Author

Thanks,

we are in Illinois. He did the standing long jump this afternoon. We were not ableto see that because we work.

Sat. he has free. Then Sunday he will do a relay.

We will be able to get down to see that.

Billy is loving being away form Mom and Dad for the weekend. he especially is looking forward to the dance they have. Lots of girls to impress.

I don't think there is an Outback in the city they are in. I am looking at Wendy's though.

I ran out of time this morning before I had to leave for work.

They have Cracker barrel and a couple others that don't have nutritional info on their Website.

I will look more this evening.

I sent lettuce meat cheese rollups, egg salad w/ rice cracker, Tuna and sea salt chips, fruit,chips, cereal, donuts, and some other goodies. I made up lunch bags with a meal in it that they can just grab one and he has enough to eat.

Fro breakfast one day hey will have eggs and sausage so he can eat that.

I am feeling a bit better now. I was really nervous this morning. I am sure he is having fun. I just hope it is not too hot.

Karol mom to Billy

Karwei5 Apprentice
Karwei5
Posted
  • Author

I found Noodles and Company there and it is close by so the teacher is running over to get him something there for dinner.

He did get sick after lunch yesterday but is doing good now.

ADDED: Billy got a #1st place in the long jump!! Awesome!!

His team got 4 in the relay.

It was really hot but it all worked out well and he is home now.

He treated his Dad to a movie this evening for Father's day. Billy picked the movie tough. Fantastic 4.

Karol mom to Billy :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


angel-jd1 Community Regular
angel-jd1
Posted
I found Noodles and Company there and it is close by so the teacher is running over to get him something there for dinner.

He did get sick after lunch yesterday but is doing good now.

ADDED: Billy got a #1st place in the long jump!! Awesome!!

His team got 4 in the relay.

It was really hot but it all worked out well and he is home now.

He treated his Dad to a movie this evening for Father's day. Billy picked the movie tough. Fantastic 4.

Karol mom to Billy :D

Karol, tell Billy Congrats on the first place in long jump!! That is great. Also 4th in relay isn't too shabby either! WAY TO GO BILLY!!

Sounds like he had a fun trip. I think that sometimes it is harder for parents to "let go" than it is for the kids :) Glad it all worked out.

-Jessica :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    2. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    3. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    4. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    5. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

      Food and environmental allergies involve IgE antibodies. IgE antibodies provoke histamine release from mast cells. Celiac disease is not always visible to the naked eye during endoscopy. Much of the damage is microscopic and patchy or out of reach of the scope. Did they take any biopsies of your small intestine for a pathologist to examine? Were...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.