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Oooops, My Blood Work Is Back!

Kottemamman

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Kottemamman Apprentice
Kottemamman
Posted

Dear celiac friends,

I've been waiting for a week to get the results of my blood work. Today it finally arrived!

Tissue transglutaminase <1 (ref.range <7)

S-Gliadin IgA 1.2 (ref.range <7)

My doctor claims it is normal, but I am worried by the fact that I do have Gliadin IgA-antibodies at all, as I have understood that they are less sensitive but more specific to celiac. I would feel better with no antibodies at all (and a working stomach..;))

So, does anybody have any ideas on what to do? My mother has just been diagnosed with celiac disease (she is very obese, and I don

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ravenwoodglass Mentor
ravenwoodglass
Posted

Go with the diet, then if you still have doubts when you are feeling better you can always do a SHORT gluten challenge, in others words eat it in pure form, cream of wheat or triscuits, for a few days until you react. If you are not asymptomatic that is the best way of diagnosis that there is. Many, many of the testing procedures are woefully inadaquate and they miss alot of us. If your Mom is celiac chances are real good if you are having problems that you are also.

JenKuz Explorer
JenKuz
Posted
Dear celiac friends,

I've been waiting for a week to get the results of my blood work. Today it finally arrived!

Tissue transglutaminase <1 (ref.range <7)

S-Gliadin IgA 1.2 (ref.range <7)

My doctor claims it is normal, but I am worried by the fact that I do have Gliadin IgA-antibodies at all, as I have understood that they are less sensitive but more specific to celiac. I would feel better with no antibodies at all (and a working stomach..;))

So, does anybody have any ideas on what to do? My mother has just been diagnosed with celiac disease (she is very obese, and I don

aikiducky Apprentice
aikiducky
Posted

Kottemamman, it's very common to have negative blood tests but a positive biopsy. A negative blood result does not guarantee that you don't have celiac. So you could consider asking for a biopsy.

It's quite possible, also, that you would test positive in a few years time. If you want to do that, you just have to continue eating gluten until possibly at some point you do test positive.

The third option is to go gluten free and see if that helps. It might mean that you never will get an official diagnosis, so you should only do that if you don't think you need one. I don't have an official diagnosis because i refuse to go back on gluten to be tested, and so far I haven't needed an official diagnosis for anything, but your circumstances might be different.

Pauliina

tarnalberry Community Regular
tarnalberry
Posted

the IgA test can tell you anything if they didn't have a total IgA taken as well. a nontrivial portion of celiacs are IgA deficient. I'd either ask for *full* testing, or try the diet and see how it goes.

Kottemamman Apprentice
Kottemamman
Posted
  • Author

Great, they didn

little d Enthusiast
little d
Posted

You know there are alot of people here are fortunate enough to have family members currently with celiac disease and have been tested and all positive, but me well all my relatives have never gone to get tested let along go to a doctor if they are sick they just treat themselves so I have gone into this blindly understanding that I have a problem, I guess that it helps that I work in the medical field, so i guess I just might be more intune with what my body is telling me and not afraid to go get tested and helps to have insurance as well. So to all get tested first before you start the diet that is what i did, self diagnosis with the help of my sister who is going through the same we started the diet for a few months BIG MISTAKE and then got tested and heartache of hearing that I'm negative it must IBS we can start you on some meds to help. SO I have been a yo yo with the diet and all symptoms have come back and I now regrete not listening to what my body is telling me, knowing that it only has helped me in the past so I do say TEST FIRST then the diet, hopefully you too won't get a false negative. Learn alot people before starting the diet it will help you in the long run.

donna

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natalie Apprentice
natalie
Posted

I had negative blood work but a positive biopsy. It depends how bad you want a firm diagnosis. If you are happy to just go on the gluten-free diet and avoid the doctors then try it out.

Natalie

Kottemamman Apprentice
Kottemamman
Posted
  • Author

Well, I really can

natalie Apprentice
natalie
Posted
Well, I really can
  • 2 weeks later...
Kottemamman Apprentice
Kottemamman
Posted
  • Author

Hi friends,

just a short update! I have now been gluten-free for ten days and...yes, there really are some changes. My stomach is not that swollen anymore (e.g. I have stopped looking 5-6 months pregnant). Normal intestine reflexes are developing, so when I eat I also need to go to the bathroom afterwards. No sign of diarrhea, still a tendency towards constipation (I am adding more fibers, that should be beneficial). The most curious thing for me is that I am loosing weight (I added a couple of not-so-appreciated pounds when I turned hypothyroid, and those pounds didn

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      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
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