Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Malaria Medications

OceanGirl78

Recommended Posts

OceanGirl78 Newbie
OceanGirl78
Posted

I need help with malaria meds!! I am traveling to Sudan, Africa in a few weeks and need to take malaria meds. There are four options from what I have discovered.

One I cannot take because the malaria strains are resistant to it.

One I cannot take because I have a history of depression.

Doxycycline makes you extremely sensitive to the sun (I am blonde and very fair - already have problems with the sun AND I am traveling directly from there to the Seychelle ISLANDS to get married and relax on the beach for 10 days). They said I would need to wear a widebrim hat and keep completely covered while in the sun...not going to be possible!!! :o

The last one that they want to give me is malarone and I am currently battling with Glaxo Smith Kline about the fact that they do not know where their starch comes from...at present I am waiting for a return call from someone there. There is not a generic. :angry:

Does anyone have experience with this sort of situation, or with malarone? I spoke to my pharmacist and he told me to speak with a supervisor and mention a law suit because he said there is no way that they do not know what is in the medication....He said I just need to squeeze it out of them basically.... :(

Laurie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

CarlaB should know...she is either on it now, or about to be on it. If she doesn't see this, PM her.

CarlaB Enthusiast
CarlaB
Posted

Currently I'm on Mepron, which is anti-protozoal (malaria). It's a horrid tasting liquid and is stronger than Malarone. Malarone contains the active ingredient of Mepron in it.

I haven't checked on the Malarone for it's gluten status because I wasn't ready to switch to something weaker yet ... the infection is still too strong.

What about quinine? Or Artemisia Annua?

Don't take the doxy ... I got sunburned with #35 sunscreen on THROUGH the car window!!!

BTW, I'm on Mepron in conjunction with Biaxin and Artemisia. The combination prevents resistance. I'm taking it for Babesia, which is malaria-like.

OceanGirl78 Newbie
OceanGirl78
Posted
  • Author

Thanks Carla for the info!!!! I REALLY appreciate it! :rolleyes::P

I hope your infection starts to decrease soon! I'll let you know if/when I hear from GSK about the malarone. :o

Laurie

dlp252 Apprentice
dlp252
Posted

This is probably the same info you already have because it looks like what might be included with the meds, but I found this on their website:

The inactive ingredients in both tablets are low-substituted hydroxypropyl cellulose, magnesium stearate, microcrystalline cellulose, poloxamer 188, povidone K30, and sodium starch glycolate. The tablet coating contains hypromellose, polyethylene glycol 400, polyethylene glycol 8000, red iron oxide, and titanium dioxide.

Open Original Shared Link

CarlaB Enthusiast
CarlaB
Posted

I'll look forward to hearing about the Malarone. When I previously researched sodium starch glycolate, I discovered that it's usually not from wheat ... so I took the chance. This was for a different medication than Malarone though. I usually react to small amounts, so I thought that would be the tell-tale sign. I'm on meds long term though ... I don't know that I'd do that right before a trip. ;)

Thanks for the well-wishes. The Babesia infection has gone down significantly and I only have symptoms for a few days a month. I have to have no symptoms for two months to get off the anti-malarials. It will take longer to get rid of the Lyme Disease though.

Have a wonderful trip!

Did you know tonic water was made to help prevent malaria? There is a small amount of quinine in it, so small I don't know how effective it is on its own, but it was areas that had malaria where gin and tonics were consumed.

Felidae Enthusiast
Felidae
Posted

I took malarone in the past, but I didn't realize I was gluten intolerant at the time. Everyone I was with took the other options and they had some issues, not celiac related. I loved malarone, so if you can get the starch information from the manufacturer hopefully, you'll get some insight. That's pretty bad that they don't know their starch source.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 year later...
GeoGigi Newbie
GeoGigi
Posted

I just faced the same decision about taking Malarone. I spoke to a representative from Glaxo Smith Kline. Some of the starch ingredients listed are questionable but they told me the sources were all from wood, cotton or potato. One of the starch ingredients was from an unspecified "fibrous starch" which they said usually means wood or cotton but they could not know for sure. That was good enough for me to decide to take it. Of course, they have the disclaimer that there may be minute traces of gluten before the ingredients reach them. I am going to take it and hope it will be fine.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.