Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Think Triggered Celiac For You?


Guest Doll

Recommended Posts

shimo Rookie

Good question.

I guess what triggered mine was Helicobacter Pylori infection. Then with that solved I had a LOT of stress in my life. That just got it worse.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 80
  • Created
  • Last Reply
alamaz Collaborator

Looking back, I've had symptoms my whole life. From the time I was born I had colic (drinking mom's gluten filled breast milk maybe??) and all through childhood I was the kid with mystery illnesses and ALWAYS sick. Took 28 years to figure it out.

Lately I've been wondering if Autism is somehow related to undiagnosed Celiac. The numbers are so close together (150 or something for autism, 133 for celiac). It probably isn't but the thought crossed my mind when I was watching Oprah that day she had Jenny McCarthy on.

VioletBlue Contributor

To answer one person's question I had strep at about age six. Had mono at 26. But the mono was probably a stress reaction in of itself to the death of my sister in law and my mother's last bout with cancer. Symptoms of Celiac didn't start to show up until roughly ten years after the mono.

Violet

bulrush Newbie

First, I do have an Irish background. I traced much of my family tree.

Did I mention I had asthma since I was born? That's another autoimmune disease.

Look at this: my parents said I was a very colicky baby and I do remember having bad stomach pains as a baby (age less than 12 months) and they said nothing would help me sleep except a ride in the car. Odd that I had those symptoms at so young an age. Odder yet that that's the only thing I remember so young. Was any other celiac/gluten allergy a colicky baby?

I also almost died twice from two separate asthma attacks before my 2nd birthday, per my parents. (They don't like to talk about it.)

The worst episodes were when I went camping overnight and thought I had food poisoning at age 12. I was out of school for 4 weeks (I was always in the bathroom) and should have been in the hospital, but I don't think my family had insurance at the time.

At age 15 subtle memory problems surfaced and gradually got worse. I was an A/B student so this surprised me. Doctors said it was stress or "teen hormones" or "growing pains".

Then at age 18 I had my wisdom teeth out. I got bored, and 7 days after having the teeth out, I went jogging, in the snow. Several days later I had mononucleosis and was out for 4 weeks again.

Finally at age 26 I diagnosed myself and demanded my doctor do the test for food allergies. Wheat allergy was positive as was peanuts (I never noticed symptoms) and oranges. After I got the test results I told him he was fired. (I used those words.)

I would like to advise people they make a medical summary of their life. Talk to your parents, ask what kind of baby you were (colicky or not), what kinds of foods would you prefer, any major illnesses and surgeries, any food poisoning, put it all in chronological order, then look at it. Also add when symptoms started.

Were there any severe gastic disturbances? Like from food poisoning, chemo therapy, etc? (Chemo kills the gastric lining from the stomach all the way to the large colon, because chemo attacks fast growing cells. Chemo also attacks your hair, another fast growing cell, and cancer. My ex-wife had it.)

Also do you have any other autoimmune diseases like: asthma, allergies, I believe Crohn's is also autoimmune. Put it in your medical summary, as the date you first started having symptoms. Now see if you see any pattern.

Also put in any major life changes, like parents getting divorced, you moving, you getting married, getting a new house, changing jobs, getting divorced, etc.

JNBunnie1 Community Regular

I slept with my best friend (which was a HUGE emotional step for me to take, ergo very stressful) and my symptoms started the next day. I don't think a bacteria or a virus had anything to do with it.............

bakingbarb Enthusiast
Looking back, I've had symptoms my whole life. From the time I was born I had colic (drinking mom's gluten filled breast milk maybe??) and all through childhood I was the kid with mystery illnesses and ALWAYS sick. Took 28 years to figure it out.

Lately I've been wondering if Autism is somehow related to undiagnosed Celiac. The numbers are so close together (150 or something for autism, 133 for celiac). It probably isn't but the thought crossed my mind when I was watching Oprah that day she had Jenny McCarthy on.

This is very intresting to me. I was the sick kid, ear infections that were killers (my hearing sucks now), daily headaches, fatigue, constipation that one day turned into the big D and killer stomach cramps after eating and asthma.

My middle child was sick his whole life, so was my oldest! My middle was diagnosed with Aspergers my oldest severe ADHD. Looking back I thought it was the abuse we suffered at the hands of my husband. My symptoms got so much worse when with him and during the divorce. One had asthma severe along with allergies, they both had terrible ear infections and sinus and lung problems. My daughter had some of it. Cripes I just realized I could keep going with this list of stuff for us all.

My sons only somewhat consider they might be in the same boat as me, where my daughter is much more open to it.

I wonder what the trigger was? My Dad used to tell me they put me on a formula made from evap milk when I was very young and my mother used to put hi-c in my bottles and leave me for hours. Could have been a very early age that I got my trigger.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    3. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    5. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,263
    • Most Online (within 30 mins)
      7,748

    Elyn Joy
    Newest Member
    Elyn Joy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.