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person011

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person011 Rookie

I was tested for gluten tolerance in early May and tested positive by only four points. My mom insisted that since I tested positive only a little that I should not worry about it. I decided to get retested this week. I tested positive by the same amount. I guess my question is for those of you going gluten free, how far were you off of the normal range?


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CarlaB Enthusiast

How were you tested?

SunnyDyRain Enthusiast

I was tested IgA +2 from negitive and IgG, at the very top of negitive. I was just going though the similar thing... see my post "Just a little bit Celiac?". That may help, it helped me quite a bit.

person011 Rookie

My IgA was 39 and normal is considered 35 and under

CarlaB Enthusiast

Did they do the rest of the celiac panel?

Are you having symptoms?

Guest j_mommy

Here was my Dr's thought when I got tested.....

She thought had I gotten tested prior to having my son I would have tested as you did...a little elavated, b/c even prior to having my son I had some symptoms. Pregnancy was my "triggering" event..or so they think. Life stress, divorce,marriage ect can "trigger" the gene.

When I was tested in April I was high;y elevated!!!

ravenwoodglass Mentor

If your test was at all postive, even one point it is positive. Even if it had been totally negative it still would not mean for sure you are not celiac. I have always been blood test negative even when close to death and as for the rest of my family they all had low positives, one member was only positive by one point but all have benifited greatly by being gluten-free.


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Rosewynde Rookie

Why'd you get tested? Are you having symptoms?

As far as I know if you blood work test is positive your Celiac, that's what I was told. My real proof was trying the diet and my flu symptoms slowly went away as soon as I stopped eating wheat, rye, barley, and oats. If your having medical problems and that is why you were tested then try the gluten free diet and see how you feel after a couple of months. If the symptoms go away then Gluten is a problem. From what I've read and been told Celiac Disease is not a matter of "just a little bit". There are serious complications that can come if your keep damaging your intestines by exposing them to the gluten.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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