Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Specific Carbohydrate Diet (scd)


pellegrino

Recommended Posts

pellegrino Apprentice

Has anyone had success on the Specific Carbohydrate Diet?

After I was diagnosed with celiac disease about a month ago, my naturopath recommended it. I've read the book Breaking the Vicious Cycle. The diet is crazy restrictive, but I've already eliminated gluten, dairy, most grains, and most sugar, so I don't think it'd be too much different. I'm already basically just eating meats, vegetables and fruits.

I'm still not feeling super great after a month though. Still having a dull achy pain in my left side that I've had since February when I started to feel sick. I'm going to see a celiac specialist at the University of Chicago in August, because I want to know if this pain is something I should be concerned about, and if so, have the necessary tests done.

But my naturopath seems to think a dairy free version of the SCD would really help heal my gut, and likely make this pain go away. And I'm willing to try. I just want to feel normal again.

If you've had success on the diet, how long did it take to see an improvement? Weeks? Months? And how long did you have to stay on the diet? Six months? A year? Longer? When going off the diet, were you able to re-introduce grains and starches without a problem?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



corinne Apprentice

I've been on a variation of the SCD for 1.5 years. It should be noted that I have collagenous colitis not celiac although the two conditions are related. I don't eat any nuts or dairy either. My symptoms resolved fairly quickly on the SCD. No D after about 2 weeks. I've tried going off the SCD, but I seem to react very strongly (vomiting, D) to even potatoes and rice. PM me if you have questions.

JamiD Apprentice

I've been doing something similar to the SCD as well as elimating lectins for about 2 months and it's been helping.

I eat fruit but I can tell when I've had too much. Meat and green vegetables work the best for me to avoid gassiness, but I love fruit and small amounts aren't too bad on me.

Funny, I'm seeing a specialist in August as well, we should report back.

loraleena Contributor

You have only been gluten free for a month. It can take up to a couple years to be better. You need to give this diet more time before going more extreme. Sometimes you need to eliminate dairy though, since this is often a problem for celiacs. Stick with as much unprocessed whole foods as you can.

corinne Apprentice

Loraleena has a good point. I didn't see that you had been gluten free for only a month. I would wait until you have been gluten free for at least 3 months and probably a year without improvement before trying the diet. Dairy free and maybe eliminating other common intolerances should be tried before the SCD. Although D resolved quickly on the SCD, I still had cramps and nausea for about 6 months. It can take a long time to heal.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,681
    • Most Online (within 30 mins)
      7,748

    Donna Ybarra
    Newest Member
    Donna Ybarra
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.