Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New And Need Help


JenniferLeeds

Recommended Posts

JenniferLeeds Newbie

Hi Everyone,

My son has many ongoing medical issues and we think Gluten is to blame for some of them. He tested negative for Celiac but has a lot of the symptoms. So we have choosen to try a gluten free diet in hopes it will help. I am now asking for anyone's help and advice. He is 6 yrs old and a very picky eater along with having other food allergies and is very sensory oriented(i.e. no applesauce, textures ect.) So any information or tips anyone has would be greatly appriciated.

Thanks

Jennifer


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nic Collaborator

Hi, my Celiac son is also 6 but was diagnosed at 4 years and my non Celiac son is 5 and also has sensory issues due to developmental delays. So I can relate, here is a list of what we eat:

Breakfast:

Kinnickinick blueberry muffins

Vann's waffles

Kinnickinick pancakes mix made into mini pancakes or regular

french toast using Ener-g foods tapioca light bread

all Enviro kids cereals as well as cocoa and fruity pebbles, Dora Cereal, and Trix

eggs

Lunch:

gluten free pizza

Thumann's bologna and ham rolled up

hotdogs

Ian's chicken nuggets or fish sticks

gluten free maccaroni with butter

peanut butter and jelly on the Ener-g foods bread

tuna fish on the same bread

Taylor Ham sandwich

Dinner:

For dinner I cook as usual with naturally gluten free foods, meat, veggies, potatos.

I make meatballs and meatloaf using Ener-g foods bread crumbs

Tinkyada or Trader Joe's rice pasta

Snacks:

Enjoy Life cookies or snack bars

fruit

fruit roll ups or fruit snacks

K-Too cookies (just like oreos)

chips

Brownies made by Kinninickinick

ice cream (for us it is soy or rice based because he is dairy free too)

frozen cool whip (even my non celiac has been eating this for dessert).

Hope this helps you but I have found most of these foods in my A&P or Whole foods or Trader Joe's. I also go to some local health food stores. But at least you will know what brands to look for.

Nicole

Darn210 Enthusiast

Just so we can give you a little better help . . .what other allergens are you trying to avoid? Also, what did he like to eat before - so we can try to help you with a gluten-free equivalent or recipe?

JenniferLeeds Newbie
Hi, my Celiac son is also 6 but was diagnosed at 4 years and my non Celiac son is 5 and also has sensory issues due to developmental delays. So I can relate, here is a list of what we eat:

Breakfast:

Kinnickinick blueberry muffins

Vann's waffles

Kinnickinick pancakes mix made into mini pancakes or regular

french toast using Ener-g foods tapioca light bread

all Enviro kids cereals as well as cocoa and fruity pebbles, Dora Cereal, and Trix

eggs

Lunch:

gluten free pizza

Thumann's bologna and ham rolled up

hotdogs

Ian's chicken nuggets or fish sticks

gluten free maccaroni with butter

peanut butter and jelly on the Ener-g foods bread

tuna fish on the same bread

Taylor Ham sandwich

Dinner:

For dinner I cook as usual with naturally gluten free foods, meat, veggies, potatos.

I make meatballs and meatloaf using Ener-g foods bread crumbs

Tinkyada or Trader Joe's rice pasta

Snacks:

Enjoy Life cookies or snack bars

fruit

fruit roll ups or fruit snacks

K-Too cookies (just like oreos)

chips

Brownies made by Kinninickinick

ice cream (for us it is soy or rice based because he is dairy free too)

frozen cool whip (even my non celiac has been eating this for dessert).

Hope this helps you but I have found most of these foods in my A&P or Whole foods or Trader Joe's. I also go to some local health food stores. But at least you will know what brands to look for.

Nicole

Thank you so much. I have been buying lots of different foods and spending lots of money, for him to say it's gross. It's nice to know what brands to use. I recently made him popcorn balls and rice krispy treats from the Gluten-free for dummies cookbook and he loved them. Your son is also school age, what do you usually send for school lunch for him? Thanks again.

Jenifer

JenniferLeeds Newbie
Just so we can give you a little better help . . .what other allergens are you trying to avoid? Also, what did he like to eat before - so we can try to help you with a gluten-free equivalent or recipe?

He is also allergic to all nuts besides peanuts. He cannot have orange juice or anything high in citric acid. We are allowing him to have dairy for now and we may remove it later if we dont see great results from the non-gluten. He is a pasta and bread fanatic. HE loves bean and cheese burritos and pasta with butter and parmasean. I recently found a pasta thats gluten free that he loves. My biggest concern is that he is starting school on July 25(he does year round) and I have no idea what to pack him for lunch. I've made him homemade bread and bought 1 and he didn't like either. He is very picky about texture and routine. If it tastes different than what he is used to he usually wont eat it. He is the type of kid who just won't eat, he doesn't care though he will go all day without eating at school(last year he ate breakfast there too). I have him back on ensure because he is small for his age as it is, so hopefully that will help. Thanks again for all your help.

Jennifer

NewGFMom Contributor

Hey there,

Try getting a thermos and making the gluten free pasta with butter and Parmesan for him to take to school. It will stay warm, and it's cheap too! I do this every day for my son, also an insanely picky eater who does not care about food. (You can tell from my photo here, that *I* am a good eater, so I'm not sure where this came from).

We mostly do:

Thermos of Pasta and 2 of the following:

sliced apple

box of raisins

yogurt thing (smoothie, but he refuses the gluten-free ones now)

cheetos (I get the lower fat ones from Trader Joes)

strawberries

apple sauce

Once you have the thermos you could do gluten-free chicken nuggets and tater tots and things like that. You could probably do a mini bean burrito on a corn tortilla!

Good luck with your picky eater. I'm right there with you.

JenniferLeeds Newbie
Hey there,

Try getting a thermos and making the gluten free pasta with butter and Parmesan for him to take to school. It will stay warm, and it's cheap too! I do this every day for my son, also an insanely picky eater who does not care about food. (You can tell from my photo here, that *I* am a good eater, so I'm not sure where this came from).

We mostly do:

Thermos of Pasta and 2 of the following:

sliced apple

box of raisins

yogurt thing (smoothie, but he refuses the gluten-free ones now)

cheetos (I get the lower fat ones from Trader Joes)

strawberries

apple sauce

Once you have the thermos you could do gluten-free chicken nuggets and tater tots and things like that. You could probably do a mini bean burrito on a corn tortilla!

Good luck with your picky eater. I'm right there with you.

Thanks for the advice. I never even thought about using a thermos. There are a lot more possibilites that open up with that. Thanks again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



janelyb Enthusiast

I also have a sensory kid who often lived on crunchy foods like crackers & chesse for a couple of years. I swear since he has gone gluten free he has opened the doors to exploring new food and new textures. Before he went gluten free he would hardly ever eat pasta or chicken, now just a couples months he lives off those...and recently he has accepted rice into his diet, along with raw baby carrots and now diced peaches.

Bread was a hard one for about a month we just did not offer bread, even the gluten-free kind. The kinda have to forget the taste of the wheat bread beofre they will accept a new one. Toasting or grilling it is much more tasty than eatting it just as a sandwich.

Karen B. Explorer

I wonder how he would react to crunchy bread sticks made with Chebe bread? I made some for our Celiac group and I noticed the kids seems to like them. I used the red package, parmesan cheese and added 1/4 tsp of cayanne to give it just a hint of zip. I've made pizza sticks by adding oregano and sun dried tomatoes. Just make the Chebe bread (red package) according to directions but roll it out to about 1/4 inch thick, cut into 1/4 inch by 4 inch sticks and lay out on parchment paper. Bake until toasty and store for the next 12 hours in a cotton tea towel.

Also since peanut butter is a nutrionally dense food maybe peanut butter cookies?

The following recipe vanished at my office and I've been asked several times when I'm making more (although yes, I do work with a bunch of chow hounds :-)

THE BEST PEANUT BUTTER COOKIES

INGREDIENTS

1 cup peanut butter (creamy or chunky, not reduced fat)

1 cup sugar

1 large egg

1 teaspoon baking soda

THE PROCESS

Preheat oven to 350 degrees and grease a baking sheet.

Cream peanut butter and sugar for 2 to 3 minutes.

In a small bowl, lightly beat egg, then mix into peanut butter mixture. Add

baking soda; mix well. Roll spoonfuls of dough into balls about 1 1/2

inch in diameter.

With the tines of a fork, press down balls and make a crisscross pattern.

Bake for about 10 minutes. Makes about 24 cookies.

NOTE: My Mom makes these cookies for diabetic friends by using Splenda instead of sugar.

Eriella Explorer

Some other things that you might want to try are gluten-free pancakes with peanut butter and jam, rice and beans in a thermos, carrots/apples and peanut butter, salt potatoes, and tortilla lunchables (cut corn tortillas in quarters and slice up meat and cheese and put them in tupperware).

Karen B. Explorer
Some other things that you might want to try are gluten-free pancakes with peanut butter and jam, rice and beans in a thermos, carrots/apples and peanut butter, salt potatoes, and tortilla lunchables (cut corn tortillas in quarters and slice up meat and cheese and put them in tupperware).

Great idea on the lunchables. I take Nut-Thins and Boarshead turkey and cheese sometimes for lunch.

Nic Collaborator
Thank you so much. I have been buying lots of different foods and spending lots of money, for him to say it's gross. It's nice to know what brands to use. I recently made him popcorn balls and rice krispy treats from the Gluten-free for dummies cookbook and he loved them. Your son is also school age, what do you usually send for school lunch for him? Thanks again.

Jenifer

Hi, he is only starting 1st grade this September and our district has half day kindergarten. So this will be my first time packing a lunch too. I plan to try to send the things he already eats for lunch and just try to keep them warm some how. I have been planning on using a thermos for the things that can fit inside one. I am still unsure on how to keep the pizza warm. Any ideas anyone?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.