Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened By Coffee?


chatycady

Recommended Posts

chatycady Explorer

I mixed coffee beans together, half decaf and half regular. Neither were "flavored" but I think I'm being glutened slowly by my cup of Joe. It's the only thing I changed last Thursday and am having symptoms. Off balance, brain fog, tired, back ache and I think the digestive issues will start soon.

Is plain coffee a problem? Someone told me I can not drink any decaf, is that true? I though plain coffee is always okay, but why do I feel so poorly.

I switched the brand on one, threw the bag away so don't know what brand or what it said on the bag.

If it says 100% Arabic coffee is it okay?????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
I mixed coffee beans together, half decaf and half regular. Neither were "flavored" but I think I'm being glutened slowly by my cup of Joe. It's the only thing I changed last Thursday and am having symptoms. Off balance, brain fog, tired, back ache and I think the digestive issues will start soon.

Is plain coffee a problem? Someone told me I can not drink any decaf, is that true? I though plain coffee is always okay, but why do I feel so poorly.

I switched the brand on one, threw the bag away so don't know what brand or what it said on the bag.

If it says 100% Arabic coffee is it okay?????

I think that you should look elsewhere for the gluten.

How long have you been gluten free. It does take time to heal. Coffee should not be an issue, at least not a gluten issue.

Karen B. Explorer

I know some decaf coffee is decafeinated using chemicals, others use a more natural approach. You might be having a reaction to chemicals used to make the coffee decaf. A friend of mine reacts to the less expensive decaf coffee.

darlindeb25 Collaborator

I always use Arabian coffee, I do always make sure that it is 100% coffee though. Flavored coffees can contain gluten, not usually regular coffee.

Kayaking Mom Newbie

I buy beans at Whole Foods and mix them also half & half, as I am trying to get off caffeine (and I really miss it too!!). Whole Foods buys the raw beans and roasts them in the store, without any flavorings. So far it is going fine.

snowcoveredheart Apprentice

personally i have found that ive had to totally give up my coffee (which was a bind to start with!) i dont think it was to do with gluten itself, but just that my system (now ist all working) just couldnt handle the stuff... and then i was getting sysmptoms that were like being gluten'd... coffee is a natural laxative as well, so i just figured it was all to do with ...also it made me feel REALLY all anxious and nervous and skitty.... i cut it out and it went away... i can however have tea, so thats all fine.

kbtoyssni Contributor

I don't think gluten in the coffee is the problem. If anything, I'd say it could be the caffeine. I get really bad stomach pain and foggy head from caffeine - maybe you have a similar reaction?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chatycady Explorer

Thanks all! It has helped.

I went out and bought some regular Starbucks coffee and it made a difference. I just need my cup of joe in the morning. I don't drink caffeine the rest of the day. I've had to give up so much, I hate the thought of giving up coffee too!

So now the question is does the decaf I bought have gluten in it? Or is it the processing that causes me trouble. I guess I will never know!

Thanks all!

Chaty

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,166
    • Most Online (within 30 mins)
      7,748

    melindakathleen
    Newest Member
    melindakathleen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...