Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Issues


Eriella

Recommended Posts

Eriella Explorer

Hi,

I have been gluten free since April and have convinced 2 doctors that I either have non-antibody producing Celiac (which runs in my family) or gluten intolerance and feel great!!

This past week I have been feeling sluggish, gassy, fatigued, and bloated. I know I am not feeling gluten because I am not having C or brain fog, but I still feel yucky. The only thing that was different about this week is that I had a ton of milk (milk with dinner, in coffee, on cereal in the morning, in ice cream, in cheese...). Each time after I ate it I felt icky (technical term :P ) about an hour afterwards. Does this sound like a casein issue? I know all signs say it does, but I really love cheese and ice cream!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mango04 Enthusiast

Yes, and I'm all about convincing people to go dairy-free....however, in this case, you might have just overdone it. I'd try cutting dairy out completely for a few weeks. You can then slowly reintroduce small amounts of it and see how you do :)

mmaccartney Explorer

My casein intolerance is all about belching, a sulphur taste/smell, vomintg and diarreah....

It all starts about 2 hours after eating milk and then ends after about 9 hours of hell..

Lisa Mentor

Does casein issues do intestinal damage as gluten does for a celiac? I have asked before and recieved inconclusive answers. Any one know?

Aged cheddar cheese hits me hard! Although, I don't get the brain fog.

kbtoyssni Contributor

You might have casein intolerance, or you might have a slight lactose intolerance. I feel sick if I eat a ton of dairy (like more than three servings a day) so I try not to eat too much. Sounds like you ate a lot so maybe you'll be able to handle it if you ate less.

Eriella Explorer

Thanks-- it is the milk. We have figured that much out. I am going off milk for 2 weeks, seeing if it makes me sick, then will stay off until I feel better. I think that it is lactose, not casein (or at least hoping)

Thanks for the suggestions!

CMCM Rising Star

When I tested thru Enterolab, I did both the gluten testing and got a bonus one for casein. I tested positive for casein, and the doc from Enterlab said continuing to eat dairy could do just as much damage as eating gluten. I stopped eating gluten, and also eliminated dairy for many months. After that, I've found that I can tolerate small amounts of dairy.....a bit of milk in my cappuccino, a yogurt here and there. But I'm careful not to have too much, and not every day. I always thought it was the lactose that bothered me....perhaps it was lactose AND casein, I don't know. Certain things bother me more than others....the worse are milk and ice cream.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wayne Newbie

Wayne

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,542
    • Most Online (within 30 mins)
      7,748

    Jacqueline Dee
    Newest Member
    Jacqueline Dee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.