Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mini Test From A Newbie

kalikohl

Recommended Posts

kalikohl Rookie
kalikohl
Posted

Quick Background- I have had Crohn's Colitis since Summer of 2005. Recently I've had a few things that are making me and my doctor think I may have C.D.

So today I decided to do a mini-test. I ate nothing with gluten. Applesauce, celery with hummus, shiska-bobs and brown rice and a tofutti ice cream dessert. And I actually feel human. I'm not super tired, I didn't have a bad headache, and like my stomach isn't super swollen.

Is this normal? Do you really feel better like right away or am I grasping at straws?

thanks for any info you can provide.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Karen B. Explorer
Karen B.
Posted

You might find this interesting:

Celiac Disease Prevalence High in Patients with Crohn's Disease

https://www.celiac.com/st_prod.html?p_prodi...-39107055035.eb

Sounds to me like your body had a day without fighting a gluten reaction and it's letting you know it likes gluten-free. Did you also notice there was no dairy in the foods you mentioned? Gluten may not be your only issue.

If you intend to be tested for Celiac, don't go gluten-free until after the test. Going gluten-free before the test can yield a false negative. If I were you, I'd be on the phone to my doc tomorrow.

Congrats on figuring it out!

gfpaperdoll Rookie
gfpaperdoll
Posted

yes, a lot of people feel better after a day or two gluten-free.

Re Crohns: From my support group: There is a lady vet that worked with another vet that had celiac. She started baking gluten-free birthday cakes so that he & his celiac daughter could eat the cake.

She did this for several years, then 5 years ago she went into the gluten-free cake business (& wow is she ever good at it). she built a kitchen in her house completely gluten-free, did a bunch of research & would come to our support meetings to bring samples & pass out her business card.

I was picking up some cakes at her vet office & was talking to her & found out that she had crohns I encourged her to get tested thru enterolab.com She got tested & was positive has a DQ2 & a DQ8. She went gluten-free & guess what she does not have crohns anymore. She thanked me a couple of times for talking her into getting tested. I could not believe how much she knew but never got herself tested. She said on day 4 she felt like a whole new person. & of course she said she is studying a lot more now that it is so personal. Not sure what her family is doing at this time. but she is definitely gluten-free & attending all our meetings. Of course she always gives me extra cake to take home!! :) She is also in the process of tearing out the old gluten kitchen & making one huge gluten-free kitchen.

sneezydiva Apprentice
sneezydiva
Posted
Is this normal? Do you really feel better like right away or am I grasping at straws?

thanks for any info you can provide.

I have been asking myself this very same question. My blood tests for Celiac Disease were negative even though I ate gluten before the test. But I went 2 days gluten free and felt pretty good. Then I went 4 days gluten free and felt great. Then I went 2 more days, was feeling pretty good and intending to go longer, but was at a party and ate some gluten. Today I woke up achy and have been on the toilet on and off all morning. (Sorry hope that isn't TMI).

Without an official diagnosis, I think I needed to keep testing it to know for sure it wasn't a placebo effect and all in my head. Now I'm committed to really doing it. But suffice it to say, the relief you felt for just one day is very real.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,382
    • Most Online (within 30 mins)
      7,748
    victimm
    Newest Member
    victimm
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • lauramac
      COVID19 and getting glutened

      By lauramac · Posted

      I was diagnosed with Celiac Disease abput 10 years ago. When I was initially diagnosed my only "symptom" was persistently low iron (that occasionally dipped into anemia). After diagnosis,  over time, I started to develop symptoms when exposed to gluten--they have been overall relatively minor, but have increased over time (and yes, I realize my guts are likely being wrecked regardless of the symptoms) on the rare occasions I've been exposed to gluten. I had COVID19 last week (now testing negative) and was glutened last night (never trust anything labeled gluten-free in a mixed environment). I had my traditional symptoms (sharp gas pains, burping, nausea, stomach ache) but they were accompanied by new, more intense symptoms (muscle cramps all over my body--feet, calves, biceps, neck, shoulders, jaw, abdomen, I'm still sore today and cold sweats). I spent about 6 hours writhing before I felt well enough to get up.  I have been told by my allergist that COVID19 can cause your immune system to hyper react. I'm wondering if that's what happened here.   Has anyone else had experience getting glutened post COVID19? Relatively shortly after recovering from COVID19? Was it a more extreme reaction or same? I can't seem to find any articles on this, so I thought I'd ask the community.  Thank you!
    • Rogol72
      Draft gluten-free ciders… can they be trusted ?

      By Rogol72 · Posted

      A friend of mine is in the bar trade most of his life and has never heard of lines being mixed for different type of beers and ciders. Better to stick with cans.
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      Thanks very much for confirming my suspicion @Scott Adams! That helps a lot because I'm really trying to track down and get rid of these sources of cross-contact and so I'm going to just rule out the draft ciders and hope that helps. Also @Rogol72 its nice to hear you haven't had a problem on that side of the pond - draft cider lines being used for cider only certainly sounds like the right way to do it, but I think that must not always be practiced over here! 
    • Zuma888
      Gluten challenge and Hashimoto's Thyroiditis

      By Zuma888 · Posted

      I didn't ask a doctor about this actually. I did ask several doctors a long time ago and they told me gluten has nothing to do with hashimoto's. One of them told me to do a gluten challenge to test for celiac, but at the time I was in graduate school so couldn't afford to be even more ill than I was. If you have the symptoms, I really don't advise you to do a gluten challenge. It messed me up mentally and physically for months. At the same time, I benefitted from doing the challenge in the sense that it convinced me that all my symptoms were truly from gluten - even stuff like insomnia! So now I am terrified to eat gluten, whereas before I would have a little once in a while and not notice anything dramatic. 
    • Winnie-Ther-Pooh
      Gluten challenge and Hashimoto's Thyroiditis

      By Winnie-Ther-Pooh · Posted

      I am in a similar situation where I can't feasibly do a gluten challenge but have all the symptoms and I have 2 celiac genes. I'm curious if your doctor advised you to eat as if you had a diagnosis or if they were more dismissive about it. 
×
×
  • Create New...