Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Story


mike07

Recommended Posts

cmom Contributor

If I remember correctly, Dannon will not guarantee any of their yogurt as gluten free. Yoplait makes a Yo-+ and I believe most of theirs is safe.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiaction Rookie
David,

I noticed u mentioned MS?

Could u explain why .......We have a Celiac Sprue 17 year old son,hubby,I,and 2 other son's which all show signs :(

But the reason I ask about MS his brother (hubby's) was DXD about 10 years ago and us having celiac disease could this be his reason too?

My mother-in-law and mostly all of his side kinda think I'm nuts when I say they r culprits too, and in September I will be able to say well I told ya so :P (Hubby's gene testing)

Hubby quit smoking about 6 years ago when this awful D showed it true colors, he always has the DH just was told it was exzema lol

I too have the DH and the boys :(

Thanks for the info u can supply !

Belinda

Celiaction Rookie

Belinda,

My best hopes for your brother and his most challenging condition. The MS connection is only at best an insightful layman's theory and has only a few medical studies to suggest a causal link. There is a study which indicated a correlation of leaky gut syndrome to MS. Celiac wreaks havoc on the gut causing bleeding, inflammation and leaky gut. Here's the deeper concept. In all auto-immune disease the body attacks and strips away proteins - the myelin sheth in the nerves of MS sufferers. Perhaps these (in my guess) inappropriate plant proteins from wheat are not actually appropriate for the body - like putting leaded gas in an unleaded car.

History suggests that wheat proteins have only been consumed for only the last 4000 years having been developed in Mesopotamia then Egypt as slave food. 4000 years (1500 in N. Europe) is but one 500th of the time in which recognisable humans have hunted and gathered food on the earth. We were raised on meat and ready vegetables (which don't need cooking.) Grass seeds must be cropped and cooked to be made edible termed the Neolythic era. Corn, beans and potatoes are New World foods (from the americas) and little adaptation has occured to them as well. Anyways the thought is that these proteins mimic meat proteins and are used by the body but poorly. We celiacs have the sensitivity and recognise them in the gut and nearly ruin ourselves to get it out. In other people the "bad" proteins reach other places in the body and are stripped out by our immune systems. I can't think of other auto-immune diseases but this theory explains alot.

David

mftnchn Explorer
Following that I am also going to follow the advise of the members here and go gluten / dairy free for a few months to see if things improve if not then I don't know what to do after that but I am hopeful so wish me luck I am sure I will need it.

Finally I just wanted to repeat the question I asked before about the yogurt which is I have heard that yogurt can actually heal the intestines and some of it can actually keep you regular (ie. dannon activia) but since it's a dairy product would that do more harm then good or is yogurt the exception the dairy free rule ?

Hi Mike,

I think you have a good plan, and it is certainly not going to hurt you to go gluten free!

Yes, yogurt would contain milk proteins. What you could do if you are taking the yogurt to benefit the intestine is to take a good probiotic. You can find those milk free. Many of us find them beneficial, though you might have to try different brands and different amounts (strengths) to see what works.

gfpaperdoll Rookie

There is more & more information on MS and the gluten free diet, there used to be some threads on this in the brain talk forum with links to articles, it is a little complicated but celiac or gluten intolerance or whatever you want to call the ill effects of eating gluten, does & can cause lesions on the spine and the brain that are or resemble MS lesions, & people that have been diagnosed MS have gone on the diet & have been "cured" of MS & are trying to get the word out to the MS community.

I just read this the other day about some research concerning the proteins in the body and the way things attach to them like drugs and natural processes of the body (sorry I am just not a medical person) they have discovered that the way the protein jiggles affects this process ie how a drug would attach to the protein etc. This has never been seen because they used 3D or something, anyone it seems to be a teeny tiny little piece that might prove worthwhile to the scientific community.

Now sorta back to the main thread, I hope that you try the gluten free & dairy free trial and see how it works for you. I personally would skip the yogurt. I think that sometimes if you just get rid of the "poison" that your natural systems will kick in, if that is not the case with you then you could look into a non dairy probiotic, I personally do not take them, but then again I have been mostly wheat free for 13 years (the last 3 gluten-free) & Barley & oat free for 35 years...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      how much gluten do I need to eat before blood tests?

    2. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,260
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.