Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Story


mike07

Recommended Posts

cmom Contributor

If I remember correctly, Dannon will not guarantee any of their yogurt as gluten free. Yoplait makes a Yo-+ and I believe most of theirs is safe.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiaction Rookie
David,

I noticed u mentioned MS?

Could u explain why .......We have a Celiac Sprue 17 year old son,hubby,I,and 2 other son's which all show signs :(

But the reason I ask about MS his brother (hubby's) was DXD about 10 years ago and us having celiac disease could this be his reason too?

My mother-in-law and mostly all of his side kinda think I'm nuts when I say they r culprits too, and in September I will be able to say well I told ya so :P (Hubby's gene testing)

Hubby quit smoking about 6 years ago when this awful D showed it true colors, he always has the DH just was told it was exzema lol

I too have the DH and the boys :(

Thanks for the info u can supply !

Belinda

Celiaction Rookie

Belinda,

My best hopes for your brother and his most challenging condition. The MS connection is only at best an insightful layman's theory and has only a few medical studies to suggest a causal link. There is a study which indicated a correlation of leaky gut syndrome to MS. Celiac wreaks havoc on the gut causing bleeding, inflammation and leaky gut. Here's the deeper concept. In all auto-immune disease the body attacks and strips away proteins - the myelin sheth in the nerves of MS sufferers. Perhaps these (in my guess) inappropriate plant proteins from wheat are not actually appropriate for the body - like putting leaded gas in an unleaded car.

History suggests that wheat proteins have only been consumed for only the last 4000 years having been developed in Mesopotamia then Egypt as slave food. 4000 years (1500 in N. Europe) is but one 500th of the time in which recognisable humans have hunted and gathered food on the earth. We were raised on meat and ready vegetables (which don't need cooking.) Grass seeds must be cropped and cooked to be made edible termed the Neolythic era. Corn, beans and potatoes are New World foods (from the americas) and little adaptation has occured to them as well. Anyways the thought is that these proteins mimic meat proteins and are used by the body but poorly. We celiacs have the sensitivity and recognise them in the gut and nearly ruin ourselves to get it out. In other people the "bad" proteins reach other places in the body and are stripped out by our immune systems. I can't think of other auto-immune diseases but this theory explains alot.

David

mftnchn Explorer
Following that I am also going to follow the advise of the members here and go gluten / dairy free for a few months to see if things improve if not then I don't know what to do after that but I am hopeful so wish me luck I am sure I will need it.

Finally I just wanted to repeat the question I asked before about the yogurt which is I have heard that yogurt can actually heal the intestines and some of it can actually keep you regular (ie. dannon activia) but since it's a dairy product would that do more harm then good or is yogurt the exception the dairy free rule ?

Hi Mike,

I think you have a good plan, and it is certainly not going to hurt you to go gluten free!

Yes, yogurt would contain milk proteins. What you could do if you are taking the yogurt to benefit the intestine is to take a good probiotic. You can find those milk free. Many of us find them beneficial, though you might have to try different brands and different amounts (strengths) to see what works.

gfpaperdoll Rookie

There is more & more information on MS and the gluten free diet, there used to be some threads on this in the brain talk forum with links to articles, it is a little complicated but celiac or gluten intolerance or whatever you want to call the ill effects of eating gluten, does & can cause lesions on the spine and the brain that are or resemble MS lesions, & people that have been diagnosed MS have gone on the diet & have been "cured" of MS & are trying to get the word out to the MS community.

I just read this the other day about some research concerning the proteins in the body and the way things attach to them like drugs and natural processes of the body (sorry I am just not a medical person) they have discovered that the way the protein jiggles affects this process ie how a drug would attach to the protein etc. This has never been seen because they used 3D or something, anyone it seems to be a teeny tiny little piece that might prove worthwhile to the scientific community.

Now sorta back to the main thread, I hope that you try the gluten free & dairy free trial and see how it works for you. I personally would skip the yogurt. I think that sometimes if you just get rid of the "poison" that your natural systems will kick in, if that is not the case with you then you could look into a non dairy probiotic, I personally do not take them, but then again I have been mostly wheat free for 13 years (the last 3 gluten-free) & Barley & oat free for 35 years...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      322

      Terrible Neurological Symptoms

    2. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

    3. - knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      322

      Terrible Neurological Symptoms

    5. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,593
    • Most Online (within 30 mins)
      7,748

    creak
    Newest Member
    creak
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Thiamine Mononitrate is "shelf stable" and won't break down easily when exposed to heat, light and over time.  This makes it very hard for the body to absorb and utilize it.  Only thirty percent is absorbed, less is utilized because it takes additional thiamine to break it down.   Thiamine Hydrochloride is great.  Benfotiamine is wonderful, too.   Retaining water, edema, is a symptom of low thiamine.  I'd bloat up like a puffer fish.   The ingrown toenail problems I had that I attribute to Niacin deficiency and Vitamin C deficiency.  My toenails curled in and grew thick and yellow, thickened heels.  It was awful.   So glad you're going to give thiamine hydrochloride a try!   Let me know how it goes.  You may feel worse before you feel better, the thiamine paradox, but it does clear up.  It's like a car back firing if it hasn't been run for a while.   Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • Known1
      Thanks again, I'll keep pressing on.  🤞
    • knitty kitty
      @Known1, Search for "niacin flush fades the longer you use it" and "Niacin flush worse if deficient".   It takes a couple to three weeks for the body to adjust and you're at that point now, so things should improve. Riboflavin makes the neon color, which glows under black light.  If not absorbed, excreted.  Absorption of riboflavin will improve as the body starts healing the intestinal lining and villi grow back.   You could skip the multivitamin instead.  
    • HectorConvector
      The conversion factor for mg/dl and mmol/L is 18. So 5 = 90, 7 = 126, and so on. In the US, blood sugar regulations now are the same as what we use in the UK except for this difference in units. In terms of how they compare in the past, the numbers today that I quoted are stricter than they used to be. Blood sugar numbers for +1 and +2 hour postprandial are measured from the beginning of a meal in these official numbers. In regards to the thiamin supplement I have: it says it is thiamine mononitrate. I had not until now been aware there were different types (it seems I find that is the case with everything, including the magnesium I take!) and this one I have is the only one available in my local stores. I know it makes my pee smell strong when I take it which would seem to indicate my body is absorbing enough that the remainder gets ejected, but I could be wrong. Of course, I'm willing to try anything reasonable to correct this long standing condition, whatever it might be so I will try and get thiamin hydrochloride. Back on the note of diabetes (potentially) I haven't had the blood test for a while and I did notice ingrown toenail type infections a few times in the last 3 years that kept coming back. I heard that diabetes caused high urination. But eating sugar and elevated blood sugar causes the opposite in me. If I eat a lot of sugar I retain water, like big time. If I ate a bunch o sugar in the afternoon say, I can produce little enough urine that I can go over 12 hours and have nowhere near enough urine to need to void in that time or longer which seems abnormal.       
    • Known1
      @knitty kitty For me, the flushing lasts about 10 hours and not just 60-90 minutes after consuming the vitamins.  I am 10-days into taking this already.  My urine is neon colored around the clock and I drink between 1/2 to 3/4 of a gallon of water per day.  I'll stick with 2 a day for now, but am honestly quite hesitant to do so. I am curious, where are you reading "the worse the flush, the more your body needs the niacin"?  I have been searching for that, but haven't found that anywhere.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.