Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Story


mike07

Recommended Posts

cmom Contributor

If I remember correctly, Dannon will not guarantee any of their yogurt as gluten free. Yoplait makes a Yo-+ and I believe most of theirs is safe.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiaction Rookie
David,

I noticed u mentioned MS?

Could u explain why .......We have a Celiac Sprue 17 year old son,hubby,I,and 2 other son's which all show signs :(

But the reason I ask about MS his brother (hubby's) was DXD about 10 years ago and us having celiac disease could this be his reason too?

My mother-in-law and mostly all of his side kinda think I'm nuts when I say they r culprits too, and in September I will be able to say well I told ya so :P (Hubby's gene testing)

Hubby quit smoking about 6 years ago when this awful D showed it true colors, he always has the DH just was told it was exzema lol

I too have the DH and the boys :(

Thanks for the info u can supply !

Belinda

Celiaction Rookie

Belinda,

My best hopes for your brother and his most challenging condition. The MS connection is only at best an insightful layman's theory and has only a few medical studies to suggest a causal link. There is a study which indicated a correlation of leaky gut syndrome to MS. Celiac wreaks havoc on the gut causing bleeding, inflammation and leaky gut. Here's the deeper concept. In all auto-immune disease the body attacks and strips away proteins - the myelin sheth in the nerves of MS sufferers. Perhaps these (in my guess) inappropriate plant proteins from wheat are not actually appropriate for the body - like putting leaded gas in an unleaded car.

History suggests that wheat proteins have only been consumed for only the last 4000 years having been developed in Mesopotamia then Egypt as slave food. 4000 years (1500 in N. Europe) is but one 500th of the time in which recognisable humans have hunted and gathered food on the earth. We were raised on meat and ready vegetables (which don't need cooking.) Grass seeds must be cropped and cooked to be made edible termed the Neolythic era. Corn, beans and potatoes are New World foods (from the americas) and little adaptation has occured to them as well. Anyways the thought is that these proteins mimic meat proteins and are used by the body but poorly. We celiacs have the sensitivity and recognise them in the gut and nearly ruin ourselves to get it out. In other people the "bad" proteins reach other places in the body and are stripped out by our immune systems. I can't think of other auto-immune diseases but this theory explains alot.

David

mftnchn Explorer
Following that I am also going to follow the advise of the members here and go gluten / dairy free for a few months to see if things improve if not then I don't know what to do after that but I am hopeful so wish me luck I am sure I will need it.

Finally I just wanted to repeat the question I asked before about the yogurt which is I have heard that yogurt can actually heal the intestines and some of it can actually keep you regular (ie. dannon activia) but since it's a dairy product would that do more harm then good or is yogurt the exception the dairy free rule ?

Hi Mike,

I think you have a good plan, and it is certainly not going to hurt you to go gluten free!

Yes, yogurt would contain milk proteins. What you could do if you are taking the yogurt to benefit the intestine is to take a good probiotic. You can find those milk free. Many of us find them beneficial, though you might have to try different brands and different amounts (strengths) to see what works.

gfpaperdoll Rookie

There is more & more information on MS and the gluten free diet, there used to be some threads on this in the brain talk forum with links to articles, it is a little complicated but celiac or gluten intolerance or whatever you want to call the ill effects of eating gluten, does & can cause lesions on the spine and the brain that are or resemble MS lesions, & people that have been diagnosed MS have gone on the diet & have been "cured" of MS & are trying to get the word out to the MS community.

I just read this the other day about some research concerning the proteins in the body and the way things attach to them like drugs and natural processes of the body (sorry I am just not a medical person) they have discovered that the way the protein jiggles affects this process ie how a drug would attach to the protein etc. This has never been seen because they used 3D or something, anyone it seems to be a teeny tiny little piece that might prove worthwhile to the scientific community.

Now sorta back to the main thread, I hope that you try the gluten free & dairy free trial and see how it works for you. I personally would skip the yogurt. I think that sometimes if you just get rid of the "poison" that your natural systems will kick in, if that is not the case with you then you could look into a non dairy probiotic, I personally do not take them, but then again I have been mostly wheat free for 13 years (the last 3 gluten-free) & Barley & oat free for 35 years...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - julie falco replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Schar's products contain wheat!

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Second chance

    3. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Second chance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,604
    • Most Online (within 30 mins)
      7,748

    JV2026
    Newest Member
    JV2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • julie falco
      thank you that is good to know that it is safe for celiac people
    • Jmartes71
      Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped  up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the gluten challenge! Why the hell would I eat Gluten when im Celiac coming to them for answers when my body is falling apart? Glutenfree since 1994. They did unnecessary colonoscopy KNOWING im glutenfree. A celiac specialist would know that would be pointless to do if not eating gluten and it was done!Im so angery with that hospital for not explaining celiac disease and withholding information, Downplaying my ailments , mental distress,  causing more health issues, ect. All this could have been avoided If medical records were sent, when asked, explained and done properly. Im so angery.I do have the celiac dietitian on here in June and linked her up to my current health care yesterday, fingers crossed hopefully with that, the understanding of celiac is explained it's not just a food allergy will be understood. 
    • Scott Adams
    • Scott Adams
      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
    • Scott Adams
      It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable primary care provider and, when needed, a gastroenterologist or dietitian familiar with gluten-related disorders. Advocating for yourself is not unreasonable—it’s part of managing a chronic condition. If your current provider relationship isn’t working, it’s appropriate to seek care where you feel respected and properly supported.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.