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Bright Red Spots

melmak5

By melmak5
in Coping with Celiac Disease

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melmak5 Contributor
melmak5
Posted

I have been diagnosed with celiac for just a month now, I do not have DH, but starting yesterday, I have bright red spots on my chest, torso and one on my arm.

They do not itch, they are not painful or raised. At first I thought I had cut myself by accident because they are that bright in color.

I have not been out in the sun. I have not eaten anything new or changed any meds.

Anyone else?

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Jestgar Rising Star
Jestgar
Posted

There are some vitamin deficiencies that can cause skin issues. I know zinc does and I think one of the B vitamins does as well.

jmd3 Contributor
jmd3
Posted

I got these....more so when I was eating gluten. I went to a dermatologist, he diagnosed them as Cherry Angioma. I was told they are hereditary....my mom has them, my two oldest children have a couple.

Open Original Shared Link

Open Original Shared Link

Hope this helps.

melmak5 Contributor
melmak5
Posted
  • Author

jmd3 - THANK YOU BUNCHES!

This totally sounds like what I have. After further investigation, I noticed that they look a lot like a spot on my upper thigh that I have had my entire life.

I am still going to get them checked out to make sure they aren't a vitamin-related thing (thank you too Jestgar) but at least I don't feel like I am walking around with something contagious.

Last week one of my arms and my torso broke out in what was diagnosed as pityriasis rosea. My skin is all jealous that my digestive systems is getting all the attention.

JNBunnie1 Community Regular
JNBunnie1
Posted

Hey! I had that pytiriasis thing too! That was a while ago, I don't think it was gluten-related or anything though. I actually just got DH for the first time, I got glutened after two years gluten-free. Has that happened to anone else, getting DH so many years after diagnosis?

jmd3 Contributor
jmd3
Posted
I got these....more so when I was eating gluten. ..

Just wanted to make this clear....so I didn't confuse anyone.

I didn't get these from eating the gluten...I just noticed I got so many more when I was eating gluten. Some have faded/shrunk a bit, but I have a bunch of them. I even have several on the palms of my hands, and a couple on a finger.

melmak5 Contributor
melmak5
Posted
  • Author

I saw my PC today, she said "they are totally normal. They are from aging or pregnancy."

She INSISTED that they had been there all along, because no one gets these "over night."

I told her that in fact yesterday there were none on my forearms and pointed out 8 of them to her, that are on them today.

She told me not to worry about them. But then the kicker... she said that her other patients who have been diagnosed with celiac have felt better by now (referring to me being gluten-free for a month, post diagnosis.)

I think I was in shock.

The woman has no idea what the symptoms for celiac are, misdiagnosed me for 3 months with acid reflux when I was in the bathroom 3-5x daily with D, AND has no suggestions or advice other than...

"well, don't use lip balm or eat foods with gluten in them"

Her closer: "well I guess its up to the GIs now"

[insert expletives here]

WHY did I waste my time and money?

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Lisa Mentor
Lisa
Posted
I saw my PC today, she said "they are totally normal. They are from aging or pregnancy."

She INSISTED that they had been there all along, because no one gets these "over night."

I told her that in fact yesterday there were none on my forearms and pointed out 8 of them to her, that are on them today.

She told me not to worry about them. But then the kicker... she said that her other patients who have been diagnosed with celiac have felt better by now (referring to me being gluten-free for a month, post diagnosis.)

I think I was in shock.

The woman has no idea what the symptoms for celiac are, misdiagnosed me for 3 months with acid reflux when I was in the bathroom 3-5x daily with D, AND has no suggestions or advice other than...

"well, don't use lip balm or eat foods with gluten in them"

Her closer: "well I guess its up to the GIs now"

[insert expletives here]

WHY did I waste my time and money?

I am posting premature....did not read the whole thread. But, your Dr. doesn't seem to get the celiac thing.

Do what you feel you need to do. A gluten free diet needs no DX from a DR. If it helps you, make a choice. No future testing nor expense is necessary.

(Now, I'll go back and see if my post is relevant.) ;)

melmak5 Contributor
melmak5
Posted
  • Author

Thanks MommaG

I have been diagnosed (I probably need to figure out the signature thing), a month ago today.

I am still having some seriously problems and not really seeing any improvement... and GI Doctor #1 wants to run a bacterial overgrowth test and/or a colonoscopy.

(Last week I broke out in itchy, bumps, this week, bright red dots... plus burping w/regurgitation, abdomen pain/distention/bloating, fatigue, C & D, bleeding from rectum, giant concentration problems.)

Like today, I was so bloated I couldn't sit in my GP's office, I had to stand while she examined me cause it hurts to sit.

GI Doc #1 referred me to "unavailable celiac doc" who referred me to GI Doc #2 who treats celiac patients... I am seeing him Monday.

Why do I want to see a doctor... cause I feel like

A - I am still doing something wrong

B - There is something else wrong with me

C - I love this website, and other online resources, but I can only "focus" for a short amount of time, then I fall asleep or become overwhelmed and upset. Selfishly, I want a condensed owners manual for my new gut.

aikiducky Apprentice
aikiducky
Posted

I think checking for bacterial overgrowth is actually a very good idea. Many newly diagnosed celiacs have it and it can really slow down your recovery.

Pauliina

  • 5 years later...
nico Newbie
nico
Posted

Hi JMD3,

how is going with your angiomas with the gluten-free diet?

Thanks.

kareng Grand Master
kareng
Posted

Hi JMD3,

how is going with your angiomas with the gluten-free diet?

Thanks.

This thread is over 5 years old. Many posters may not still be around and active on the forum.

  • 3 weeks later...
nico Newbie
nico
Posted

This thread is over 5 years old. Many posters may not still be around and active on the forum.

Oh right! :rolleyes:

Ok, thanks.

  • 3 years later...
katesyl Apprentice
katesyl
Posted
On April 9, 2013 at 5:22 PM, nico said:

Oh right! :rolleyes:

Ok, thanks.

I also wanted to know the answer! I have some red spots showing up and they sound like the angiomas. I had showed them to my primary care doctor and she briefly glanced at them. I can't remember what she called it, but I wasn't sure. I am getting more of them. I know I have been glutened unknowingly this summer quite a few times when eating out. (CRYING OUT OF MY OWN STUPIDITY). My GI doctor did a follow up endoscopy and biopsies this summer which only showed gastritis but no doctor has ran vitamin levels on me for a long time. I am going to try to get established with a new primary care doctor soon so they can look at these spots. I would love to know that they are indeed nothing. I'm unsettled by the fact that I don't want them to be something major. I do need my vitamin levels ran and I think we all should get those checked. I know this summer my platelets were slightly elevated so I know the spots aren't from low platelets. I wish there were more doctors who knew a lot more about celiac disease, because I haven't found one yet who was **extremely** knowledgable on the subject. 

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