Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have These Symptoms


Joni63

Recommended Posts

Joni63 Collaborator

I visited my celiac sister yesterday and she had Redbridge beer. I can't tell you the last time I drank beer because I would always get a burning in my belly, stuffed up nose, and feel really bad the next day, and that is with only 1 or 2 beers. I tried one and could not believe I could still breathe clearly. I had to have another because I could not believe I felt ok when drinking it. Has anyone else had a similar reaction to regular beer. I never had a headache or felt bad in any way. Is that because I am celiac?

I also realized that whenever I wear mascara and forget to take it off before bed that I would get a stuffed up nose and itchy eyes. Does mascara have gluten in it and can it cause this type of reaction?

Just a FYI. My bloodtests were positive and I haven't had the endoscope done yet so I am still eating gluten containing food.

Anyone ever had similar experiences?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
I visited my celiac sister yesterday and she had Redbridge beer. I can't tell you the last time I drank beer because I would always get a burning in my belly, stuffed up nose, and feel really bad the next day, and that is with only 1 or 2 beers. I tried one and could not believe I could still breathe clearly. I had to have another because I could not believe I felt ok when drinking it. Has anyone else had a similar reaction to regular beer. I never had a headache or felt bad in any way. Is that because I am celiac?

I also realized that whenever I wear mascara and forget to take it off before bed that I would get a stuffed up nose and itchy eyes. Does mascara have gluten in it and can it cause this type of reaction?

Just a FYI. My bloodtests were positive and I haven't had the endoscope done yet so I am still eating gluten containing food.

Anyone ever had similar experiences?

Bellyfat,

If you had a positive blood test for celiac ( by a true Celiac Panel), you then have Celiac. No doubt about it, other than yours. You are diagnosed. If you want to continue eating gluten to check on the amount of damage, then yes, continue eating gluten. If you are comfortable with your diagnosis, then you can begin the diet immediately and begin your road to recovery.

May I recommed that you read some of these posts on this site. They can be very informative.

Joni63 Collaborator

I did have the celiac panel and know I am celiac. I had an ovarian cyst rupture in March and have had pains every time I eat food since then. The ovarian cysts are coming and going and are benign so we are going to do another ultrasound in about 6 months. But I think it set off the celiac disease in full force even though I do see now that I had some stomach aches and constipation for a year or so now. I'm really lucky they found it so quickly since my sister was already diagnosed. She has had it for about 10 years now and became really ill before they figured out what was wrong with her.

Thankfully when all this was going on my Dr. asked about family history and very willingly tested me for celiac since my sister has it and my grandmother died of intestinal or bowel cancer. The GI Dr. wanted to do a colonoscopy and endoscopy at the same time because of past family history. I'm only going through the tests to get completely checked out. I really don't want to, but think I will feel better if I have everything checked over in case there are other problems.

Next I think I'll have to get my children checked. I hate that thought because they are only 7 and 9. I'm sure it's better to know early in life to avoid all kinds of problems for them. I just hope they would only have to go through the blood test and not the endoscope. I've read some of the threads about the Doctor not diagnosing them if they don't get the scope. I dread all this for them.

I'm very anxious to go on the diet now to see if I really can NOT have a belly ache. I think it's become so normal that I didn't realize how long it might have been going on!

Thanks Momma Goose, I do understand that the blood test is accurate when positive. I think in the future they will not require the endoscopy for a positive Dx on celiac. Won't that be wonderful!

Lisa Mentor
I did have the celiac panel and know I am celiac. I had an ovarian cyst rupture in March and have had pains every time I eat food since then. The ovarian cysts are coming and going and are benign so we are going to do another ultrasound in about 6 months. But I think it set off the celiac disease in full force even though I do see now that I had some stomach aches and constipation for a year or so now. I'm really lucky they found it so quickly since my sister was already diagnosed. She has had it for about 10 years now and became really ill before they figured out what was wrong with her.

Thankfully when all this was going on my Dr. asked about family history and very willingly tested me for celiac since my sister has it and my grandmother died of intestinal or bowel cancer. The GI Dr. wanted to do a colonoscopy and endoscopy at the same time because of past family history. I'm only going through the tests to get completely checked out. I really don't want to, but think I will feel better if I have everything checked over in case there are other problems.

Next I think I'll have to get my children checked. I hate that thought because they are only 7 and 9. I'm sure it's better to know early in life to avoid all kinds of problems for them. I just hope they would only have to go through the blood test and not the endoscope. I've read some of the threads about the Doctor not diagnosing them if they don't get the scope. I dread all this for them.

I'm very anxious to go on the diet now to see if I really can NOT have a belly ache. I think it's become so normal that I didn't realize how long it might have been going on!

Thanks Momma Goose, I do understand that the blood test is accurate when positive. I think in the future they will not require the endoscopy for a positive Dx on celiac. Won't that be wonderful!

I am sorry if my post was a bit blunt. I had a really bad week full of emotions. I am usually quite a bit more welcoming than realized in my post.

But, I would continue to suggest that you read as much here as you can, so when you are ready for the diet you will be armed and ready. This is the best source of information that I that I know of.

Joni63 Collaborator

No need for apology! I didn't think that at all!

Thank you for your suggestion about reading all I can. There is a lot to it and it can be a lot to handle. I think this is a great place and full of helpful people. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,955
    • Most Online (within 30 mins)
      7,748

    John767
    Newest Member
    John767
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • John767
      DiGiornos gluten free pizza at one point was  made from a dough derived of wheat starch...yet they were able to call it gluten free probably because it came in at under 20ppm for gluten.  Apparently the recipe was changed and the pizza not longer contains a wheat starch derived crust.  As for the Heinz dressing, it could be an issue with cross contamination with wheat barley and or rye somewhere during the production process.  If you read how Frito-Lays (on their website) designates items gluten free, you will understand the variances in the lengths companies go through in deciding when to put on a gluten free label and when not--Frito-Lays is pretty solid.  Also being in Canada, they may follow a common international rule of less than 20ppm of gluten is all that is required to be labeled gluten free regardless of the grains used to manufacture the product (common in Europe, Central, and South America)...it took a couple of really rough mornings after consuming some Dura Damm (labeled as gluten free outside the USA) for me to realize that it was a gluten reduced beer. Same with Mahou Beer which actually says in Spanish "suitable for celiacs", unfortunately it is not suitable for this celiac and of course the following day was really rough as well...really take the time to read the ingredients because had I read the ingredients of  Mahou's "suitable for celiacs" "sin gluten" beer I would have noticed that it was made from cabada (Spanish for barley)...hope this helps...        
    • Wheatwacked
      Here is an article that explains test results and what they mean.  Testing for Celiac Disease is so elusive, any positive, unless a lab error false positive, is evident of Celiac.  It is easier to be in denial, tnan committing to gluten free.  Like not believing a pregnancy test.  Denial will lead to more suffering. Are You Confused About Your Celiac Disease Lab Results?
    • Wheatwacked
      I believe that what triggers acute Celiac Disease is vitamin D deficiency.  When we have stress it depletes our already low vitamin D, (40% to 60% of us in the industrial world are deficient) allowing the Celiac genes and the immune system to run amuck.  At 93 ng/ml 25(OH)D blood level, the last time I accidentally glutened myself, all that I got was a runny nose and burning eyes three days later.  It took 8 years, taking 10,000 IU a day to get to this blood level. Vitamin D Is Not as Toxic as Was Once Thought Possible Role of Vitamin D in Celiac Disease Onset So true.  If I am working on something I'm enjoying, I put off eating because after I eat I mostly feel worse.  Not so much anymore, but it's been a life long struggle with the anorexia.  M&M Peanuts is a good go-to snack.  For the dairy Kosher Dill pickles, brine fermented, not vinegar quick pickles (vinegar kills the bacteria), will repopulate your gut with Lactobacillus that exretes lactase, the reason adults are not lactose intolerant.  Also, grassfed milk has less omega 6 fatty acids than commercial grain fed dairy. Grassfed omega 6:3 ratio is 1:1; Organic milk 3:1; Commercial Dairy 5:1.  Omega 6 causes inflammation.  The typical western diet is 14:1.  Wheat flour is 22:1.  A good reason not to eat gluten.  Here is a list: High omega-3/low omega-6 I find it interesting that the new diagnosis of Non Celiac Gluten Sensitivity was created 10 years after Norman Borlaug, "the father of the Green Revolution" and our modern grain crops, received the Nobel Peace Prize in 1970.  
    • Heatherisle
      Thanks for your reply. She has been given a date for her endoscopy, 28th of this month, so hopefully she’ll know for sure if she definitely has coeliac. Needless to say she’s dreading it!!!!
    • Russ H
      That is more than 10x the standard range, so a strong positive. In the UK for children and adults under the age of 55, at least 10x the standard range is sufficient to be diagnosed without having an endoscopy. The NICE guidelines are are different for children in that a referral to a gastroenterologist is also recommended for diagnosis. https://www.coeliac.org.uk/healthcare-professionals/diagnosis/how-to-test/ https://www.coeliac.org.uk/healthcare-professionals/diagnosis/diagnosis-in-children/  
×
×
  • Create New...