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Couple Foods In Question

Lizking531

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Lizking531 Rookie
Lizking531
Posted

Hi! I'm new to this - 1st post yesterday - trying gluten free - on day 3

I'm wondering about a couple different foods if they do/do not have gluten or CC

Tylenol - or more specifically generic (Meijer Brand) acitometophin (sp?)

Wild Oats Corn Tortillas - 100% Corn but aren't labeled gluten-free

Coffee-Mate Blueberry Cobbler Powdered Creamer - my job has it, been drinking it, seems ok, but want to be sure

I've been struggling with a bunch of GI/emotional issues for over a year - 1st was emotional, then more and more it was GI - anxiety, irritability, depression, fatigue, explosive diarrhea, gas, bloating, "foamy" full feeling with weird "non-saliva" foam in mouth, etc, etc

I recently had an endoscopy and colonoscopy with blood and biopsy, previously had blood/stool/urine tests from general doc - all negative for everything - still have a "breathe test" for bacteria to go through.

It seems weird from what I've read, but its only been a couple days, but I woke up this morning with the clearest head I've had in months and my body feels better - could this just be wishful thinking/placebo effect?

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lorka150 Collaborator
lorka150
Posted
Hi! I'm new to this - 1st post yesterday - trying gluten free - on day 3

I'm wondering about a couple different foods if they do/do not have gluten or CC

Tylenol - or more specifically generic (Meijer Brand) acitometophin (sp?)

Wild Oats Corn Tortillas - 100% Corn but aren't labeled gluten-free

Coffee-Mate Blueberry Cobbler Powdered Creamer - my job has it, been drinking it, seems ok, but want to be sure

I've been struggling with a bunch of GI/emotional issues for over a year - 1st was emotional, then more and more it was GI - anxiety, irritability, depression, fatigue, explosive diarrhea, gas, bloating, "foamy" full feeling with weird "non-saliva" foam in mouth, etc, etc

I recently had an endoscopy and colonoscopy with blood and biopsy, previously had blood/stool/urine tests from general doc - all negative for everything - still have a "breathe test" for bacteria to go through.

It seems weird from what I've read, but its only been a couple days, but I woke up this morning with the clearest head I've had in months and my body feels better - could this just be wishful thinking/placebo effect?

Coffee Mate is gluten free. Tylenol is, but I don't know what "Meijer Brand" is. I live in Canada, but I think Wild Oats has a gluten-free list on their website.

ravenwoodglass Mentor
ravenwoodglass
Posted

If the Nestle CoffeMate is gluten free it should say so somewhere on the package. I use the liquid creamers they make and those say gluten free on the label. If that one doesn't I would call to double check just to be on the safe side.

Brand name tylenol is gluten-free, generics are risky and you need to call the company to be sure, have the bottle in your hand when you do as they will most likely want the UPC. Generic companies can change binders at will so better to be safe than sorry.

With the tortilla call the company, if this is a company that usually labels their gluten-free stuff and this does not carry that label then it is really important to check. I shop at Wegmans, they label all of their gluten-free stuff and if it does not have that label I know it is not safe, even if another package size does have the label. With them this means that the unlabeled size is packaged or produced by a company that can not assure the statis or has a high risk of CC. I see this mostly with nuts and pickles. I love Wegmans for this although I found it confusing at first.

wolfie Enthusiast
wolfie
Posted

I have called and verified Meijer's Acetominiphen (sp?) and I use that all the time. Meijer has a gluten-free list online here:

Open Original Shared Link

Hope that helps! :)

Lizking531 Rookie
Lizking531
Posted
  • Author

Thanks!!! Thank you for your help. I've been looking into the Wild Oats gluten-free more. It kinda sucks because my gluten-free works there and always brings home some sort of soup or cookie or something that they serve/make in house & that stuff is harder to track down gluten-free or not.

Creamy soups (like a cream of mushroom or clam chowder) will probably have some sort of flour or thickener in them, I'm assuming

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    • Jmartes71
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      By Jmartes71 · Posted

      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
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      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
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    • cristiana
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      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
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