Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Got Enterolab Results!

tmk

Recommended Posts

tmk Explorer
tmk
Posted

Hi -- I finally got my results from Enterolab:

Fecal Antigliadin IgA 23 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 16 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Ok -- question -- I have a GI appointment next week and was going to ask that I get an endoscopy to test for Celiac (my blood came back negative, but the whole panel was not run) -- since the fecal fat score was normal from Enterolab -- does that mean than I have no intestinal damage and that it would not show up on an endoscopy if he did it? I do have anemia and I figured that had something to do w/ not absorbing nutrients, but they say I am absorbing ok.

Any ideas?

Thanks a bunch!!!! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confused Community Regular
confused
Posted

Which of the test did they run threw blood?

I would think there wont be any damage, but i am not 100 percent sure on this. I would just ask for the scope and see what they say, it wont hurt to ask, none the less im sure the dr will label you gluten intolerant.

Did you get your genes tested also?

paula

tmk Explorer
tmk
Posted
  • Author
Which of the test did they run threw blood?

I would think there wont be any damage, but i am not 100 percent sure on this. I would just ask for the scope and see what they say, it wont hurt to ask, none the less im sure the dr will label you gluten intolerant.

Did you get your genes tested also?

paula

i didn't get the gene test from Enterolab -- i probably should've, but I couldn't bear the extra $120!

My primary doc just ran Gliadin antibody -- IGA and IGG

burdee Enthusiast
burdee
Posted
Hi -- I finally got my results from Enterolab:

Fecal Antigliadin IgA 23 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 16 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Ok -- question -- I have a GI appointment next week and was going to ask that I get an endoscopy to test for Celiac (my blood came back negative, but the whole panel was not run) -- since the fecal fat score was normal from Enterolab -- does that mean than I have no intestinal damage and that it would not show up on an endoscopy if he did it? I do have anemia and I figured that had something to do w/ not absorbing nutrients, but they say I am absorbing ok.

Any ideas?

Thanks a bunch!!!! :)

What did your Enterolab test result interpretation say? Not having a high fecal fat score does NOT rule out celiac. Actually your positive antitissue transglutaminase score does suggest you have intestinal damage. My naturopath considers that score plus empirical evidence (abstaining eliminates symptoms) enough to indicate celiac disease.

I'm sorry you did not get the celiac gene test or take the Elab complete panel which includes the gene test and a milk test as well as what you took. The gene test would provide even more evidence that you have celiac disease without your having to endure an endoscopy. However I wonder how much you will pay for an endoscopy from your GI?? Would that be less than $120?

You could have anemia, because flattened intestinal villi (from gluten reactions) don't absorb iron. The fecal fat score only indicates you didn't have a huge amount of fat in your stool. That doesn't say anything about how well your body absorbs iron, calcium or other vitamins and minerals from what you eat.

BURDEE

tmk Explorer
tmk
Posted
  • Author

thanks for the reply -- in hindsight, I realize I should've coughed up the extra cash -- my insurance should cover the endoscopy procedure -- I went through Enterolab b/c I had been "diagnosed" w/ IBS for 18 years -- I've been reading so much on this board about Celiac and everybodys wonderful information I have gotten here that I really started to think my symptoms (which are many) sound so much like Celiac -- when I approached my new doctor w/ it, she said that I probably just do have IBS b/c I don't get severe abdominal pain (my pain is actually usually in my back) and thus said I probably don't have Celiac -- it really bummed me out b/c I was thinking, for once, I may actually have a REAL reason I feel so miserable all the time -- I made an appointment w/ a GI doctor by my primary's referral and of course had to wait a few months for the appointment. I started getting some anxiety about seeing the doctor and him not believing me -- I've had such horrible luck w/ doctors (not saying they are all bad, just my luck has been bad) -- that I decided to give Enterolab a try to see if I was on the right track. Anyways. . . I just went on and on . . . . sorry -- I just wanted to say thanks for the answers -- when I read the reply from enterolab, it sounded as though the malabsorption test tested for damage to the intestine, so that's where the confusion came. I'm glad to have found out that that may not be the case.

Thank You so much again and sorry for the ramble! :)

mftnchn Explorer
mftnchn
Posted

Yes, the fecal fat score is not specific at all for celiac as I understand.

I do think you should persist for more testing, because you didn't have the most specific of the blood tests. Also there are people with negative blood and positive biopsy. Then if all of that is negative, based on the enterolab do a dietary trial being very strict off gluten. The dietary response is enough to tell you yourself what you need to do, regardless of the doctors give you a label, IMHO.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748
    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.