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Celiacs Who Work In A Hospital/or The Healthcare Field


alamaz

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alamaz Collaborator

Ugh! I just recently started a new job at a hospital. I was dx'ed with celiac in late February of this year and am just now starting to feel REALLY good so it's taken some time to start to heal. Of course, TB testing is required for this job and I keep reacting positively or "inconclusive" to the tests except my chest x-ray is clear. The Quantiferon Golf test was inconclusive and the skin tests are all coming back positive. They are trying to tell me that they will have to treat me for latent TB which I don't believe is possible that I have latent TB because I have a history of having positive reactions to the TB skin tests all with clear chest x-rays and I've not been out of the country since 1995. In fact, when I lived overseas in the early 90's I was treated for a year for TB even though the chest x-ray was clear but I had reacted to the skin tests. At this rate I will be treated for TB indefinitely because I react positively to the skin tests.

I recall a post a few weeks ago about this same thing and several of you also react positively to the TB tests. What happens next? Is this just a matter of documenting the positive reaction? How does your hospital/workplace handle postive TB reactions?

As a side note, they just did the bubble test and I'm starting to get a severe headache. I'm not sure if it's celiac related or just stress but I never even thought to wonder if the bubble test has to be gluten free also......

Amy


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blueeyedmanda Community Regular

Hi Amy,

I work in a Hospital and I get a TB test every year, I always test negative.

Guest j_mommy

Amy....

I was that poster a few weeks ago!!! Are you getting it read by a nurse or DR????? My nurse thought it was positive but it was not.....raised area is what counts not redness...which was what was happening to me....I had a huge red area,slight bump and itched like crazy!!! So I went to a DR and he said it was negative but wrote me a prescription saying that due to some type of allergic reaction I am to have chest xrays from now on and that I have not had a positive reaction and do not need to be treated!!

I hope this helps!!!

PM me if you have more questions!

little d Enthusiast

Hi Amy

I work in a hospital and I just got my TB today and mine is just red around the site and I don't think that it had anything to do with it but right after I got really sleepy when I was fine before, but then again i did just work my 12 hr night shift. I will get mine read on thursday morning and I am usually negative but I feel like that this time I am having more of a reaction more redness this time and It itched some today.

donna

Worriedwife Apprentice

I work in the healthcare field, and have not had a TB skin test done for about 13 years. I am allergic to the serum they use to test for TB. I only have chest X-rays done now.

I agree with I_Mommy, make sure you have a doctor read the results, not just a nurse. If it just red and/or itchy, that is not necessarily a positive reaction. You have to have a noticable bump from the test for it to be a positive reaction.

Good luck!

uclangel422 Apprentice

Before I was diagnosed with Celiac, I took a TB test at work in the hospital and it was read as positive. I had to have an X-ray and it came back negative so i was allowed to remain at work. My doctor did end up putting me on INH for TB because he wanted to be on the safe side. I was miserable on that medication.

From now on, tell them that you are prone to false positives on the skin test and just ask for an X-ray of your lungs yearly. My hospital has that option instead of the skin test.

alamaz Collaborator

Thanks for the responses. The irritating thing is, I told them up front about my history of reacting positively so they did the chest x-ray and the blood test. the chest x-ray was clear, the blood test was "inconclusive". The last thing I want is to be treated for a disease I know I don't have and that's honestly my biggest fear at this point is they will try to tell me i need to go on meds. So far the bubble test is looking okay that i got yesterday afternoon (so i think, it looks like a mosquito bite). i will definitely request that the DR. look at it on Thursday instead of just the nurse who is actually really nice and just doing her job.


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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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