Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heart Palpitations And Insomnia


Janniec6

Recommended Posts

Janniec6 Rookie

We have been gluten free for almost two weeks. I've seen an improvement in my son~his behavior has really improved. He was so edgy and mean all the time. We were having big trouble with anxiety, insomnia and heart pounding. The heart pounding we chalked up to anxiety, possibly caffiene, when he had some unauthorized cola. That had seemed to subside. Yesterday it was like we took a step back in time~mean and agitated most of the day, acting out. Last night he was up until 1:30am with heart pounding and unable to fall asleep.

Has anyone experienced these types of symptoms? Is it just a wrinkle in the healing process. I called the pedicatrician this morning and we're on the way to the ER for an EKG~just to be safe.

Help!! :(

Thanks~

Jan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



covsooze Enthusiast

Glad you're having it investigated, but yes, I have those exact symptoms, and it's always when I've eaten something I have problems with - not necessarily gluten, as I have other food allergies that cause them, but before I went gluten free, it was happening a lot more. It will probably take a few months to see the full benefits of the diet and it seems to be a fairly common experience for there to be set backs in the improvements, even where you're being strict about being gluten-free.

All the best

Susie x

jerseyangel Proficient

I have anxiety and experience palpitations. It is much worse when glutened--and these two symptoms take a much longer time to abate than the others.

About a month ago, I had a stress echocardiogram. It was completely negative--the cardiologist said my heart was just fine (what a relief!)

To give you an example of how long it takes for these to go away, I used a facial cream (liberally) for about 6 weeks in April/May. I called the company at my wit's end in trying to figure out what was making me sick. (the wheat-derived ingredient was not listed on the labeling). I stopped using it, and my GI symptoms got better.

Here it is, the beginning of August, and the palps are fading, but not gone completely. I'm also just beginning to feel significantly less anxious.

I hope all goes well for your son today :)

jacqui Apprentice

I hope everything worked out with your son. Is his EKG OK? Good luck and you are in my prayers.

You know, come to think of it I would have that too, but never connected it with celiac disease. I was diagnosed 12 years ago with IBS and that is when I had the worse palpitaions and I would forget to how to breath, which would happen out of nowhere. I thought they were panic attacks. Now that I have been gluten-free for ~1 1/2 yrs. I do not have them anymore, but again I did not connect any of this to celiac disease. I have so many symptoms I forget things that were my first symptoms.

Jacqui

We have been gluten free for almost two weeks. I've seen an improvement in my son~his behavior has really improved. He was so edgy and mean all the time. We were having big trouble with anxiety, insomnia and heart pounding. The heart pounding we chalked up to anxiety, possibly caffiene, when he had some unauthorized cola. That had seemed to subside. Yesterday it was like we took a step back in time~mean and agitated most of the day, acting out. Last night he was up until 1:30am with heart pounding and unable to fall asleep.

Has anyone experienced these types of symptoms? Is it just a wrinkle in the healing process. I called the pedicatrician this morning and we're on the way to the ER for an EKG~just to be safe.

Help!! :(

Thanks~

Jan

covsooze Enthusiast

Been thinking of you Jan - how's your son? Since my original reply, I remembered also that you can use taking your pulse as an indication of whether you are allergic/ intolerant to something. I hope the EKG went OK.

Susie x

Elaine40 Rookie
Glad you're having it investigated, but yes, I have those exact symptoms, and it's always when I've eaten something I have problems with - not necessarily gluten, as I have other food allergies that cause them, but before I went gluten free, it was happening a lot more. It will probably take a few months to see the full benefits of the diet and it seems to be a fairly common experience for there to be set backs in the improvements, even where you're being strict about being gluten-free.

All the best

Susie x

Poor guy. I totally agree with Susie here. It doesn't have to be gluten for me. I am off dairy and don't eat the yellows of the eggs, peppers are also a problem. Sugar and caffeine are big triggers, as well as some chemicals and dyes in food. I eat a very basic diet and that is how I feel best.

Nancym Enthusiast

Heart pounding and insomnia are two of the symptoms I had when I had Graves disease. It is caused by the thyroid pumping out too much thyroid hormone. You might want to look it up on the Internet and see if the other symptoms apply too. Fortunately I had a doctor who figured it out without me even knowing that my heart rate was galloping like mad (I just thought I was nervous).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

Whoops, double post

  • 1 year later...
ann72601 Apprentice
We have been gluten free for almost two weeks. I've seen an improvement in my son~his behavior has really improved. He was so edgy and mean all the time. We were having big trouble with anxiety, insomnia and heart pounding. The heart pounding we chalked up to anxiety, possibly caffiene, when he had some unauthorized cola. That had seemed to subside. Yesterday it was like we took a step back in time~mean and agitated most of the day, acting out. Last night he was up until 1:30am with heart pounding and unable to fall asleep.

Has anyone experienced these types of symptoms? Is it just a wrinkle in the healing process. I called the pedicatrician this morning and we're on the way to the ER for an EKG~just to be safe.

Help!! :(

Thanks~

Jan

Mtndog Collaborator

Just wanted to add that I got glutened last week (Fudgsicles= malt powder- duh!!!!) and have had both insomnia and heart palpitations :(

How is your son doing?

dream77 Apprentice
We have been gluten free for almost two weeks. I've seen an improvement in my son~his behavior has really improved. He was so edgy and mean all the time. We were having big trouble with anxiety, insomnia and heart pounding. The heart pounding we chalked up to anxiety, possibly caffiene, when he had some unauthorized cola. That had seemed to subside. Yesterday it was like we took a step back in time~mean and agitated most of the day, acting out. Last night he was up until 1:30am with heart pounding and unable to fall asleep.

Has anyone experienced these types of symptoms? Is it just a wrinkle in the healing process. I called the pedicatrician this morning and we're on the way to the ER for an EKG~just to be safe.

Help!! :(

Thanks~

Jan

Jan,

I was curious to know if the thyroid has been checked out..

insomnia and heart pounding are also very thyroid issue type symptoms

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,633
    • Most Online (within 30 mins)
      7,748

    skunk
    Newest Member
    skunk
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Wishing you lots of luck--let us know how it turns out!
    • ohmichael
      Thank you both for your input! trents: yes I completely agree, it's simple anatomy. The walk-in doctor I saw even said to me, "you cannot get exposure or get sick if it only got in your respiratory system" to which I replied, "If I inhaled it, it's in the mucous I swallow that leads to my gut." I was honestly baffled I had to explain that to her. Thanks for your comments! Scott Adams: Thanks for your advice, yes I agree I think that's ultimately what I have to do especially while times are getting tougher in this current economy! Hopefully I find something new and equitable or better, in a quick manner! Please send prayers and best wishes for me to find a new job quickly, I wore the N95 masks today and it seems like I'm gonna be okay but I literally have to hazmat wash my clothes and myself when I get home. I think my current exposure will have time to recover while I'm wearing the masks at work. Thank you all again!
    • Scott Adams
      Parent-to-parent, I hear your exhaustion and worry loud and clear – what you’re describing goes far beyond typical toddler troubles. Your daughter’s screaming night pain, terrible bloating, stalled growth, and constant infections are textbook red flags for celiac disease or another serious gluten-related condition. While her blood test came back negative, there are critical reasons not to rule it out yet. First, celiac tests are notoriously unreliable in kids under 3 – their tiny immune systems often don’t produce enough antibodies to register on standard blood work, especially if she wasn’t eating consistent gluten beforehand (which you mentioned was a struggle). Her iron deficiency alone is a glaring clue, as it’s one of the most common signs of undiagnosed celiac in little ones. The fact that she’s already dairy/soy-free yet still suffering suggests something bigger is at play. It could still be celiac (a pediatric GI should consider an endoscopy with biopsies, the gold standard for diagnosis), or possibly non-celiac gluten sensitivity (NCGS) – which doesn’t show up on tests but can cause identical agony. Her recurring mouth ulcers and infections also hint at the immune dysfunction seen in celiac. Until you see the specialist, I’d quietly start a gluten-free trial (after documenting her current symptoms carefully with photos/videos of the bloating and pain episodes). If you see improvement in 3-4 weeks, that’s powerful evidence to bring to the doctors. You’re not being dramatic – you’re being the exact advocate your daughter needs. If the pediatrician brushes you off, look them in the eye and say: “What else could explain ALL these symptoms together? If it’s not celiac, what’s our next step to stop her suffering?” Keep pushing – moms’ instincts are rarely wrong about this stuff. For now, focus on small wins: snap daily pics of her belly to show the distension, ask for a fecal calprotectin test (checks gut inflammation), and know this internet stranger is rooting for you both. She’s lucky to have you fighting for her.
    • nanny marley
      So I have been going threw celiac testing for some time unfortunately I had been 1 year gluten free Wen I had the blood test do came back negative I had other blood tests done my calprotein came in very high and my crp was elevated have been sent to gastroenterology she has put me in for a colonoscopy wat I can't understand it says take 2 tablets  6 days before of  senna for 5 day before my plenvu prep which I start tomorrow yet it says if ibd colitis crone's or others are present don't take the senna but I don't know if I have these yet my brother tho has the same symptoms has just be diagnosed with colitis and didn't take the senna can anyone shed light on this for me  has I  start the prep tomorrow I already have very loose bowels seems a lot to go threw for 6 days ? I'm new to all this do I'm just a little confused here ant help round be appriciated 🙏 also I'm so anxious wat to expect with the colonoscopy has anyone got any advise thanks in advance 🤗
    • trents
      Can you post what blood tests were done specifically for celiac disease, the results and reference ranges if available? If her gluten intake was reduced prior to the blood draw it certainly could result in false negatives on some tests. There is also the possibility that she has NCGS (Non Celiac Gluten Sensitivity). 
×
×
  • Create New...