Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm So Glad I Got Scoped Again

melrobsings

Recommended Posts

melrobsings Contributor
melrobsings
Posted
  • Author
Stop Intestinal Bleeding Diet

Eliminate:

Alcohol, caffeine, decaffeinated coffee, carbonated drinks.

Cheese, cream sauces, milk products.

Sour, vinegary, acidic foods and condiments.

Tomatoes, tomato-based foods.

Citrus fruits or juices, pineapple, grapes, cherries, raspberries.

Cabbage family vegetables, beans, lentils, raw vegetables, coconut, roughage/high fiber foods, leafy green vegetables, hot/spicy foods, deep-fried foods, red meat, nuts and seeds.

Margarine or butter substitutes, artificial sweetners, carrageenan.

Yeast, sugar if necessary.

Garlic, ginger, cumin, chilies, pepper, paprika, tumeric.

Processed foods; preservatives, MSG, nitrates, etc.

OMG THAT'S MY ENTIRE DIET!!!!!!!! ARUGH!!!!! I'm just going to keep my food journal and take it to Dr. Green...any one know if he takes Cigna?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darkangel Rookie
darkangel
Posted
OMG THAT'S MY ENTIRE DIET!!!!!!!! ARUGH!!!!! I'm just going to keep my food journal and take it to Dr. Green...any one know if he takes Cigna?

You don't have to eliminate these items permanently. The idea is to eliminate them and use a very careful diet until you stop bleeding. Then she has other levels that are less restrictive for lesser symptoms like bloating and gas.

melrobsings Contributor
melrobsings
Posted
  • Author

I got an appt with Dr. Lewis, she worked with Dr. Green...THE DR. GREEN!!! It's not till the end of Sept but still!!! :) HOPEFULLY I can get answers!!!

ravenwoodglass Mentor
ravenwoodglass
Posted
I got an appt with Dr. Lewis, she worked with Dr. Green...THE DR. GREEN!!! It's not till the end of Sept but still!!! :) HOPEFULLY I can get answers!!!

That is such good news. If you can get there on a moments notice ask if you can be on their cancellation list, sometimes you can get in quicker. I have wondered how you were doing, I hope they can help you get some answers.

Looking for answers Contributor
Looking for answers
Posted

I have an appointment to see a specialist next week to help me out with my diet. I felt terrific for a long time but recently started get C again. Anyways, maybe you should consider a rotation diet (without gluten, of course) and see if you feel better. Check out what I've read on his site. Open Original Shared Link

Mind you I haven't seen him yet and do know if he'll recommend it to me, but it makes sense. I also read about the rotation diet in the book Dangerous Grains.

I hope you feel better soon!

sickchick Community Regular
sickchick
Posted

Good luck with your Dr appt and your healing journey Mel...

sickchick

Judyin Philly Enthusiast
Judyin Philly
Posted

GOOD LUCK HONEY

I'M FOLLOWING YOU BUT NOT POSTING.

THINK YOU AND I WERE DOING THE SCOPES AT THE SAME TIME.

JUDY

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


evie Rookie
evie
Posted
I can eat rice but I don't eat it very often. i'm not a health freak by choice really lol just cause it's easy (and might i briefly step on my soap box: you damn americans who eat fast food cause it's "easy and you don't have time" GROW UP and stop complaining your fat! it takes the same time to make a salad that it does to get in your car and drive to mcdonalds! it's all about taking responsibility...thank you for listening).

I have to confess I'm a MAJOR candy girl! (might I back that up with I'm a dancer and am very active, I eat them cause I can! Clearly I'm one of those "if the pants fit great, if they get tight, cut out something!" I'm 5 foot 2 and 110 pounds) I have cut down cause I just haven't felt like eating it since I'm bloating LOTS....but I have a huge mikasa bowl on my coffee table and the rule is "it always has to be full". All my friends are GREAT and funny cause they say "Mel can only eat candy, so instead of going out to dinner we go to her coffee table and can eat together!" and they bring candy every time they come over! Right now it's full of tootsie rolls, normally it's full of snickers and full size hershey bars.

I love coffee cause of the taste.

Do you mind posting a snickers like recipe?! i LOVE to bake! The whole foods bread is the only one that doesn't feel like brick to me! I CAN'T GET ENOUGH! not to mention they are great in the toaster oven! I'm cutting down on the coke cause I don't want to gain weight and it is easy to replace that with tea.

I'm with you on the grains, I don't think we are supposed to have them...

Guys I'm SO EXCITED to call Dr. Green!!! I'm hoping I can get in fast (and he takes my insurance...minor detail! lol) and praying that I don't have to cut out dairy. I FEAR that is the issue...well part of the issue...I'm starting a food/poo journal today and hopefully it will tell me something.

Again I can't thank you all enough for everything!!!

evie Rookie
evie
Posted
I can eat rice but I don't eat it very often. i'm not a health freak by choice really lol just cause it's easy (and might i briefly step on my soap box: you damn americans who eat fast food cause it's "easy and you don't have time" GROW UP and stop complaining your fat! it takes the same time to make a salad that it does to get in your car and drive to mcdonalds! it's all about taking responsibility...thank you for listening).

I have to confess I'm a MAJOR candy girl! (might I back that up with I'm a dancer and am very active, I eat them cause I can! Clearly I'm one of those "if the pants fit great, if they get tight, cut out something!" I'm 5 foot 2 and 110 pounds) I have cut down cause I just haven't felt like eating it since I'm bloating LOTS....but I have a huge mikasa bowl on my coffee table and the rule is "it always has to be full". All my friends are GREAT and funny cause they say "Mel can only eat candy, so instead of going out to dinner we go to her coffee table and can eat together!" and they bring candy every time they come over! Right now it's full of tootsie rolls, normally it's full of snickers and full size hershey bars.

I love coffee cause of the taste.

Do you mind posting a snickers like recipe?! i LOVE to bake! The whole foods bread is the only one that doesn't feel like brick to me! I CAN'T GET ENOUGH! not to mention they are great in the toaster oven! I'm cutting down on the coke cause I don't want to gain weight and it is easy to replace that with tea.

I'm with you on the grains, I don't think we are supposed to have them...

Guys I'm SO EXCITED to call Dr. Green!!! I'm hoping I can get in fast (and he takes my insurance...minor detail! lol) and praying that I don't have to cut out dairy. I FEAR that is the issue...well part of the issue...I'm starting a food/poo journal today and hopefully it will tell me something.

Again I can't thank you all enough for everything!!!

I am wondering if you might have ulcerative colitis causing the bleeding...several months ago I had a colon infection that caused me to have the colitis..at that time the bleeding was severe but now only have it ocasionally..but have not been able to pinpoint the cause. I am celiac for one and one half years and have that pretty well under control but just do not

know what causes the occasional light bleeding. Hope you find good answers soon..evie

I have read so much about this Dr. Green and what a good diagnostician he is..so good luck to you!!

Steveofmt Newbie
Steveofmt
Posted

If you are in the NYC area, you should get an appointment with Dr. Peter Green at Columbia Medical Center. I'm told he is one of the country's foremost experts on Celiac disease.

So as most of yall know I just had another scope because (mind you this has been going on and off since CHRISTMAS and I have been to 2 doctors and looking for my 3rd doctor) I have had bleeding and I am pooing poos 1/2 my weight about 5 times a day. To me, that means SOMETHING IS WRONG. Well this last a-hole scoped me a week ago scoped me because he thought it was a hemeriod and cotterized it. Fine. dandy.

Then after I woke up he brought me into his office and told me in short that I was a hypochondriac and there is no way i have any kind of gluten allergy.

This pissed me off to no end....but here is the kicker.

I'M STILL BLEEDING!!!! WTF?!??!? anyone got ideas? I'm terrified it's Chrones.

So I'm once again looking for a NEW doctor that LISTENS, is smart, and educated in celiac disease...oh and one that my insurance takes. People PLEASE list any and all doctors that you know of in NYC or Astoria area that take insurance. I know some of yall have told me about them but they are to far from me and don't take my insurance. Thanks so so so much.

babygirl1234 Rookie
babygirl1234
Posted

i need another scoop done dont ask me why she did say she wants to get the plopy gone and to make sure it didnt grow since the last one, but other then that i dont know why shes going in for a 2nd time, its the upper scoop this time

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,060
    • Most Online (within 30 mins)
      7,748
    libby1234
    Newest Member
    libby1234
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By knitty kitty · Posted

      I agree, low carb/no carb is the best way to go.   I follow the Autoimmune Protocol Diet, a ketogenic Paleo diet, for my diabetes and celiac disease.  I keep carbs low.  The AIP diet helps immensely to keep my blood glucose levels in range.  I supplement with Benfotiamine, a form of thiamine, because the pancreas uses lots of thiamine to make insulin and digestive enzymes.  Thiamine deficiency can precipitate diabetes.   Thiamine is needed to turn carbohydrates into energy.  In an effort to ration thiamine if there's insufficient thiamine, the body turns excess carbohydrates into fat and stores it, hense the rise in obesity.  (Our bodies are naturally more efficient at burning fat for fuel.)  Highly processed foods do not contain sufficient vitamins and minerals needed for the body to process them into energy and enzymes necessary for the body to function and grow properly.  This is called High Calorie Malnutrition by Dr. Chandler Marrs and Dr. Derrek Lonsdale (Hiding In Plain Site:Modern Thiamine Deficiency).  Dr. Lonsdale has studied thiamine in children and adults with diabetes and other diseases for decades.  Their website "hormones matter" is very informative.
    • pasqualeb
      Muscle atrophy in legs

      By pasqualeb · Posted

      Might want to see a rheumatologist also, as if this is an autoimmune disease they might be better equipped to to handle and treat. I was finally diagnosed after a biopsy on one of my quads. Condition known as IBM or inclusion body myositis . Good luck  Good luck 
    • trents
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By trents · Posted

      Wends is correct in that for generations the food pyramid chart we were given with carbs at the base is incorrect. The average person gets far too many of their calories from carbs and coincidentally, more calories than they need for good health since carbohydrate rich foods are also calory rich foods. The body can learn to convert protein and fat into energy more efficiently when carbs are withheld. This is the basis of the ketogenic diet and why it works so well. I am not sure I would go full keto for a developing child however. Carbs are not evil. The problem isn't carbs per se but too many carbs.
    • Soleihey
      Muscle atrophy in legs

      By Soleihey · Posted

      How are you now?
    • Wends
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By Wends · Posted

       In terms of a low carb diet the thing to remember is that it is not a “no carb” diet. Far from it. There are a lot of misconceptions. Real food is the key. Avoiding refined sugars and starches. In the textbook that doctors use it states that “Carbohydrates” are not essential to life, unlike proteins and fats. Glucose on the other hand is essential, yes, and the liver makes and tightly regulates all it needs in the presence of adequate calories from proteins and fats. It’s biochemistry 101.  My personal view is that the NHS advice is out of date. And no wonder the life expectancy and quality of life of people with diabetes down the road is reduced - not to mention the cost to the NHS when complications arise decades after diagnosis because too much insulin to keep numbers in range is like a bandage to cover up while under the surface the damage is still going on. Retinopathy. Peripheral neuropathy. Sorry, don’t want to doom and gloom. But it’s true. The fuel you choose today dictates tomorrow. The information is out there in the scientific papers. It’s a can of worms but there is decades of scientific literature to back up a natural low carb diet. Professor Tim Noakes of Cape Town university went through a three year trial (and won) after a dietitian accused him because he recommended weaning a child on to meat after breastfeeding. They said they needed carbohydrates. He’s a professor of sports and exercise and medical doctor with diabetes. There’s a whole host of Professors and medical doctors and dietitians and medical professionals around the world advocating for real food and essentially a low carb diet. Humans evolved over millennia on real food. None of the modern high carb ultra processed or modern breads of the last century or so. Check out the Public Health Collaboration UK based charity. There’s conference videos online and free info. I think type 1 diabetes was covered a few years ago. Dr David Cavan UK specialist. Professor Knoakes also came out with a great cookery book called Superfood for Superchildren…from toddlers to teens. It is part of the Real Meal Revolution series of healthy eating. It sounds like youre on this already with breastfeeding and eating healthy so good on you! So sorry about the cards your little one has been dealt but with the right education and diet it is totally manageable and there’s no reason not to have stable blood sugars and have a long and happy life without diabetes complications. Same as children diagnosed with coeliac disease, a healthy naturally gluten free diet is the antidote to the gluten poisoning. Sugar and refined starches are toxic to diabetics. With modern technology of blood glucose monitors it’s easy to figure out suitable foods by how different foods effect the blood glucose level. Sorry, the reference of igA deficiency possibility was to Trent’s reply regarding Total igA and “artificially low” positive test. Not the case as the NHS screen total igA. In terms of poo signs. The Guts UK charity has loads of great info.  
×
×
  • Create New...