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I'm So Glad I Got Scoped Again

melrobsings

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melrobsings Contributor
melrobsings
Posted
  • Author
Stop Intestinal Bleeding Diet

Eliminate:

Alcohol, caffeine, decaffeinated coffee, carbonated drinks.

Cheese, cream sauces, milk products.

Sour, vinegary, acidic foods and condiments.

Tomatoes, tomato-based foods.

Citrus fruits or juices, pineapple, grapes, cherries, raspberries.

Cabbage family vegetables, beans, lentils, raw vegetables, coconut, roughage/high fiber foods, leafy green vegetables, hot/spicy foods, deep-fried foods, red meat, nuts and seeds.

Margarine or butter substitutes, artificial sweetners, carrageenan.

Yeast, sugar if necessary.

Garlic, ginger, cumin, chilies, pepper, paprika, tumeric.

Processed foods; preservatives, MSG, nitrates, etc.

OMG THAT'S MY ENTIRE DIET!!!!!!!! ARUGH!!!!! I'm just going to keep my food journal and take it to Dr. Green...any one know if he takes Cigna?

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darkangel Rookie
darkangel
Posted
OMG THAT'S MY ENTIRE DIET!!!!!!!! ARUGH!!!!! I'm just going to keep my food journal and take it to Dr. Green...any one know if he takes Cigna?

You don't have to eliminate these items permanently. The idea is to eliminate them and use a very careful diet until you stop bleeding. Then she has other levels that are less restrictive for lesser symptoms like bloating and gas.

melrobsings Contributor
melrobsings
Posted
  • Author

I got an appt with Dr. Lewis, she worked with Dr. Green...THE DR. GREEN!!! It's not till the end of Sept but still!!! :) HOPEFULLY I can get answers!!!

ravenwoodglass Mentor
ravenwoodglass
Posted
I got an appt with Dr. Lewis, she worked with Dr. Green...THE DR. GREEN!!! It's not till the end of Sept but still!!! :) HOPEFULLY I can get answers!!!

That is such good news. If you can get there on a moments notice ask if you can be on their cancellation list, sometimes you can get in quicker. I have wondered how you were doing, I hope they can help you get some answers.

Looking for answers Contributor
Looking for answers
Posted

I have an appointment to see a specialist next week to help me out with my diet. I felt terrific for a long time but recently started get C again. Anyways, maybe you should consider a rotation diet (without gluten, of course) and see if you feel better. Check out what I've read on his site. Open Original Shared Link

Mind you I haven't seen him yet and do know if he'll recommend it to me, but it makes sense. I also read about the rotation diet in the book Dangerous Grains.

I hope you feel better soon!

sickchick Community Regular
sickchick
Posted

Good luck with your Dr appt and your healing journey Mel...

sickchick

Judyin Philly Enthusiast
Judyin Philly
Posted

GOOD LUCK HONEY

I'M FOLLOWING YOU BUT NOT POSTING.

THINK YOU AND I WERE DOING THE SCOPES AT THE SAME TIME.

JUDY

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evie Rookie
evie
Posted
I can eat rice but I don't eat it very often. i'm not a health freak by choice really lol just cause it's easy (and might i briefly step on my soap box: you damn americans who eat fast food cause it's "easy and you don't have time" GROW UP and stop complaining your fat! it takes the same time to make a salad that it does to get in your car and drive to mcdonalds! it's all about taking responsibility...thank you for listening).

I have to confess I'm a MAJOR candy girl! (might I back that up with I'm a dancer and am very active, I eat them cause I can! Clearly I'm one of those "if the pants fit great, if they get tight, cut out something!" I'm 5 foot 2 and 110 pounds) I have cut down cause I just haven't felt like eating it since I'm bloating LOTS....but I have a huge mikasa bowl on my coffee table and the rule is "it always has to be full". All my friends are GREAT and funny cause they say "Mel can only eat candy, so instead of going out to dinner we go to her coffee table and can eat together!" and they bring candy every time they come over! Right now it's full of tootsie rolls, normally it's full of snickers and full size hershey bars.

I love coffee cause of the taste.

Do you mind posting a snickers like recipe?! i LOVE to bake! The whole foods bread is the only one that doesn't feel like brick to me! I CAN'T GET ENOUGH! not to mention they are great in the toaster oven! I'm cutting down on the coke cause I don't want to gain weight and it is easy to replace that with tea.

I'm with you on the grains, I don't think we are supposed to have them...

Guys I'm SO EXCITED to call Dr. Green!!! I'm hoping I can get in fast (and he takes my insurance...minor detail! lol) and praying that I don't have to cut out dairy. I FEAR that is the issue...well part of the issue...I'm starting a food/poo journal today and hopefully it will tell me something.

Again I can't thank you all enough for everything!!!

evie Rookie
evie
Posted
I can eat rice but I don't eat it very often. i'm not a health freak by choice really lol just cause it's easy (and might i briefly step on my soap box: you damn americans who eat fast food cause it's "easy and you don't have time" GROW UP and stop complaining your fat! it takes the same time to make a salad that it does to get in your car and drive to mcdonalds! it's all about taking responsibility...thank you for listening).

I have to confess I'm a MAJOR candy girl! (might I back that up with I'm a dancer and am very active, I eat them cause I can! Clearly I'm one of those "if the pants fit great, if they get tight, cut out something!" I'm 5 foot 2 and 110 pounds) I have cut down cause I just haven't felt like eating it since I'm bloating LOTS....but I have a huge mikasa bowl on my coffee table and the rule is "it always has to be full". All my friends are GREAT and funny cause they say "Mel can only eat candy, so instead of going out to dinner we go to her coffee table and can eat together!" and they bring candy every time they come over! Right now it's full of tootsie rolls, normally it's full of snickers and full size hershey bars.

I love coffee cause of the taste.

Do you mind posting a snickers like recipe?! i LOVE to bake! The whole foods bread is the only one that doesn't feel like brick to me! I CAN'T GET ENOUGH! not to mention they are great in the toaster oven! I'm cutting down on the coke cause I don't want to gain weight and it is easy to replace that with tea.

I'm with you on the grains, I don't think we are supposed to have them...

Guys I'm SO EXCITED to call Dr. Green!!! I'm hoping I can get in fast (and he takes my insurance...minor detail! lol) and praying that I don't have to cut out dairy. I FEAR that is the issue...well part of the issue...I'm starting a food/poo journal today and hopefully it will tell me something.

Again I can't thank you all enough for everything!!!

I am wondering if you might have ulcerative colitis causing the bleeding...several months ago I had a colon infection that caused me to have the colitis..at that time the bleeding was severe but now only have it ocasionally..but have not been able to pinpoint the cause. I am celiac for one and one half years and have that pretty well under control but just do not

know what causes the occasional light bleeding. Hope you find good answers soon..evie

I have read so much about this Dr. Green and what a good diagnostician he is..so good luck to you!!

Steveofmt Newbie
Steveofmt
Posted

If you are in the NYC area, you should get an appointment with Dr. Peter Green at Columbia Medical Center. I'm told he is one of the country's foremost experts on Celiac disease.

So as most of yall know I just had another scope because (mind you this has been going on and off since CHRISTMAS and I have been to 2 doctors and looking for my 3rd doctor) I have had bleeding and I am pooing poos 1/2 my weight about 5 times a day. To me, that means SOMETHING IS WRONG. Well this last a-hole scoped me a week ago scoped me because he thought it was a hemeriod and cotterized it. Fine. dandy.

Then after I woke up he brought me into his office and told me in short that I was a hypochondriac and there is no way i have any kind of gluten allergy.

This pissed me off to no end....but here is the kicker.

I'M STILL BLEEDING!!!! WTF?!??!? anyone got ideas? I'm terrified it's Chrones.

So I'm once again looking for a NEW doctor that LISTENS, is smart, and educated in celiac disease...oh and one that my insurance takes. People PLEASE list any and all doctors that you know of in NYC or Astoria area that take insurance. I know some of yall have told me about them but they are to far from me and don't take my insurance. Thanks so so so much.

babygirl1234 Rookie
babygirl1234
Posted

i need another scoop done dont ask me why she did say she wants to get the plopy gone and to make sure it didnt grow since the last one, but other then that i dont know why shes going in for a 2nd time, its the upper scoop this time

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