Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Can't Believe This!


Joni63

Recommended Posts

Joni63 Collaborator

Hey everyone,

I am so thrilled at how I've felt today. My head felt clear and I've had energy all day. Only felt a little funny after eating a mini Almond Joy. I am so hoping that this will last. Only been gluten free since Wednesday, but did so right after my colonoscopy/endoscopy. Also started taking a multivitamin and calcium/magnesium supplement and juicing with fresh veggies and fruit every day.

Is this normal? Anyone else have this reaction after going gluten-free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

Good For you!!!!! It's great to feel good!

I was similar when I went gluten-free(May). The only times I feel yucky are when I get CC'd. But for teh most part feel TONS better than before!

Guest maybe I have celiac
Hey everyone,

I am so thrilled at how I've felt today. My head felt clear and I've had energy all day. Only felt a little funny after eating a mini Almond Joy. I am so hoping that this will last. Only been gluten free since Wednesday, but did so right after my colonoscopy/endoscopy. Also started taking a multivitamin and calcium/magnesium supplement and juicing with fresh veggies and fruit every day.

Is this normal? Anyone else have this reaction after going gluten-free?

Yes, I have also eliminated casein (dairy) and, oh yeah, alcohol. I notice that it takes a couple of days to get the casein and gluten out of my system, alcohol takes a week and a half. I have been juicing to: 1/2 a dozen ice cubes, banana, assorted fruits and whammo ready to go!

blueeyedmanda Community Regular

Isn't it a great feeling!!! I love when others reach that point it is such a turning point!!! Good For You!!!

polomarco Newbie
Hey everyone,

I am so thrilled at how I've felt today. My head felt clear and I've had energy all day. Only felt a little funny after eating a mini Almond Joy. I am so hoping that this will last. Only been gluten free since Wednesday, but did so right after my colonoscopy/endoscopy. Also started taking a multivitamin and calcium/magnesium supplement and juicing with fresh veggies and fruit every day.

Is this normal? Anyone else have this reaction after going gluten-free?

I had a similar experience with feeling much better after going gluten-free. I have been so for about 3 weeks and have some continuing symptoms of bloating/indigestion/reaction to fats - something that makes the gut feel very full and painful. Big appetite and pleasuer from eating again vs. always feling bad about eating...I am waiting for my blood tests to see about anti-body confirmation. I understand that the degree of damage to the gut can affect the recovery rate and that some people experience continuing symptoms....? I have insomnia issues and do not feel 100%, although the difference in how I feel is very rncouraging. How does one find out what one needs in terms of diet practices, vitamins, etc. that may aid the recovery? I have fatty liver and need to lose weight. The improvement in mood, irritability, and inflammatory symptoms in joints is very encouraging. I hope that it is not just a "placebo effect" and that it is all in my mind.

Polomarco

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,801
    • Most Online (within 30 mins)
      7,748

    b r i t t a n y. g r i f f
    Newest Member
    b r i t t a n y. g r i f f
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.