Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diarreha After Going gluten-free

betterbelly

Recommended Posts

betterbelly Rookie
betterbelly
Posted

Hi

I went gluten-free after trying (since hs) to figure out why I have such bad gas/ bloating. It seemed to work: then I got Diarrhea (used to NEVER GET). I cut out Dairy too, but I still get it. WTH is wrong w/ me? Had blood test-neg for Celiac. Should I get screened for food allergies? If so, does anyone have any specialists in NYC????

Other things to consider:

Allergic to milk as a baby

get mouth blisters after (Before gluten-free) drinking beer

no bloating now that i'm gluten free

eating cheese doesn't bother me

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


juliela Rookie
juliela
Posted

Can you see someone at the Celiac Disease center at Columbia? Maybe there is still "hidden gluten" in your diet? in medications, etc?

betterbelly Rookie
betterbelly
Posted
  • Author
Can you see someone at the Celiac Disease center at Columbia? Maybe there is still "hidden gluten" in your diet? in medications, etc?

I am at NYU-and can't go out of network-are there any at NYU?

I just feel that perhaps Ishould have cut out other things before gluten-been gluten free since nov 06

juliela Rookie
juliela
Posted
I am at NYU-and can't go out of network-are there any at NYU?

I know that there are around 40 GI doctor at NYU- not sure how many teach and how many see patients, but I have heard of Dr. Roshini Rajapaksa, a gastroenterologist at New York University Medical Center and assistant professor of medicine, New York University School of Medicine

he has been mentioned in some articles about celiac.

Julie

  • 3 weeks later...
ncz-nate Newbie
ncz-nate
Posted

I had these same reactions myself. Were yours relatlively immediate? mine happened within 24 hours

hathor Contributor
hathor
Posted

You might keep a food diary and see if certain foods set off your problem.

It seems that soy is a common third intolerance in those who have problems with gluten and casein.

gfpaperdoll Rookie
gfpaperdoll
Posted

are you completely dairy free? or eating cheese?

Are you eating any gluten-free grains in breads & stuff. IF so, I would cut out all processed foods right away, including those gluten-free mixes & purchased things... Plus no soy,...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sickchick Community Regular
sickchick
Posted

I went gluten free for a month and my diahrrea got worse

Mickide Apprentice
Mickide
Posted

I have been struggling with the same issue, never had it this bad before going gluten free. Did you change anything else at the same time. I know for me I recently started taking liquid Calcium, D3, & Mag. I think this might be my issue, trying to figure it out. Hope you figure it out soon!

jerseyangel Proficient
jerseyangel
Posted
I have been struggling with the same issue, never had it this bad before going gluten free. Did you change anything else at the same time. I know for me I recently started taking liquid Calcium, D3, & Mag. I think this might be my issue, trying to figure it out. Hope you figure it out soon!

Assuming that your suppliment is gluten-free, it could be the magnesium that is causing the D.

I've recently been trying calcium carbonate (Caltrate with vit.D) with meals. I read about this on an IBS forum--although I've been gluten-free for 2 years, and have cut out many foods due to intolerance, I still get D or loose stools at times.

I've been testing this on myself, and after only 3 days, I notice a difference. The idea is that only a portion of the calcium carbonate goes to the bones--the rest gets excreted, binding with fluids in the GI tract. This firms up stools, preventing D.

This is all anecdotal, but I've read of people who have gotten relief for years doing the calcium. Of course, as soon as it's discontinued, the D can come back.

My thought is that we need the calcium anyway, so why not give it a shot? I simply switched from Citrical (cal. citrate) to Caltrate (cal. carbonate). I made sure I didn't choose any of the formulations with magnesium, as that can defeat the purpose.

Possible side effects can be heartburn or excess gas in the first few days, until your body gets used to the calcium. I had a bit of those (not bad at all) and it's about gone after the 3 days. Some people start with 1/2 a tablet and work up--I choose to start with 2 a day, with breakfast and lunch. I'll adjust as needed.

Having said this, it's still very important to be completely gluten-free, and avoid any foods that you're sensitive to. ;)

sickchick Community Regular
sickchick
Posted

Great info, Patti B)As always...

Judyin Philly Enthusiast
Judyin Philly
Posted

DITTO..

I'LL HAVE TO CK THE magnesium AND SEE IF IT'S IN THE ONE I'M USING.

DO YOU HAVE THE BRAND NAME OF THIS PRODUCT.

THANKS SO MUCH PATTI.

LOVE THE TESTIMONY FROM OUR PEEPS HERE.

jerseyangel Proficient
jerseyangel
Posted
DITTO..

I'LL HAVE TO CK THE magnesium AND SEE IF IT'S IN THE ONE I'M USING.

DO YOU HAVE THE BRAND NAME OF THIS PRODUCT.

THANKS SO MUCH PATTI.

LOVE THE TESTIMONY FROM OUR PEEPS HERE.

Judy--

It's Caltrate. I'm using the 600 w/ vit. D (pink and white bottle)--bought it at CVS.

I called them and all of their formulations are certified gluten-free. :)

Judyin Philly Enthusiast
Judyin Philly
Posted

Patti--

Sorry.

I didn't read well....you had printed it in the info you sent

I hadn't read it yet.

thanks for being there ALWAYS for us.

judy

mftnchn Explorer
mftnchn
Posted

I wonder if there would be a down side of only taking calcium and not magnesium as the two work together in the body.

jerseyangel Proficient
jerseyangel
Posted
I wonder if there would be a down side of only taking calcium and not magnesium as the two work together in the body.

I wondered about that, too. I try to eat lots of magnesium-rich foods-- and at the same time, I'm dairy free, so much of my calcium needs are met through the suppliment. Basically, all I did was switch calcium brands (citrate to carbonate)--magnesium has always had a laxitive effect for me, so I avoid it--even in the suppliment I used to take.

The ideal ratio of 2:1 is recommended--I've never been able to handle that.

I eat lots of brown rice, broccoli, spinich, celery, almonds and almond butter, sunflower seeds and use molassas. For those that can handle legumes (I can't) they are also a good source of magnesium.

This probably isn't for everyone, but I prefer it to random D and Immodium. After 2 years of being gluten, dairy, soy, legume, corn, coconut and tapioca free and still often having that uneasy feeling in my intestines, I found a drug-free remedy that seems to be working for me, and I thought I'd pass the information along. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
    2. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    3. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    4. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
    5. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.