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How Do You Post To A Forum

BettyL.

By BettyL.
in Related Issues & Disorders

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BettyL. Rookie
BettyL.
Posted

I have search the forum for a way to post to a forum. So far, I can find only posting to a member. As a new member I have no friends to post. Actually, I am looking for support as I face another major surgery and would like to discuss with others who have had hiatal hernias or other hernias. Thanks for your help with this matter.

Betty L.

Idaho

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happygirl Collaborator
happygirl
Posted

Welcome to the forum Betty, and you successfully posted!

I'm moving this over to "related disorders" so that hopefully someone will chime in about your concern.

(To reply to a thread, you hit "add reply". To start a new thread, choose the topic you want, and then near the top/right hand, hit "new topic")

nikki-uk Enthusiast
nikki-uk
Posted

Hi Betty and welcome :)

My hubby has a small hiatal hernia and it would seem many coeliacs discover they have one during their endoscopy.

Luckily for him once he went gluten-free it didn't cause him any more problems.

I'm sure there are others out there who will answer soon :)

BettyL. Rookie
BettyL.
Posted
  • Author
Welcome to the forum Betty, and you successfully posted!

I'm moving this over to "related disorders" so that hopefully someone will chime in about your concern.

(To reply to a thread, you hit "add reply". To start a new thread, choose the topic you want, and then near the top/right hand, hit "new topic")

Thank you for your help; I have done a lot of schrolling through the forum looking for subjects that interest me. A number of my concerns have been answer. I no longer deel alone with my problem. I have updated my profile and add a photo.

BettyL. Rookie
BettyL.
Posted
  • Author
Hi Betty and welcome :)

My hubby has a small hiatal hernia and it would seem many coeliacs discover they have one during their endoscopy.

Luckily for him once he went gluten-free it didn't cause him any more problems.

I'm sure there are others out there who will answer soon :)

Thanks for the welcome, I hope your husband nevers has to go through what I have been through in the last 10 years with my digestive system. If some doctor suggest he uses Nexium say NO!. I blame it for the start of my major problems.

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      Dried Chickpeas

      By knitty kitty · Posted

      Hello, @Aretaeus Cappadocia, My favorite source of B12 is liver.  😺 I react to nutritional yeast the same way as if I were glutened.  Casein, a protein in dairy, and nutritional yeast have protein segments that match certain antigenic protein segments in gluten.  The proteins in rice, corn (maize), and chicken meat have them as well.   Some people with Celiac might tolerate them without a problem, but I need to avoid them.  For those still having symptoms, cutting these out of our diet may improve symptoms. 
    • trents
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      By trents · Posted

      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people) some foods (dairy, the protein "casein") that can cause elevated celiac blood antibody test scores. Usually, the other causes don't produce marginally high test scores and not super high ones. Having said that, by far, the most common reason for elevated tTG-IGA celiac antibody test scores (this is the most common test ordered by doctors when checking for celiac disease) is celiac disease itself. Please post back and list all celiac blood antibody tests that were done with their scores and with their reference ranges. Without the reference ranges for negative vs. positive we can't tell much because they vary from lab to lab. Third, and this is an terrible bum steer by your doc, for the biopsy results to be valid, you need to have been eating generous amounts of gluten up to the day of the procedure for several weeks.  Having said all that, it sounds most likely that you have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. The two share many common symptoms but NCGS is not autoimmune in nature and doesn't damage the lining of the small bowel. What symptoms do you have? Do you have any blood work that is out of norm like iron deficiency that would suggest celiac disease?
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      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

      Thank you, that is helpful! 
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      Confused about HLA-DQ Celiac gene test result

      By Scott Adams · Posted

      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its own, DQB102 does not usually form the full DQ2 molecule most strongly linked to celiac disease, which is likely why your doctor said you do not carry the typical “celiac genes.” However, genetics are only part of the picture. A negative gene test makes celiac disease much less likely, but not absolutely impossible in rare cases. More importantly, both antibody testing and biopsy are only reliable when someone is actively eating gluten; being gluten-free for four years before testing can cause both bloodwork and intestinal biopsy to appear falsely negative. Given your positive antibodies and ongoing symptoms, it may be reasonable to seek clarification from a gastroenterologist experienced in celiac disease about whether proper gluten exposure was done before testing and whether additional evaluation is needed.
    • Aretaeus Cappadocia
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      By Aretaeus Cappadocia · Posted

      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
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