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Negative Blood Work, But Positive Biopsy?
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Recent Activity
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- maylynn replied to maylynn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease6
4 Years and very little progress
@knitty kitty Did they give you medication for the Thiamine? I have never heard of that and have never related to symptoms more. My energy is always SO low. Zero drive to get anything done or work out. I used to love being on the go and being active. I am heading to the doctor next week so I will make sure to bring this up! Thank you so much! -
- maylynn replied to maylynn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease6
4 Years and very little progress
@trents I have had another scope done since being diagnosed. The only thing they told me at that time was my body seems to be healing very well and to continue what I was doing. At that time, I had only been diagnosed 2 years so it may be a possibility that it was healing then but not now maybe. I think you're right that it's about time one was done! I will... -
- knitty kitty replied to maylynn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease6
4 Years and very little progress
Welcome to the forum, @maylynn, I had similar symptoms. I was anemic, lost a lot of weight, felt full after three bites. I was deficient in vitamins and minerals, especially Thiamine B1. Thiamine converts our food to energy so our body can function properly. While deficient in thiamine, the appetite can disappear (not enough thiamine to digest... -
- badastronaut replied to badastronaut's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms19
Still unsure.....
hmm, I only had a colonoscopy. Would be interesting to have an endoscopy done then I guess.
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