Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could It Be Celiac Disease?


flower.fox38

Recommended Posts

flower.fox38 Newbie

Could someone please tell me if my symptoms look like Celiac Disease, or something else? I have done some research, and it looks similar to Celiac.. (can't get a test right now, we have no coverage at all...) And srry if this is a long post..

Started: About 1 year ago, I was eating sushi in a restaurant. Seems normal, right? Well, my sister and I were both sick after, because of something in the fish. And not vomiting, but nausia, bloating, that sort of thing.

Anyways, ever since then, whenever I eat rice, wheat products, or products containing lactose (which I noticed later on), I become very bloated. There may be other products, but I think these are the main ones.

I DO have other allergies: peanuts, kiwi, raw pineapple, polysporin, and possibly basil (which makes me feel sick and as if I had bile in my mouth... >_O). I'm also allergic to dust - I think. Excess dust makes my nose swell up and get all shiny.. and go slightly red. Rudolph the Red Nosed Reindeer actually isn't that far off.. would a wheat allergy be? >_O

Major symptoms in the past year.. do any of these match?

-Bloating!!

-Fatigue.. a lot of general weakness and lack of energy..

-recent irritability

-light headaches that are semi-frequent

-a mild fever that REFUSES to go away

-a bit of numbness in my hands (but I also have displaced tendons, which could be a factor)

-I HAD a potassium deficiency, which caused major muscle cramps, but it may have come back

-I have sinus problems on occasion... a bit more than I should I think

-Irregular menstrual cycle, occasionally missing a month?!

-Heat related fatigue, and not the usual kind. Any kind of humidity hits me VERY hard, and in combination with the usual heat saps my energy completely and far too quickly... much more than it used to. Didn't have this last year.

-Heart palpitations.. I don't know where these have been coming from, and they come at seemingly random times. >_O

-A lot of extra mucus has showed up.. I can't get rid of it! And a very weird feeling in my throat, like a lump of mucus is stuck back there. When I laugh, there is also a really dry cough/wheeze before it.

-Dehydration.. I also have really really dry skin..

On the side... pertinent?(this probably doesn't matter, but it can't hurt to say, right?)

-Weight gain problems: I have always had weight gain problems. I am constantly underweight, with a bmi of about 16 - 17. I'm currently about 20 pounds underweight. Is it my metabolism? Maybe.. I can eat almost anything without gaining weight. Other options include the possiblity of parasites.. But some days I eat like a bird - or, rather, less than a bird would..

-Tunnel vision: For the past few years, I can't lie down for more than a few minutes and get up without my vision going almost completely black. It takes about 7 seconds for it to get back to normal. Sometimes happen if I've sat down for more than 1/2 hour..

-I have a really crappy immune system ... which might account for some of the above symptoms..?

I've done some research, and a lot of my symptoms are leading me to think this could be Celiac Disease. I read that a symptom was lactose intolerance.. Could is be this? Or a parasite? (with my weird weight problems and crap-tastic immune system, it doesn't sound that out of the way.. *sigh* ) A combination of the two, or something different?

If someone could shed some light on this it would be very much appreciated. Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nora-n Rookie

ere in thiscountry we have this quick home test for ttg2-antibodies.. I guess you do not have it yet in the US?

Might be thyroid too as well.

Have you heard about muscle testing, it is free and one can do it at home, you hold a food and someone else presses down your other arm....it is not completely reliable, though. but worth a try. You can have candida too . Incidantally, a candida diet is very very similar to a gluten-free diet but without the gluten-free bread and starches....(A lady named Karen Tripp has some good pages and some very interesting links on her webpage, just google her name )

nora

CarlaB Enthusiast

You can try the gluten-free diet and see what your dietary response is. Be sure you also cut out dairy since you also react to that.

I would also look into Lyme Disease. Open Original Shared Link for a symptom list, Open Original Shared Link, and Open Original Shared Link (message board). ALL your symptoms fit Lyme/babesia, even the food intolerances. Lyme can cause low blood pressure, which causes the blacking out. Babesia causes the heart palpitations and weight loss/lack of appetite. Well, I can go on, but I'll let you check it out.

mftnchn Explorer

I would also wonder about some kind of parasite infection since you first got ill eating raw fish.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748

    LowellFrancis
    Newest Member
    LowellFrancis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.