Test Results For My Daughter And Me, Please Help!

[Guest Maggi315]

Hello Everyone:

Well I managed to get 2 of us tested, I want to test my other two daughters, but they aren't cooperating. here is the results from my 17yo, I assume this is positive, I feel very sad, she is also allergic (RAST test) to: milk, eggs, chocolate. So what the heck is she going to eat? Even the Gluten-free Casein-free stuff usually has eggs in it.

IGA Antibody: <3

Gliadian Antibody: 15 (<11)

Serum IGA 100 (81-463)

Here's mine:

IGA Antibody: <3

Gliadin Antibody: 8

Serum IGA 167 (81-463)

Anyone have a good link that explains which each of these means? I know mine falls in the normal range, but I didn't know if that 8 is a good number or still high. Meaning, that even though it is in normal range, it might still be indicative. Right now I am having trouble with restless legs, fibromyalgia and had my ferritin checked, it was 34, which is normal, however, according to most RLS experts, it really should be 80. I checked it again on Monday and it fell again to 27 which explains why I am exhausted and feel like crap.

Thanks!

[kevieb]

i would not consider a slightly raised antigliadin antibody test a positive result for celiac disease. there are a number of things that can raise those levels----even constipation. it is much better to get Ttg levels tested. if it were me, i would do a little more investigating before i put my daughter gluten free----but that is just me.

[nikki-uk]

I agree that you'd a much better picture if you had the full coeliac panel;

Antigliadin (AGA) IgA

Antigliadin (AGA) IgG

Anti - endomysial (EMA) IgA

Anti - tissue Transglutiminase (tTg) IgA

Total Serum IgA

[Guest Maggi315]

I agree that you'd a much better picture if you had the full coeliac panel;

Antigliadin (AGA) IgA

Antigliadin (AGA) IgG

Anti - endomysial (EMA) IgA

Anti - tissue Transglutiminase (tTg) IgA

Total Serum IgA

so we still need the IgG and tTg to be done? I am the one who is ordering the tests through my office, I ran the comprehensive celiac panel through quest, so i guess I assumed they would do all the necessary tests

Anything else we need to do?

My other daughter has agreed to a stool test with enterolabs, but I see that they only do two of the tests, not all of the panel (and of course, can't do the serum one) and it costs 300!!! So I may have to hold her down and have her get the bloodwork since our insurance is paying for 70% of that. Our insurance won't pay for enterolabs at all.

[Guest Maggi315]

I agree that you'd a much better picture if you had the full coeliac panel;

Antigliadin (AGA) IgA

Antigliadin (AGA) IgG

Anti - endomysial (EMA) IgA

Anti - tissue Transglutiminase (tTg) IgA

Total Serum IgA

so we still need the IgG and tTg to be done? I am the one who is ordering the tests through my office, I ran the comprehensive celiac panel through quest, so i guess I assumed they would do all the necessary tests

Anything else we need to do?

My other daughter has agreed to a stool test with enterolabs, but I see that they only do two of the tests, not all of the panel (and of course, can't do the serum one) and it costs 300!!! So I may have to hold her down and have her get the bloodwork since our insurance is paying for 70% of that. Our insurance won't pay for enterolabs at all.

[kevieb]

it is almost a guarantee that enterolab will tell you that you are gluten sensitive, save your money. i have a son that is IgA deficient and we tested him through promethius lab.

[gfpaperdoll]

no it is not a given - I have a granddaughter that is 9 that I know has a gluten problem & has now lost all the enamel on her teeth - but hey, Enterolab, whom I love, diagnosed her with no gluten problems or dairy problems what so ever. She is just double DQ1 like the rest of us old ones in the family that have a load of health problems too numerous to mention here.

[momandgirls]

A full celiac panel from Quest consists of the three tests you had done. Only if those three tests are positive, do they run the other two. You could also try genetic testing. We had ours done through Prometheus and insurance did cover it (although it had to be preapproved). Remember, though, genetic testing cannot tell you whether you have Celiac - it can only rule it out. If you are positive with the genetic testing, it only means that it is possible for you to develop the disease (many people are positive for genetic testing and never develop celiac). As far as Enterolab, I don't think it is ever covered by insurance - it is not considered to be a valid testing technique by the medical community.

[mftnchn]

I did see a post by someone whose insurance paid for Enterolab. Don't recall the details.

[confused]

A full celiac panel from Quest consists of the three tests you had done. Only if those three tests are positive, do they run the other two. You could also try genetic testing. We had ours done through Prometheus and insurance did cover it (although it had to be preapproved). Remember, though, genetic testing cannot tell you whether you have Celiac - it can only rule it out. If you are positive with the genetic testing, it only means that it is possible for you to develop the disease (many people are positive for genetic testing and never develop celiac). As far as Enterolab, I don't think it is ever covered by insurance - it is not considered to be a valid testing technique by the medical community.

ANd just cause you dont have an celiac gene does not mean you do not have celiac. I do not have one of the main celiac genes and i have celiac cause I have positive DH and blood work and enterolab testing. So not having the celiac gene is not an guarantee that you do not have celiac.

paula