Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mystery Glutening


zarfkitty

Recommended Posts

zarfkitty Explorer

So I'm in the midst of a glutening as is my DD. Here's what's been different (only Friday had anything different about it):

My husband and I teach high school. Last Friday's pep-rally was in the auditorium, which is a really big room (at least as big as a big city movie theater room). We were standing at the back wall of the auditorium, keeping kids from going in and out the back door. DD had just arrived from the elem. school and was with us.

The funny "spirit game" of the week was a relay where kids had to root around with their faces in flour looking for bubble gum. There were four teams and each team had a big roasting pan full of white flour up on the stage. There were clouds of flour dust hanging in the air after the game, but only down in the stage area. One of the "victims" walked right past me to change clothes, though. I didn't see her coming or I'd have gotten waaaaaaaaaaaaaaay out of her way. Maybe I should have left the room completely when I realized what the game was but I thought I was far enough away.

The other possible culprit was powerade (I thought it was gatorade). I know that Coca Cola claims all powerade is gluten free according to codex. Has anyone else reacted to powerade? It was the lemon flavor.

Both situations seem to be far fetched in causing a glutening, in my estimation. Or maybe I'm being naive about the flour dust. I'd really like to hear opinions.

-Shannon


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hez Enthusiast

Flour has the ability to fly around and coat everything. I think it is possible that while talking the flour dust made it into your mouth and dd's. I have never had the poweraide.

I am so sorry you to not feel good. Hopefully, this will pass quickly.

Hez

Guest thatchickali

I don't know what to tell you because I haven'y tried powerade, but I am curious was DD means?

buffettbride Enthusiast
I don't know what to tell you because I haven'y tried powerade, but I am curious was DD means?

DD = Dear Daughter

DS = Dear Son

DW = Dear Wife

DH = Dear Hubby, Dorky Hubby, etc. ;)

Sorry to hear about the glutening zarfkitty. I was just thinking about you today and your Onigiri expertise! Feel better soon!

Yellow Rose Explorer

I can tell you that I had a similar experience last week. I was glutened Sunday. :( When this happens to me it is usually within 4 hours of coming in contact. I made all my own food and ate at home. The only thing my DH and I could come up with was a trip to the grocery store. There was flour on the floor of one of the isles and he noticed it because it was slippery. I didn't even notice it at all. I have seen the dust that is in the air when a ray of sunlight hits it just right so it wouldn't surprise me to find flour dust in the air as well and we figure I must have breathed it in. It was the worst reaction I have had yet. I had previously seen on this site somewhere someone else had this happen and I am sorry to say I was very sceptical. I owe that person an apology and I am a believer now. Hope you are feeling better soon.

Yellow Rose

confused Community Regular

I bet it was the powerade, when i called them they said they were not gluten free but only one was, i think mountain blast, i cant remember off hand, i just know i stay clear of them cause they make me sick. I never thought powerade would have gluten when i started the lifestyle change and sure enough i got sick after drinking one so i called and they said nope not gluten free.

paula

JNBunnie1 Community Regular
The other possible culprit was powerade (I thought it was gatorade). I know that Coca Cola claims all powerade is gluten free according to codex. Has anyone else reacted to powerade? It was the lemon flavor.

Both situations seem to be far fetched in causing a glutening, in my estimation. Or maybe I'm being naive about the flour dust. I'd really like to hear opinions.

-Shannon

If you 'thought' it was Gatorade, does that mean it came out of a punch bowl? If it was something that someone somehow served to you, that could be the culprit as well, but then there is what confused said.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zarfkitty Explorer
If you 'thought' it was Gatorade, does that mean it came out of a punch bowl? If it was something that someone somehow served to you, that could be the culprit as well, but then there is what confused said.

It came out of a Gatorade brand jug on the sideline of a football game. One of the players told me it was actually powerade. I didn't worry at the time because Coca Cola says all their stuff is gluten free.

wolfie Enthusiast

My son drinks powerade (blue & red) all the time with no issues whatsoever. He just had his 1 year bloodwork come back completely normal (TTG) after it had been astronomical before his diagnosis.

I would bet that it was the flour in the air. I hate to even go down the baking aisle in the mainstream grocery stores anymore!

JNBunnie1 Community Regular
It came out of a Gatorade brand jug on the sideline of a football game. One of the players told me it was actually powerade. I didn't worry at the time because Coca Cola says all their stuff is gluten free.

In that case I would check with Powerade, just in case, and if they're gluten free, I'd be more paranoid about flour in the air.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,671
    • Most Online (within 30 mins)
      7,748

    Paul1567
    Newest Member
    Paul1567
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.