Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Success Adding Foods?


Arpita

Recommended Posts

Arpita Apprentice

Anybody with celiac and other food intolerances (such as rice, beans, citrus, nuts and most new grains - like amaranth, buckwheat, quinoa, teff, and any food that typically produces gas, & most vitamins) ever been able to add back in foods? Please tell me of success stories where you can actually eat more, where food intolerances get better over time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tom Contributor

I'm very curious about this also.

I only became 'well' in June and mostly feel so good I don't even want to TRY adding foods back. The more tests I do, the more often I'll feel crappy when the food 'fails'.

BUT . . . . . I did try a little corn. The last time I tried any, just a bite of a corn tortilla chip, I was dizzy in seconds. That was at least 9 mos ago.

A couple wks ago, I tried again and WASN'T dizzy! I even ate ~10 whole chips w/ no immed reaction. So it certainly changed for the better. What I DON'T know is whether having a slightly down day a couple days later was related.

I'm not in a hurry to try more corn, or more of the other foods whose intolerance should go away, but I've bkmrkd this thread and wil report in as I do.

I'd really like to hear from others in this position. Much of what I've read on 'leaky-gut-induced' intolerances says they go away.

jerseyangel Proficient

I started the gluten-free diet on June 2, 2005. I felt better quite quickly, but a lot of my old GI symptoms began to return about 5 months later. I suspected additional food intolerance because I was ultra careful in avoiding gluten in my foods and personal care products. I had completely replaced my pots and pans, toaster, collander, etc, etc. didn't eat out, etc, etc.

I finally sought help from an allergist/immunologist. (My GI at the time refused to even discuss the possibility of food intolerance with me, saying I only needed to avoid gluten <_< ) After a full battery of skin testing, I was found negative to everything tested (food wise--though highly positive to cats and dust mites)). He suggested an elimination diet--he felt it would be more accurate than blood testing for intolerances.

We found I was intolerant to soy, legumes, coconut, tapioca, eggs, rice, and corn. I was already dairy free by choice, so we didn't challenge that.

I completely avoided those foods for at least 6 months. I ate no grains at all--just meats, veggies, fruit, spring water, olive oil, almonds and dark chocolate :P

After 6-7 months, I tried some rice and was fine with it. That was all I added until recently--I can now eat corn in the form of homemade, popped in light olive oil popcorn and fresh corn off the cob. Corn previously had always gone right through me, along with a considerable amount of cramping.

Right now, with the addition of the rice and corn (and egg in recipes)--I'm content to leave well enough alone with the other foods. I have just recently found myself sensitive to potatoes which is interesting because they were always my "go-to" food when I was sick or reacting. The potatoes don't cause GI distress as much as joint aches and stiffness.

After 2 years and 3 months, I think I finally have a handle on this thing :D I'm feeling so much better than I have in a very long time. By very long, I mean at least 20 years. :rolleyes:

Rachel--24 Collaborator

I cant eat most foods...I've only been eating about 5 different foods for about a year now with no luck adding in new foods. I might do okay eating something in small amounts but if I keep it in my diet I'll notice problems.

I have candida and parasites contributing to the leaky gut situation. Just started treatment for mercury toxicity so we'll see how I do with the food intolerances in the upcoming weeks/months.

I'm told these intolerances should all go away as I progress with treatment.

I will post back here when I notice any changes. :)

P.S.

I dont have Celiac.... I've been on the gluten-free diet over 2 years now.

oceangirl Collaborator

Hi,

I have been a year and a half gluten, soy, dairy, corn, legume and nightshade free. I have CAREFULLY and painstakingly slowly added back potatoes (in the form of UTZ chips) and tomatoes and seem to be having success as long as I go SLOW and easy. I have also put almonds back slowly to much success. I react to many foods (I guess some of us should really just live on air, eh?) I've kept a detailed food log for a year and a half that helps me pinpoint trouble and sometime leaves everything a mystery. But for the most part, I highly recommend a food log with how you felt that day to help sort out problems. There IS hope, I think, but you must go slowly and only ONE food at a time.

Good luck,

lisa

Arpita Apprentice
Hi,

I have been a year and a half gluten, soy, dairy, corn, legume and nightshade free. I have CAREFULLY and painstakingly slowly added back potatoes (in the form of UTZ chips) and tomatoes and seem to be having success as long as I go SLOW and easy. I have also put almonds back slowly to much success. I react to many foods (I guess some of us should really just live on air, eh?) I've kept a detailed food log for a year and a half that helps me pinpoint trouble and sometime leaves everything a mystery. But for the most part, I highly recommend a food log with how you felt that day to help sort out problems. There IS hope, I think, but you must go slowly and only ONE food at a time.

Good luck,

lisa

Thanks. I kept a food log for my daughter for over a year, and almost that long for myself. That is how I ended up eliminating so many foods for myself (this happened sequentially after the initial gluten free, shortly thereafter dairy free that started in Jan 05). I am grateful that so many of my symptoms have gone away. It's nice to hear the hope that someday foods can be added in, and that it doesn't have to be the never ending elimination story that is common. I was thrilled in the last week to be able to take probiotics for the first time. Supplements, other than cod liver oil, have always been a huge problem for me (even before celiac). I love your "just live on air" comment....I can relate.

jewi0008 Contributor
Thanks. I kept a food log for my daughter for over a year, and almost that long for myself. That is how I ended up eliminating so many foods for myself (this happened sequentially after the initial gluten free, shortly thereafter dairy free that started in Jan 05). I am grateful that so many of my symptoms have gone away. It's nice to hear the hope that someday foods can be added in, and that it doesn't have to be the never ending elimination story that is common. I was thrilled in the last week to be able to take probiotics for the first time. Supplements, other than cod liver oil, have always been a huge problem for me (even before celiac). I love your "just live on air" comment....I can relate.

I have a question for everyone about your Food Logs. How do you track everything? Do you write the times you eat the foods/times for symptoms? Or what about ongoing symptoms that don't go away, ect.? Currently, I just write down what I eat and at the end of the day I write what all of my symptoms were. Is there a better way?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Arpita Apprentice
I have a question for everyone about your Food Logs. How do you track everything? Do you write the times you eat the foods/times for symptoms? Or what about ongoing symptoms that don't go away, ect.? Currently, I just write down what I eat and at the end of the day I write what all of my symptoms were. Is there a better way?

When we did logs, this is what I did. I write breakfast, lunch, dinner and snacks in between (but not exact times). I write all the symptoms I had that day. I don't look at it and figure it out each day. After a couple of months, I return to it and look for patterns of symptoms. Sometimes they show up the next day or even 3 days later for some people. Yes, I write down all symptoms. It's really important to look for patterns, because you can have a food and not obviously react EVERY single time (in the same way that you can take tylenol for a headache and it doesn't eliminate the headache EVERY single time). you can also have symptoms due to stress or other problems. If you get over-detailed, then you can see the forest for the trees. Another more obvious way is with elimination - compare a several month period eating a particular food(s) with a month period not eating that food. If this is for yourself, write, write, write - but don't examine it until later (less stress too). My experience is that if it is for a young child, it is easier to figure out. But as children get older they can cheat, the pressure outside the home is so strong. It is not fun to be eliminating foods based on a log and then find out it was gluten outside the home instead of something else.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748

    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.