Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ok - Anybody Out There From Oklahoma!


adiftime

Recommended Posts

adiftime Rookie

Hi!

I am in the Tulsa area and just wondering if there is anyone in this group around here? :D

Billie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WW340 Rookie

I don't live in Tulsa anymore, but I still work there part time. I also do a lot of my gluten free shopping at the wild oats store on 41st. I love that store.

My GI doc is in Tulsa. He is very knowledgable about celiac disease. He says that Tulsa is a hotbed for celiac disease. There are 2 of us in one small office, so I guess he is right.

adiftime Rookie
I don't live in Tulsa anymore, but I still work there part time. I also do a lot of my gluten free shopping at the wild oats store on 41st. I love that store.

My GI doc is in Tulsa. He is very knowledgable about celiac disease. He says that Tulsa is a hotbed for celiac disease. There are 2 of us in one small office, so I guess he is right.

Wild Oats is a neat store. I haven't been there but a couple of times so far. Hopefully when I get to feeling a little better I will be able to spend a little more time lokking at what they have to offer.

If you dont mind me asking, Who is your GI doctor? Right now I am pretty much dependent on my dietician for info. The GI that I went to for the scope, just did the scope and sent me back to my primary, who doesn't seem to know a whole lot. My dietician is doing some checking for me also, but I really think I should be working with a doctor that understands the disease a little bit better than my primary care doctor.

I was beginning to think I was alone on this site as far as any one being in Oklahoma. Surely there is more Oklahomans on this site than just us two. :D

Thanks for responding, talk to you soon.

Billie

WW340 Rookie

My doctor is Dr. Nightengale. He doesn't spend so much time talking about the diet itself, he sent me to a nutritionist for that, but he does answer any specific questions I may have about the diet. He does all the blood tests for possible vitamin deficiencies, B12, folate,anemia, thyroid, liver enzymes, etc.

He immediately sent me for a dexa scan upon diagnosis which showed severe osteoporosis. He followed me every 3 mos. initially, now every 6 mos. with continuing monitoring of the previously mentioned blood work.

He is a Mayo trained doctor, and very smart. He also checked me for other GI diseases in addition to celiac and told me I have the markers for crohns disease as well.

I feel he has a real interest in the disease and is very thorough in his workups.

adiftime Rookie
My doctor is Dr. Nightengale. He doesn't spend so much time talking about the diet itself, he sent me to a nutritionist for that, but he does answer any specific questions I may have about the diet. He does all the blood tests for possible vitamin deficiencies, B12, folate,anemia, thyroid, liver enzymes, etc.

He immediately sent me for a dexa scan upon diagnosis which showed severe osteoporosis. He followed me every 3 mos. initially, now every 6 mos. with continuing monitoring of the previously mentioned blood work.

He is a Mayo trained doctor, and very smart. He also checked me for other GI diseases in addition to celiac and told me I have the markers for crohns disease as well.

I feel he has a real interest in the disease and is very thorough in his workups.

Thanks for the info. I may try to get in to see him. I have a wonderful dietician, but your doctor sounds just like what I'm looking for.

Thanks again,

Billie

  • 1 month later...
glutenfreewife Rookie

Hey there! I'm in Tulsa and am recently gluten-free. I've been looking for some great restaurants I can eat at. I've found Outback, Carraba's, and Carrino's. Any else?

Anna

Diagnosed with IBS 2007. gluten free for a month, allergic to eggs and milk.

Centa Newbie
Hey there! I'm in Tulsa and am recently gluten-free. I've been looking for some great restaurants I can eat at. I've found Outback, Carraba's, and Carrino's. Any else?

Anna

Diagnosed with IBS 2007. gluten free for a month, allergic to eggs and milk.

I was through Tulsa recently and was taken to a restaurant in Utica Square shopping center called The Polo Grill, and it turns out that the chef has developed a gluten free menu...ask for it; it comes in a separate menu...it was a slow time, in between lunch and dinner...the chef came out to meet me and said they even have a separate prep area in the kitchen for the gluten free dishes. He really sounded like he understood the business of cross contamination. And they aren't all salads.... The server was knowlegeable, too...she was able to say which items on the regular menu were gluten free and what their contents were.

There was a P.F. Changs in the same shopping center.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WW340 Rookie

There are several places in Tulsa that at least understand gluten free. I have recently heard that Michael Fusco's Riverside Grill is a good place to go, because Michael, the chef/owner, has celiac disease. He has gluten free items on his menu. I have not eaten there myself, but another woman in my office has celiac, and she ate there and thought it was good.

The chalkboard will prepare a gluten free meal, but they require 3 - 4 days notice. The food is well worth the effort though.

There is another restaurant in Utica square, but I can't think of the name of it. I will try to find it and post later.

My GI doc says that Tulsa is a hotbed of celiac disease, and there are more restaurants catering to us popping up all the time.

  • 2 weeks later...
WW340 Rookie

Oh my, I ate lunch Thursday at Michael's Riverside Grill. It was fabulous. The majority of the menu is gluten free. I had lobster bisque and breaded fish and chips. They even serve a little cornbread muffin that is gluten free with the meal.

The menu denotes which items are gluten free and the servers are all very knowledgeable.

The dinner menu is also loaded with gluten free choices. I can highly recommend it. My husband and I just couldn't believe our eyes or taste buds. I am very sensitive and did not have any reaction at all.

It is pricey, but well worth it. We will be making this a regular for us.

April in KC Apprentice

Hello! I am traveling to Stillwater on Wednesday for business. Does anyone know where I can get a gluten-free meal near OSU? No biggie if not - I am only there one day.

Thanks! - April

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    2. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    4. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    5. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,692
    • Most Online (within 30 mins)
      7,748

    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.