Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help Asap


ptkds

Recommended Posts

ptkds Community Regular

A few weeks ago, I was taking some ibuprofen for some pain. I would wake up the next day with really stiff, achy and swollen fingers. I took more ibuprofen to help with my fingers swelling, and it got worse. I finally stopped taking ALL of my meds for a few days and it cleared up. Well, yesterday, I took some ibuprofen for a sore elbow, and this morning I woke up with really achy, swollen fingers and my neck is really stiff and it hurts. So I am assuming I am having some kind of reaction to ibuprofen. I called the dr's office and spoke to the nurse. She told me that I could try taking ibuprofen again in a few days, but to take the brand name with the enteric coating. What should I do?? I don't feel safe taking the ibuprofen, but the nurse said it should be fine! What do you guys think? And should I go see the dr? Also, is there anything I can take to help me feel better right now? I can barely move my head because my neck hurts so bad.

Actually, this may be related to having celiac because I have never had a problem taking ibuprofen before I was diagnosed!

~ptkds


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mama2 Apprentice

I would not take it and try something different. The more you take something you are allergic to sometimes the worse it gets. I learned that the hard way with my DD... after still taking her they me told me to give her the med anyways... well her next reaction sent us to the ER. But I still would want to see the doc b/c new alleregies can happen at any time,

Ursa Major Collaborator

I agree, don't take it again. I get a pretty bad reaction to Aspirin (similar to yours, but worse now), and Ibuprofin and Aspirin are both similar. So, don't take Aspirin, either. Try Tylenol instead (possibly with codein).

The problem with Tylenol is, that when you take it over a long period (or too much) it can cause liver damage, even liver failure. So, be careful.

For something like a sore elbow (local pain) I would not take pain killers at all. Do you have peppermint oil or something similar? Rub it onto the sore spot, it might work better than painkillers.

JNBunnie1 Community Regular
A few weeks ago, I was taking some ibuprofen for some pain. I would wake up the next day with really stiff, achy and swollen fingers. I took more ibuprofen to help with my fingers swelling, and it got worse. I finally stopped taking ALL of my meds for a few days and it cleared up. Well, yesterday, I took some ibuprofen for a sore elbow, and this morning I woke up with really achy, swollen fingers and my neck is really stiff and it hurts. So I am assuming I am having some kind of reaction to ibuprofen. I called the dr's office and spoke to the nurse. She told me that I could try taking ibuprofen again in a few days, but to take the brand name with the enteric coating. What should I do?? I don't feel safe taking the ibuprofen, but the nurse said it should be fine! What do you guys think? And should I go see the dr? Also, is there anything I can take to help me feel better right now? I can barely move my head because my neck hurts so bad.

Actually, this may be related to having celiac because I have never had a problem taking ibuprofen before I was diagnosed!

~ptkds

I wouldn't take it either.

~alex~ Explorer

I wouldn't try the drug again until you are evaluated by your doctor. My experience with sensitivities to painkillers is mostly breathing trouble but I'm sure it causes different symptoms in different people. My brother is sensitive to aspirin and some other NSAIDs -- he has something called "aspirin triad" which consists of the NSAID sensitivity, asthma, and nasal polyps. Aspirin but not other NSAIDs exacerbate my asthma. So if you have asthma and sinus problems you may want to look into the aspirin triad (I'm sure it has a more technical name but I don't know what it is.)

Tylenol probably won't help much with the inflammation but it might help ease the pain while you figure out if you are sensitive to NSAIDs. Tylenol is pretty innocuous if you don't take more than the recommended dose and you don't drink alcohol excessively.

Guest kivmom3

Did you buy the brand name of Motrin? I know that is gluten free.

I don't trust generic anything these days or anything that is not guaranteed to be gluten free.

Gg

Vykt0r Rookie

Might I suggest not taking anything at all? I think pain killers and similar things cause cancer as much as food additives and such.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I don't think I would take it either. I would call your dr and see if he could suggest something else in its place. Sounds like you are having a reaction of some sorts.

Fiddle-Faddle Community Regular

I wouldn't take it, either.

What I would like to know is, what is causing the pain in the first place?

My big beef with pharmaceuticals in the first place is that you are just masking symptoms, so whatever is causing your pain is still there..

Would a chiropractor be able to help?

Guest Happynwgal2
A few weeks ago, I was taking some ibuprofen for some pain. I would wake up the next day with really stiff, achy and swollen fingers. I took more ibuprofen to help with my fingers swelling, and it got worse. I finally stopped taking ALL of my meds for a few days and it cleared up. Well, yesterday, I took some ibuprofen for a sore elbow, and this morning I woke up with really achy, swollen fingers and my neck is really stiff and it hurts. So I am assuming I am having some kind of reaction to ibuprofen. I called the dr's office and spoke to the nurse. She told me that I could try taking ibuprofen again in a few days, but to take the brand name with the enteric coating. What should I do?? I don't feel safe taking the ibuprofen, but the nurse said it should be fine! What do you guys think? And should I go see the dr? Also, is there anything I can take to help me feel better right now? I can barely move my head because my neck hurts so bad.

Actually, this may be related to having celiac because I have never had a problem taking ibuprofen before I was diagnosed!

~ptkds

Please note that I am very skeptical about medical doctors and nurses. I would NOT continue taking Ibuprofen in ANY form if you have already had two reactions to it. Trust your body - not the nurse. Nurses and doctors are good for a lot of things, but they also ignore a lot of symptoms that we, as Celiac patients, have.

How about naproxin? (may not be spelled correctly). Personally I can use neither Ibuprofen nor Naproxin, because I get very sick to my stomach from both, no matter how much or what kind of food I take with them.

I am sorry you are having problems like these, and hope that you will soon find a solution...

nmw Newbie

Yes - stop using it, and go ahead and check to see if it really is gluten-free. Think about what is causing your pain. Many foods cause joint pain.

I gave up ibu after I went gluten-free for the exact reasons you are stating - it made things worse instead of better. It's really hard on the gut and can contribute to leaky gut, and you don't want to go there.

Try arnica tincture and peppermint oil - a couple of drops of each on a cotton ball and apply to the affected area(s). Use a hot water bottle or other safe source of heat to help it soak in. An effective and safe approach to pain relief.

mftnchn Explorer

I am floored that a nurse would give you that advice. You are having strong reactions to a drug and why would enteric coating fix that? Scary.

I second the suggestion to make sure it is gluten-free. It may not be the drug at all, but what is in the fillers that is the problem.

What about your other meds? Have you isolated the symptoms to being for sure just with the ibuprofen? If you are having chronic pain, perhaps if you tell us about it someone here can offer some suggestions.

For me, I lived on asperin, 4 at a time, sometimes around the clock every four hours. Doctors couldn't find anything wrong with me, until I found my current LLMD who picked up right away that it might be lyme disease. He was right.

Fiddle-Faddle Community Regular

Generic or store-brand ibuprofen gives me diarrhea, but, for some reason, the brand-names (Motrin and Advil) do not.

Still, I would not continue taking ibuprofen AT ALL, and I think you need to find out what is causing the neck pain in the first place before masking it with drugs.

How are you doing today? Please let us know--I'm getting worried that you haven't posted again recently. :huh:

ptkds Community Regular

Thanks for all your help guys! I have decided that I will NEVER take ibuprofen again. Now I just don't know if I should also avoid aspirin and aleve, too. I haven't had a chance to do much research yet since I felt so bad yesterday.

Today I am feeling better. My fingers aren't as stiff or swollen, and my neck is better, though it still hurts. I have a pulled tendon or something in my elbow. It has been fine for awhile, but I must have re-injured it or something. So I took some ibuprofen to stop the pain. I don't take it on a regular basis. I know it is gluten-free. I get completely different symptoms when I have gluten.

I have to go take the kids to school. Thanks for all the info!!

ptkds

tarnalberry Community Regular

I would encourage you to talk to your doctor about it - and not take it again. But *DO* talk to him/her about it and get tested for allergies to painkillers. Those *are* things that they may give you in an emergency situation for fever/inflammation/etc, and you need to know if you need special records that note if you have an allergy.

Susanna Newbie

You might want to try talking to the pharmacist at whatever place you buy your ibuprofen--pharmacists are a wealth of knowledge about meds--prescription AND over-the-counter--and they know about all kinds of crazy reactions people have. Your pharmacist might have some recommendations for you.

I agree with the others--don't take ibuprofen--find some other anti-inflammatory med that works for you, or some non-medicine remedy (heat or cold to the sore area, yoga, etc.).

I have a friend who had a weird reaction to ibuprofen once: she had blurred vision and difficulty with speech and walking--scary.

Susanna

ptkds Community Regular

I talked to a pharmacist today, and he said that I was having some sort of allergic reaction and I should not take it again. He said i need to avoid naproxin, aleve, all ibuprofens, etc. When I told him what the nurse told me, he kinda laughed and said that she was really wrong to tell me that. The enteric coating will only help me if my stomach got upset. Next time I see my dr, I will talk to him, though.

Thanks everyone! You guys are wonderful!!

ptkds

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748

    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.