Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolabs?

daron5780

Recommended Posts

daron5780 Newbie
daron5780
Posted

i see this name popping up alot, what is enterolabs and how do they differ from regular docs testing?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

www.enterolab.com for more information.

They can't diagnose Celiac, only potential gluten (and other foods) sensitivity. Many doctors don't accept their results. It is a stool test. The test done at your doctors is a blood test.

His results have not been duplicated yet, nor has his stool testing method results been duplicated by others. He is supposed to be working on an article to be submitted for peer review.

There are pros and cons to using them. Many turn to them after traditional methos.

gfpaperdoll Rookie
gfpaperdoll
Posted

& some people that have a positive biobsy use them to then find out if they have a problem with dairy etc & to get the gene test. & then they have their whole extended family tested - because enterolab is easy to use. You can order it from anywhere in the world & you do not need a doctors referral to order the tests. And it does not go on your medical records.

And some doctors do use them & some doctors do accept their lab results...

And a lot of people, like me,do not care if they submit their findings for peer review or not.

It is not like the medical profession is going to do anything with a published paper anyway...

I mean it is not like you need a prescription to eat a healthy diet...

There is a lot of good info on their site. Dr Fine also thinks that we should not be eating grains even the gluten free ones or dairy & I agree with him...

daron5780 Newbie
daron5780
Posted
  • Author

are they definitely credible? any idea of the costs?

thanks alot for the info!

gfpaperdoll Rookie
gfpaperdoll
Posted

They are very credible, go to their web site & decide for yourself. They are located in Dallas...

Dr. Fine is an MD gastro specialist... He is cited by other doctors that are studying gluten intolerance which has just about been totally ignored by the medical community, why if you have a negative blood test they usually will not even do a biobsy... which is absurd... well you could test negative via blood & biobsy & still be dying from gluten intolerance - which I think is worse than just damaging the villi - gluten intolerance can affect any organ including the brain - a lot of DQ1 people have neurological symptoms, we also get all the other auto immune illnesses like diabetes, MS, arthritis, cancer...

momandgirls Enthusiast
momandgirls
Posted

It's up to you to decide if Dr. Fine is credible...personally, no, I don't think he is. He is not accepted by the medical community. He has not published any papers, published no peer reviews, is not affiliated with or supported by any university or health care facility or hospital. And I disagree with the above poster - it IS important to be published. If he would do valid studies and publish his results, he would have the support of the medical community.

hathor Contributor
hathor
Posted

Is there any other test available for gluten intolerance that hasn't reached the level of villi damage or that affects other parts of the body and which is accepted by the majority of the medical profession? No.

The problem is that the medical community is divided. I read an article about it once. (I wish I had kept a link.) They don't even agree on what the disorder IS. Is there only celiac, and is it only present with certain genes and verified villi damage? Some say yes. Others accept the possibility of other genes or accept the disorder even without seeing villi damage. Some accept a positive response to dietary change as sufficient and don't get hung up with labels. Some even accept Enterolab. Dr. Fine is not in the majority camp, it is true, but he is not by himself either.

Plenty of what doctors say about celiac, judging from comments on this board and what I've read historically, were never supported by studies. Plenty of what they do in this and other areas is not supported by research.

If Dr. Fine publishes ... and I wish he would BTW ... I don't expect many of the medical profession to accept what he says even if the study was done perfectly. Plenty of studies get ignored if they don't fit into the prevailing group think in the profession or aren't brought to the fore in glossy magazine ads for drugs or drug representative visits. Those who think there is only celiac are not going to accept a test for something broader. They don't think the something broader even exists. (Those of us who feel better without gluten but aren't confirmed celiacs are a "cult," don't you know? A word used by a gastroenterologist at a meeting ... there's a thread about it.)

You can read on the web site how his research was done & see what you think. Yes, it isn't perfect; it would be better if put through the crucible of peer review & replication by others. But in the real world we often don't have the alternative of perfect information and studies. Folks who have a positive response to the diet and don't want to go back on gluten (but want some sort of confirmation and baseline for their antibodies & absorption), those who have DQ1 and thus are considered by some doctors as not at risk for gluten problems yet by others to be at risk, etc. can reasonably decide to go with Enterolabs. IMHO :D Of course, others may disagree ... and do :lol:

An article that may be of interest:

https://www.celiac.com/st_prod.html?p_prodid=1417

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


EBsMom Apprentice
EBsMom
Posted
But in the real world we often don't have the alternative of perfect information and studies. Folks who have a positive response to the diet and don't want to go back on gluten (but want some sort of confirmation and baseline for their antibodies & absorption), those who have DQ1 and thus are considered by some doctors as not at risk for gluten problems yet by others to be at risk, etc. can reasonably decide to go with Enterolabs. IMHO :D Of course, others may disagree ... and do :lol:

Not me! I couldn't have said it better if I'd tried (really hard, lol!)

Rho

daron5780 Newbie
daron5780
Posted
  • Author

interesting. hathor, what do you mean by DQ1?

happygirl Collaborator
happygirl
Posted

The costs are on the website.

There is no definitive answer on if he is credible. Food allergy and intolerance testing, having nothing to do with Dr. Fine, is notoriously difficult, less than reliable, etc.

Personally, I would first go to the dr. and have the full Celiac blood panel run. Covered by insurance. After that, look in other directions.

hathor Contributor
hathor
Posted
interesting. hathor, what do you mean by DQ1?

It is a gene variant that many of us with gluten intolerance seem to have, but it isn't one that is considered a "celiac gene." It has been found in those with neurological manifestations of gluten problems, in addition to the regular celiac genes of DQ2 and DQ8:

Open Original Shared Link

I don't know that I accept the idea of there not being a gastrointestinal presentation of gluten sensitivity with DQ1, because I seem to have such problems as do other DQ1s I've talked with. <_< That's how I got into this gluten business to begin with. Since I've had digestive issues since I was a little girl and my dietary changes early this year have finally begun to resolve some problems, I feel like I've found my answer.

This seems to be one of those areas where more research is needed. Meanwhile, we all can only try to find the diets that make us feel the best.

lonewolf Collaborator
lonewolf
Posted
It's up to you to decide if Dr. Fine is credible...personally, no, I don't think he is. He is not accepted by the medical community. He has not published any papers, published no peer reviews, is not affiliated with or supported by any university or health care facility or hospital. And I disagree with the above poster - it IS important to be published. If he would do valid studies and publish his results, he would have the support of the medical community.

Hmmm, have you looked at his "Curriculum Vitae"? He has an impressive resume and is well-respected. Not everyone agrees with him about his findings with Enterolab, but that doesn't mean he's not credible. You should read this:

Open Original Shared Link

Then go to one of his seminars, speak to him in person and then decide if he's credible. That's what I did.

daron5780 Newbie
daron5780
Posted
  • Author

thank you for the article, hathor. it was very informative. thanks everyone for all the replies!

mftnchn Explorer
mftnchn
Posted

Yes, I agree. Check out Dr. Fine's resume.

Also, someone here on the forum has worked in a laboratory and looked into Enterolab. I found her comments interesting. She said that Dr. Fine's tests on stool are the exact same reagents etc that are used in the blood tests for celiac.

I too hope that he publishes. However, I had this experience: I was made fun of by a rheumatologist who considered himself an expert on lyme--because my LLMD thought I had it, and was willing to test me with a test that the "rheumie" considered not reliable. It took 8 months of antibiotics before I began to improve, and treatment by my LLMD has literally given me my life back.

Therefore, I do not ignore Dr. Fine because he is not published or well accepted yet by the mainstream. I try to weigh everything as information to consider. I think he is a bit extreme on milk for example, but Enterolab is how I discovered my gluten problem and 6 months after gluten-free I can see some clear improvements.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,767
    • Most Online (within 30 mins)
      7,748
    Kevin C
    Newest Member
    Kevin C
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • lizzie42
      Gluten free and oat free bars not sugary?

      By lizzie42 · Posted

      I'm looking for bars or non perishable snacks for my 2 kids. They are 5 and 3. The 3 year old seems sensitive to oats also. We do a lot of long hikes and bike rides. They eat mostly fresh foods but for these rides and hikes we need easy and non perishable. Also that taste good! We do a lot of larabars and freeze dried apples but those are getting old. Any ideas? 
    • knitty kitty
      Inflammation and Menier’s disease link?

      By knitty kitty · Posted

      Oh, @MagsM, Sorry you had that happen with Niacin.  500mg is the maximum amount of Niacin one should take.  Niacin works hand in hand with Thiamine, so a big influx like that can imbalance thiamine if not supplemented at the same time.  All the B vitamins work together in concert.  Niacin in doses at 500 mg or above have been used by doctors to lower triglycerides levels and raise HDL, the good cholesterol.  Pharmaceuticals to do the same thing are more expensive and thus more profitable for physicians. Has your doctor tested you for H. Pylori?  An infection by H. Pylori can be tested for by your doctor.  H. Pylori can cause low tTg IgA results, too.   I would hold off on the microbiome test for now.  Your microbiome is going to change when you go gluten free.  Your microbiome will change when you start taking Thiamine.  Thiamine supplementation influences which microbes grow in the intestines, encouraging beneficial bacteria and getting rid of the bad ones.  Thiamine in the form Benfothiamine promotes intestinal healing, too.  Adopting the Autoimmune Protocol Diet (by Dr. Sarah Ballantyne, a Celiac herself) after diagnosis will also change your microbiome.  This is the best diet to heal and recover, IMO.   If you're going to have more testing done for vitamin deficiencies, don't take vitamin supplements beforehand, otherwise the tests will measure the vitamin supplements in your bloodstream and give false results.  Same thing will happen if you take B vitamin shots.  The supplements you mentioned (Arterosil HP and Vascanox HP) are herbal support and do not contain all eight B vitamins.  There's no harm in taking them, but I prefer a B Complex that contains all the B vitamins in activated forms like Life Extension's Bioactive Complete B Complex.  All the B vitamins work together in concert.  Magnesium is important to supplement as thiamine and magnesium make life sustaining enzymes together.  Do not buy supplements containing Thiamine Mononitrate because it is not biologically active.  It is very hard for the body to utilize.  Most of it (70%) passes out unused.    Yes, my Meniere's disease has not returned.  I was deficient in Vitamin D.  I took high doses of Vitamin D 3 to correct the deficiency quickly.  I also took TTFD (tetrahydrofurfuryl disulfide) which is a form of thiamine different from Benfotiamine.  TTFD can cross the blood brain barrier without a carrier, so it can get into the brain very easily.  TTFD helps the Vagus nerve function.  The Vagus nerve regulates the ears and balance, and also the digestive system.  I like Allithiamine by Ecological Formulas.  I also like Thiamax by Objective Nutrients.  You should have improvements within a hour with TTFD.  TTFD is much stronger, so lower doses will give amazing benefits (50-200 mg).   I hope this helps give you some direction to take on your journey!
    • MagsM
      Inflammation and Menier’s disease link?

      By MagsM · Posted

      Thank you so much for this in depth analysis. I am currently taking Vit D3/K2 5000IU daily.i started taking a flushing Niacin but foolishly took a 500mg tab and nearly passed out! I have just ordered a gut microbiome genome test and it will be interesting to see what my current balance of microbes are. After I finish diagnosis I will definitely go gluten free. Diagnosis will inform exactly how strict I’ll need to be regarding cross contamination etc. my focus will be on healing the gut. I have also been focusing on the oral microbiome - cutting out FL and using more natural products as well as daily oil pulling. I read from some of your other forum entries about Benfothiamine and I’ll definitely order that. I’ll make sure my doc orders more detailed vitamin and mineral panel plus total IGA as well as the DGP-IGA and DGP-IGG tests. We will see if I can get the endoscopic biopsy done. Do you think I should request Vitamin B shots to get me started?  My daily vitamin protocol will likely be VitD/K2 5000IU, Benfothiamin 300x2, Niacin (flushing) 50mg working up to 300mg. I also take a EPA/DHA as well as some vascular support (Arterosil HP and Vascanox HP) as well as Magnesium at night. Which B complex brand do you like? I will see what the gut microbiome test comes back with. I’m sure they will try to sell me pre/probiotics and maybe some digestive enzymes. What are you thought on those? I’m curious if you managed to go into full remission from your Ménière’s disease? Thank you so much for your thoughtful insight. I know that building back up my gut health and immune health will help in so many ways as well as protecting me from many other major diseases as I go into my 60s and beyond. 
    • Scott Adams
      Any bad experience with King Arthur Gluten-free bread flour

      By Scott Adams · Posted

      You are right! The logo the have on their packages got me confused--it looks like they are less than 20ppm, not certified GF. Thanks for catching that! My brain also zeroed in on this "less than 10ppm" but I should have seen the rest...
    • Wheatwacked
      Still unsure.....

      By Wheatwacked · Posted

      Zinc glyconate lozenges (Cold Eeze) helps fight off viral respiratory infections by coating the mucous membrane cells to protect them from virus.  Zinc is an antiviral essential mineral. Choline deficieicy can be the cause of Non Alcoholic Fatty Liver Disease.  It is estimated by some experts that less than 10% eat the minimum RDA of around 450 mg.  It has also been connected to gallbladder disease.  Brain fog and high homosystein blood level is an independant indicator of cardiovascular disease. Eggs and red meat are the primary sources.  Three eggs or 10 cups of cooked brocolli a day.  Low vitamin D is a common denominator of autoimmune disease.  Is it a contributing factor or a result? I think that low vitamin D is maybe the main contributing factor.  Low vitamin D allows the immune system to run amuck. I would like to point out the many diagnosed with Celiac Disease went through several misdiagnoses, like gall bladder disease, and were repeatedly tested negative and then one day tested positive. Regardless of your diagnosis, you should avoid gluten, you mention it in your first post : "When I eat gluten I get a lot of mucus with my stool and most of the times it’s quite thin. As soon as I take gluten away from my diet my stool becomes normal". It can take six months to several years to heal completely.  How long I believe is directly related to how quickly you identify deficiencies and correct. Essential to my recovery:  Thiamine, 10,000 IU vitamin D3 a day, maintaining 25(OH)D at 80 ng/dl (200 nmole/L), 600 mcg Liquid Iodine, Phosphatidyl Choline.  And of course: Gluten Free.
×
×
  • Create New...