Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone In Southern Usa


confused

Recommended Posts

confused Community Regular

I need any regular information on valley fever. I have looked it up, but wanted to know if anyone has known someone with this disease. I had never heard of it til last night.

I guess that is what started my bil problem, and then it turned into fungal menigitsis, he finally got an new dr that is letting the family know the truth besides his old dr.

And people wonder why i hate drs.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ptkds Community Regular

I found this article. I didn't read it, but it looked like it was full of info. I just did a search on the name, and it brought up a bunch of stuff. I hope your BIL gets better soon.

Open Original Shared Link

ptkds

UR Groovy Explorer

Hi,

My sister contracted valley fever when we lived in Bakersfield. It comes from certain spores that are airborn in desert areas (from what I know). She underwent treatement for a while and had a couple of joint surgeries (her case was pretty severe though).

Just to calm you about this, after her treatments and surgeries, she recovered well. She's strong, healthy, and now has 3 awesome kids. She's never had any problems from it since then.

Take care

mouse Enthusiast

It is airborne and that is why all the construction jobs are required to water the soil when they dig. The spoors can also become airborne after a rain. Antibiotics are necessary and PLENTY of rest. Your BIL should not over extend himself during the recovery. It can cause lots of damage if allowed to run unchecked and without the proper treatment. Animals also get Valley Fever.

confused Community Regular
Hi,

My sister contracted valley fever when we lived in Bakersfield. It comes from certain spores that are airborn in desert areas (from what I know). She underwent treatement for a while and had a couple of joint surgeries (her case was pretty severe though).

Just to calm you about this, after her treatments and surgeries, she recovered well. She's strong, healthy, and now has 3 awesome kids. She's never had any problems from it since then.

Take care

was hers the dissemented type were it affects all of the body. And did she get the pnemonia with it?

Did she sleep like all the time and never want to eat?

I am so hoping he does recover, but it seems like too many of his organs are really bad. I know the drs said if he can eat he will get better, but he wont eat and that is what scares me.

Was your sister in the hospital with it, or did she jsut recover at home.

paula

confused Community Regular
It is airborne and that is why all the construction jobs are required to water the soil when they dig. The spoors can also become airborne after a rain. Antibiotics are necessary and PLENTY of rest. Your BIL should not over extend himself during the recovery. It can cause lots of damage if allowed to run unchecked and without the proper treatment. Animals also get Valley Fever.

We are thinking he has had it for a very long time cause he has been in colorado since june. And we are kinda thinking he didnt get it in new mexico but in arizonia were he hasnt lived for almost 2 years.

He tried to get out of bed yesterday and just collapsed, but he really hasnt ate in a month, so not sure if he is weak from that or from the disease.

paula

confused Community Regular
I found this article. I didn't read it, but it looked like it was full of info. I just did a search on the name, and it brought up a bunch of stuff. I hope your BIL gets better soon.

Open Original Shared Link

ptkds

thanks pt, i think i read that one this morning

I guess i was just hoping i could find something that would tell me like accurate survival time.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



UR Groovy Explorer

Hi Paula,

It was so long ago, but I know this much:

The first part of her treatment was with Amphotericin. It was a pretty rough road. She lost a lot of weight. She's 6 feet tall and her weight plummeted to about 115 by the time treatment was done (her normal weight is about 155).

After her treatments, I believe she was usually held overnight for observation (if I remeber 23 years back correctly).

It manifested in her joints, which is why she had the surgeries. I believe it always begins with the lungs and then travels to different areas of the body depending. She may very well have had pneumonia - I just don't remember (and this isn't something I'd bring up with her - reminders of a difficult time and all).

She was extremely weak and run down during this time. We were very concerned about whether she would make it through or not (mainly because she just got so darned skinny). She did. But, it was a long road. She wasn't really fully recovered for at least a year or so.

I hope that with proper care, plenty of TLC, a good attitude, and a good specialist, he'll be okay. Like I said, she's soooo fine now - strong as a horse with no organ problems - in fact, I think it's ironic that she had Amphotericin treatments and I have kidney disease. Be good to him and know that he'll need help while he's recovering - and lots of positive energy around him. I hope your bil will be just as well as she is. I'm sorry your family will be dealing with this.

Take care of you and him

k

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to science enthusiast Christi's topic in Coping with Celiac Disease
      1

      Sugar intolerance 10 years into gluten-free diet

    2. - science enthusiast Christi posted a topic in Coping with Celiac Disease
      1

      Sugar intolerance 10 years into gluten-free diet

    3. - trents replied to Healthierbody2026's topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

    4. - Healthierbody2026 posted a topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,462
    • Most Online (within 30 mins)
      7,748

    jjwejackso
    Newest Member
    jjwejackso
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @science enthusiast Christi! I don't have a problem with disaccharides but I do with polysaccharides and complex carbohydrates which are so common in many gluten free processed foods. Gar gum, xanthan gum, pea fiber, chicory root, inulin etc. All those "prebiotics". 
    • science enthusiast Christi
      Hey Celiac friends,  I'm wondering how weird I am. About a year ago, I started getting bloated all the time and having extremely smelly gas. Lots of it. I had to avoid people, keep windows open, etc. It really upended my life in a somewhat horrifying way. I figured out that if I didn't eat any sugar, the symptoms mostly resolved. With more experimentation, I found out that I'm intolerant to any disaccharides (things with sucrose, maltose) and some starches. I've since figured my small intestine stopped making some digestive enzymes. Since Celiac causes the immune system to attack the small intestine, I wonder if I was getting low-level gluten contamination from my environment. (My family eats gluten in our home, and I have to use a shared kitchen at work for lunch.)  I am apparently among the 2% of Celiacs who also have a similar reaction to soy. I've been avoiding both gluten and soy for over a decade now, but sometimes you just get poisoned. For example, I love my houseplants and bought an insect-preventing spray online. After spraying it on all my houseplants, I found out it has soybean oil. Sure enough, two days later I was sick. Soy is such a big ingredient used in everything, I doubt it's possible for me to avoid it completely. Everyone uses lotions with soy on their hands, so every doorknob and switch and item I touch is risky for me.  I was just wondering, has anyone else had carbohydrate intolerance after or related to Celiac? My doctor doesn't know anything about it, especially since I can still digest lactose. Wondering if there are other people out there with similar stories. If eating was complicated before, now it's a bit crazy to be honest.  Thanks, Community! 
    • trents
      Welcome to the celiac.com community, @Healthierbody2026! Just let me check something with you because there is still much confusion in the general population regarding the terminology associated with gluten disorders. You say you have recently been diagnosed with gluten sensitivity. Do you mean NCGS (Non Celiac Gluten Sensitivity) or Celiac disease (aka, "gluten intolerance")? The symptoms of these two conditions overlap. Celiac disease has an autoimmune base and so, there are tests that can be run to detect antibodies in the blood that are produced. Celiac disease does damage to the small bowel lining because of the inflammation present from the autoimmune attack. This is not the case with NCGS for which there are no tests. Celiac disease must first be ruled out in order to arrive at a diagnosis of "gluten sensitivity". 
    • Heatherisle
    • Healthierbody2026
      Hi I was recently diagnosed with gluten sensitivity I’m very new at this and trying learn everything I can about everything dealing with this any advice suggestions would be appreciated 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.