Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Does This Work?

NoSugarShell

Recommended Posts

NoSugarShell Explorer
NoSugarShell
Posted

I suspect that I have some kind of gluten intolerance so I have eliminated it from my diet. Over the years I have had so many different symptoms that seem to go right along with Celiac disease and I have an uncle that has been diagnosed with it.

Today is my 6th day. I felt great the first couple of days even though had a slight headache both days but now I feel run down and another headache. I lost 3 pounds in the first 4 days and my appetite really decreased (loved that one). Has anyone experienced this? Am I on the right track. I am sticking to just basic foods to be safe. Meat, cheese (very little), vegetables, fruits, and water.

If anyone has any advice or insight for me please I am all ears.

Sincerely,

Michelle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elye Community Regular
elye
Posted

Hi, Michelle,

I know that many of us experienced a real roller coaster of ups and downs on the road to recovery, (and still are!) with big swings sometimes even day to day. A lot of celiacs don't feel completely "well" for a year after going gluten-free. You may be suffering from malabsorption, and that could explain the run-down feeling. Getting blood work done is probably a good idea. Hang in there, and welcome! :)

EBsMom Apprentice
EBsMom
Posted
Today is my 6th day. I felt great the first couple of days even though had a slight headache both days but now I feel run down and another headache. I lost 3 pounds in the first 4 days and my appetite really decreased (loved that one). Has anyone experienced this? Am I on the right track. I am sticking to just basic foods to be safe. Meat, cheese (very little), vegetables, fruits, and water.

Michelle, I had a "detox" period when I gave up gluten, and it lasted for a couple of weeks. At the worst of it, I had body aches and an awful headache, like I was getting the flu. I felt vaguely nauseous, had no appetite, and had a head fog as thick as pea soup. Then one day, near the end of the second week, it all lifted and I started feeling better. It still took a few weeks to normalize completely, for me, but I never again felt as badly as I did for those 2 weeks. It could be that you're going through something similar. Both of my kids experienced gluten "withdrawal" as well, so I don't think it's uncommon. Drink lots of water!!! Hope you feel better soon!

Rho

jewi0008 Contributor
jewi0008
Posted
Michelle, I had a "detox" period when I gave up gluten, and it lasted for a couple of weeks. At the worst of it, I had body aches and an awful headache, like I was getting the flu. I felt vaguely nauseous, had no appetite, and had a head fog as thick as pea soup. Then one day, near the end of the second week, it all lifted and I started feeling better. It still took a few weeks to normalize completely, for me, but I never again felt as badly as I did for those 2 weeks. It could be that you're going through something similar. Both of my kids experienced gluten "withdrawal" as well, so I don't think it's uncommon. Drink lots of water!!! Hope you feel better soon!

Rho

I agree, I'm always really bad for 2 weeks after as well. It's literally on the 13th or 14th day that things start to disappear. I wonder why that timing is?!

NoSugarShell Explorer
NoSugarShell
Posted
  • Author

Thank you for the reply's. It really helps in motivating me to stick with it. I can't wait for the two week mark. :D

JNBunnie1 Community Regular
JNBunnie1
Posted

I second getting a blood panel for nutrients done, and maybe sarting now with some Vitamin B, since everyone with Celiac seems to feel better taking it.

Kitty Cat Newbie
Kitty Cat
Posted
Hi, Michelle,

I know that many of us experienced a real roller coaster of ups and downs on the road to recovery, (and still are!) with big swings sometimes even day to day. A lot of celiacs don't feel completely "well" for a year after going gluten-free. You may be suffering from malabsorption, and that could explain the run-down feeling. Getting blood work done is probably a good idea. Hang in there, and welcome! :)

I didn't know this I been almost gluten free since last Friday (3 crakers, 2 small cookies and maybe something else). And I've been feeling like poo. I do work out almost everyday sometime twice a day. So keeping my energy level up is hard.

going to the GI tomorrow to talk about my problems.

You go NoSugarShell :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.