Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low Vitamin D Levels

horsegirl

By horsegirl
in Coping with Celiac Disease

Recommended Posts

horsegirl Enthusiast
horsegirl
Posted

I recently asked my doctor to test my vitamin B12 and vitamin D levels since I'm "free" of several

different major food groups now. My B12 was in the "normal" range, but the D was quite low

("optimum functioning" is 35, & I was 18). The doctor recommended bumping up my intake to 1200 units daily. But how do I do that? Supplements? Certain foods?

Any suggestions?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

Mine was also just tested and found to be below optimal. They're having me take a vitamin D3 supplement with 50,000 IU of Vitamin D3...I'm taking one of those a day for a month...don't know what happens after that though, I need to ask tomorrow. She said the idea behind the megadose is to "flood the receptors" whatever that means. I don't think I could get that much with just food alone. You might call your doctor and ask about the best way to get it.

hathor Contributor
hathor
Posted

I believe someone recently posted a link to an article about how D3 supplements are better than the usual D2 ones.

A number of foods are supplemented with D. I see my hemp milk has D2 and my orange juice has D3.

I wouldn't recommend taking more than what your doctor personally prescribes. You don't want to overdose.

Do you get much sunlight? This is the way humans have traditionally gotten their Vitamin D. Here's an article I recently read:

Open Original Shared Link

Nancym Enthusiast
Nancym
Posted

This site has some good information: Open Original Shared Link

This cardiac doctor blogs about the importance of D3 and has specific recommendations on which sort to take in this posting: Open Original Shared Link

JNBunnie1 Community Regular
JNBunnie1
Posted

I'd try an hour outside in the sun every day. Of course, some of us don't have the time for that (ha ha) but it's a noble idea.

Ursa Major Collaborator
Ursa Major
Posted

Unless you live quite near the equator, you won't get enough vitamin D through sun in the winter, no matter how long you stay in the sun.

The best and healthiest source of vitamin D is still good old cod liver oil. And there is a good tasting one now that even tastes good, not fishy. I am taking Carlson cod liver oil, and went from 24 to 150 within a year, and had to cut back, as it was getting too high. Optimal is about 120.

Cod liver oil gives you also high doses of omega 3 fatty acids, which are essential to health, as well as vitamin A and E.

elye Community Regular
elye
Posted
Unless you live quite near the equator, you won't get enough vitamin D through sun in the winter, no matter how long you stay in the sun.

The best and healthiest source of vitamin D is still good old cod liver oil. And there is a good tasting one now that even tastes good, not fishy. I am taking Carlson cod liver oil, and went from 24 to 150 within a year, and had to cut back, as it was getting too high. Optimal is about 120.

Cod liver oil gives you also high doses of omega 3 fatty acids, which are essential to health, as well as vitamin A and E.

I'm with Ursula...it's cheap, too!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted
I'm with Ursula...it's cheap, too!

Oh yeah, that! I forgot about the whole winter thing...

I got glutened this past weekend, my IQ still hasn't recovered. I take Dr Ron's cod liver oil, but it's pretty expensive, Carlson is the next best. And you said it doesn't taste bad?

dlp252 Apprentice
dlp252
Posted

I've tried taking a few different brands of EFAs (essential fatty acids) and fish oils and haven't tolerated any of them (also tried Flax seed oil and meal and hemp for some Omega 3s with no luck in the tolerance department)...I'm wondering if the cod liver would do any better for me? :unsure: Just thinking in cyberspace. :P

Ursa Major Collaborator
Ursa Major
Posted
I got glutened this past weekend, my IQ still hasn't recovered. I take Dr Ron's cod liver oil, but it's pretty expensive, Carlson is the next best. And you said it doesn't taste bad?

Carlson cod liver oil is lemon flavoured, and really doesn't taste bad. My husband claims it tastes great, I wouldn't go that far myself. But I am one of those people who will absolutely not take anything that tastes bad (I just can't make myself stick with something I hate). So, if I've taken it for two years now, you better believe it tastes okay!

Gentleheart Enthusiast
Gentleheart
Posted

Before I found out I was intensely intolerant of dairy, I enjoyed adding a tablespoon of Carlson's lemon cod liver oil to 8 oz. of plain yogurt, along with a packet of Stevia Plus (or some other acceptable sweetener). It tasted like a wonderful lemon pudding! Honestly. It may sound bad, but it's actually really good! I miss it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,677
    • Most Online (within 30 mins)
      7,748
    Nancy Magil
    Newest Member
    Nancy Magil
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.