Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question (request) Re Aspergers


Canadian Karen

Recommended Posts

Canadian Karen Community Regular

A poster on the parenting forum I belong to has posted this question:

Hi all!

Just wondering if anyone has some good book titles on aspergers. I was just told about one called the Asperger answer book - by Susan Ashley - i hear some very specifec questions are answered, covering a variety of things. I also heard about a book that has a group of different families with kids(s) on the spectrum telling their stories, and what they do, etc.- it may be called living with autism ? - anyone have any info ?

I know there are several Asperger's experts on here. Could anybody suggest any books?

Thanks!

Hugs

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Karen, ya know Ursa's one of the experts here. I am sure she can be helpful.

Canadian Karen Community Regular

Yeah, she's the main one I was thinking of.....

:D

Ursa Major Collaborator

Okay, fine, here I am! :rolleyes:

Most of the books I have are about/for adults with AS, as I am the one with it, and my kids may have some tendencies, but none of them are even close to actually having AS.

I'll list all of the books I have (except for one, which I decidedly didn't like and don't think is helpful).

Asperger Syndrome and Sensory Issues, Practical Solutions for Making Sense of the World!, by Brenda Smith Myles, Katherine Tascott Cook, Nancy E Miller, Louann Rinner and Lisa A. Robbins. Very good book that helps understand the sensory problems people with AS experience.

Children, Youth and Adults with Asperger Syndrome, Integrating Multiple Perspectives. Edited by Kevin P. Stoddart (who wrote one section as well as editing, and is the one who diagnosed me). It has about 25 different contributors, and therefore approaches AS from different perspectives.

The Genesis of Artistic Creativity, Asperger's Syndrome and the Arts, by Michael Fitzgerald. Showing that people with AS are some of the most creative people on this planet when it comes to writing, inventing, painting, music etc., and giving evidence that would 'diagnose' many great people today. This book shows the strengths of Aspies, rather than always harping about their 'deficiencies' (I call it 'being different' myself, too bad that many people don't like people that don't fit their mold, and they think they need to fix them).

Born on the Wrong Planet, by Erika Hammerschmidt. Autobiography of a young woman with AS and TS (Tourette Syndrome), telling about her problems and triumphs. Excellent read and eye opening.

Pretending to be Normal, Living with Asperger's Syndrome, by Liane Holliday Willey. Interesting read, even though she isn't really autistic enough to be considering herself an Aspie, as far as I am concerned.

Congratulations! It's Asperger Syndrome, by Jen Birch. I read that and cried, as so many of her awful experiences happened to me too, because of being so naive and not recognizing danger to myself (strangely, I can spot danger for my kids, but I am oblivious to situations that put myself in danger, I simply don't recognize them). This is another autobiography, and definitely worth reading. A real eye opener as well. Open Original Shared Link

Solutions for Adults with Asperger Syndrome, Maximizing the Benefits, Minimizing the Drawbacks, to Achieve Success, by Juanita P. Lovett, PH.D. Very helpful and insightful! And not boring at all.

The Other Half of Asperger Syndrome, A guide to living in an intimate relationship with a partner who has Asperger Syndrome, by Maxine Aston. Invaluable for the open-minded spouse/partner of somebody with AS (too bad my husband is not open minded, and therefore this wasn't helpful to him). An excellent book.

Aspergers in Love, Couple Relationships and Family Affairs, by Maxine Aston. Keeps going where the previous book leaves off, invaluable for couples who have one or both partners with AS.

Asperger Syndrome and Long-Term Relationships, by Ashley Stanford. Amazing book, well worth reading.

In addition, go to Tony Attwood's website for a ton of invaluable information. He is one of the leading experts on AS in the world (he is in Australia). Open Original Shared Link

Also, check out the website of the other leading specialist (this one is in England) Open Original Shared Link

There, that ought to keep you guys busy for a while!

Canadian Karen Community Regular

Thanks Ursa! Your reply was extremely helpful and she was quite thankful!

Hugs

Karen

ravenwoodglass Mentor
Okay, fine, here I am! :rolleyes:

Most of the books I have are about/for adults with AS, as I am the one with it, and my kids may have some tendencies, but none of them are even close to actually having AS.

I'll list all of the books I have (except for one, which I decidedly didn't like and don't think is helpful).

Asperger Syndrome and Sensory Issues, Practical Solutions for Making Sense of the World!, by Brenda Smith Myles, Katherine Tascott Cook, Nancy E Miller, Louann Rinner and Lisa A. Robbins. Very good book that helps understand the sensory problems people with AS experience.

Children, Youth and Adults with Asperger Syndrome, Integrating Multiple Perspectives. Edited by Kevin P. Stoddart (who wrote one section as well as editing, and is the one who diagnosed me). It has about 25 different contributors, and therefore approaches AS from different perspectives.

The Genesis of Artistic Creativity, Asperger's Syndrome and the Arts, by Michael Fitzgerald. Showing that people with AS are some of the most creative people on this planet when it comes to writing, inventing, painting, music etc., and giving evidence that would 'diagnose' many great people today. This book shows the strengths of Aspies, rather than always harping about their 'deficiencies' (I call it 'being different' myself, too bad that many people don't like people that don't fit their mold, and they think they need to fix them).

Born on the Wrong Planet, by Erika Hammerschmidt. Autobiography of a young woman with AS and TS (Tourette Syndrome), telling about her problems and triumphs. Excellent read and eye opening.

Pretending to be Normal, Living with Asperger's Syndrome, by Liane Holliday Willey. Interesting read, even though she isn't really autistic enough to be considering herself an Aspie, as far as I am concerned.

Congratulations! It's Asperger Syndrome, by Jen Birch. I read that and cried, as so many of her awful experiences happened to me too, because of being so naive and not recognizing danger to myself (strangely, I can spot danger for my kids, but I am oblivious to situations that put myself in danger, I simply don't recognize them). This is another autobiography, and definitely worth reading. A real eye opener as well. Open Original Shared Link

Solutions for Adults with Asperger Syndrome, Maximizing the Benefits, Minimizing the Drawbacks, to Achieve Success, by Juanita P. Lovett, PH.D. Very helpful and insightful! And not boring at all.

The Other Half of Asperger Syndrome, A guide to living in an intimate relationship with a partner who has Asperger Syndrome, by Maxine Aston. Invaluable for the open-minded spouse/partner of somebody with AS (too bad my husband is not open minded, and therefore this wasn't helpful to him). An excellent book.

Aspergers in Love, Couple Relationships and Family Affairs, by Maxine Aston. Keeps going where the previous book leaves off, invaluable for couples who have one or both partners with AS.

Asperger Syndrome and Long-Term Relationships, by Ashley Stanford. Amazing book, well worth reading.

In addition, go to Tony Attwood's website for a ton of invaluable information. He is one of the leading experts on AS in the world (he is in Australia). Open Original Shared Link

Also, check out the website of the other leading specialist (this one is in England) Open Original Shared Link

There, that ought to keep you guys busy for a while!

Thanks so much for posting these. I will be picking up the at least a couple of these for myself and my DS. The one on Aspergers and the Arts will be quite valuable for us. My DS is very gifted but he still struggles a great deal. The diet helps an unbelievable amount but as you know it is not a 'cure'. Although some things can be a real struggle, especially in the social world, it does (at least in my family) seem to go with creative abilities that are not something we would want to go away. It would be great if somehow my DS and I could be more comfortable and feel less alone.

  • 3 months later...
stan Newbie

Hi,

I have read the Aspergers answer book and found it very helpful, it covers many practical day to day issues with simple easy to follow ideas and solutions for each. It is written so that it can be used as a reference. I have found myself referring to it for all kinds of situations.

Bon chance

Stan

A poster on the parenting forum I belong to has posted this question:

Hi all!

Just wondering if anyone has some good book titles on aspergers. I was just told about one called the Asperger answer book - by Susan Ashley - i hear some very specifec questions are answered, covering a variety of things. I also heard about a book that has a group of different families with kids(s) on the spectrum telling their stories, and what they do, etc.- it may be called living with autism ? - anyone have any info ?

I know there are several Asperger's experts on here. Could anybody suggest any books?

Thanks!

Hugs

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,681
    • Most Online (within 30 mins)
      7,748

    Donna Ybarra
    Newest Member
    Donna Ybarra
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.