Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Intolerant And I Ate Cottage Cheese

SUZ42

By SUZ42
in Coping with Celiac Disease

Recommended Posts

SUZ42 Explorer
SUZ42
Posted

I am casein intolerant and have gone very light on the casein, but have not given it up completely. Last March I went gluten free and casein light. For the first time since March I ate cottage cheese. Only 1/2 cup. Within minutes my tongue was sore (geographic tongue) and today I have undereye bags, hand is numb, lump in throat, chest/back pressure, rapid pounding heart beat and cramping stomach (not intestines). Very same symptoms as when I was gluttened! Could the cottage cheese have done this? The only other possibility would be the egg drop soup (I gave in to a craving) I ate from the chinese place the day before yesterday. But what could that have in it? Anyone have ideas about casein symptoms? Are they the same as Gluten symptoms? :(

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mom23boys Contributor
Mom23boys
Posted
I am casein intolerant and have gone very light on the casein, but have not given it up completely. Last March I went gluten free and casein light. For the first time since March I ate cottage cheese. Only 1/2 cup. Within minutes my tongue was sore (geographic tongue) and today I have undereye bags, hand is numb, lump in throat, chest/back pressure, rapid pounding heart beat and cramping stomach (not intestines). Very same symptoms as when I was gluttened! Could the cottage cheese have done this? The only other possibility would be the egg drop soup (I gave in to a craving) I ate from the chinese place the day before yesterday. But what could that have in it? Anyone have ideas about casein symptoms? Are they the same as Gluten symptoms? :(

Thanks

Casein symptoms can vary. You may think about getting testing done for casein. It sounds like you had a rather intense reaction.

hathor Contributor
hathor
Posted

I can tell you from experience that having a lot of casein after not having much can make you sick. I've been on a pretty much vegan diet for years, but had little bits of casein from time to time. (OK, the restaurant put parmesan cheese on my dish, I didn't send it back -- that sort of thing.) At Thanksgiving, I had a slice of cheesecake (this was before I tested as intolerant to casein). I was sick for a week.

Symptoms can vary. My gluten and casein reactions are similar. My soy reaction is subtle. My egg reaction is actually the worst of the bunch. But then people all seem to react in different ways.

However, you could be reacting to the egg drop soup. I googled for recipes and found some contain wheat flour for thickening. Also, could it have contained MSG? Some react rather strongly to that.

I hope you get feeling better.

hathor Contributor
hathor
Posted

Deletion of inexplicable double post ...

horsegirl Enthusiast
horsegirl
Posted

Are you sure the cottage cheese was gluten free? Not all brands are, from research I've done in the past. Also, could the soup have had MSG in it? Maybe that's another sensitivity (or the eggs themselves). Good luck - hope you feel better soon!

7-cody Apprentice
7-cody
Posted
Are you sure the cottage cheese was gluten free? Not all brands are, from research I've done in the past. Also, could the soup have had MSG in it? Maybe that's another sensitivity (or the eggs themselves). Good luck - hope you feel better soon!

I was going to say the same thing.

"Word."

tom Contributor
tom
Posted
I am casein intolerant and have gone very light on the casein, but have not given it up completely.

Suz . . .gotta tell ya - I don't understand this at all.

Why not completely?

I've been 100% dairy-free for years and it's a breeze.

I DID recently find that goat cheese is fine for me. It seems pretty common for the casein-intolerant to really just have trouble w/ cow casein.

Every goat cheese I've tried has been fantastic, tho I'm only trying 'fresh' varieties, as opposed to 'aged', but that's due to a different problem w/ mold.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748
    kyle68j
    Newest Member
    kyle68j
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...