Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Intolerant And I Ate Cottage Cheese


SUZ42

Recommended Posts

SUZ42 Explorer

I am casein intolerant and have gone very light on the casein, but have not given it up completely. Last March I went gluten free and casein light. For the first time since March I ate cottage cheese. Only 1/2 cup. Within minutes my tongue was sore (geographic tongue) and today I have undereye bags, hand is numb, lump in throat, chest/back pressure, rapid pounding heart beat and cramping stomach (not intestines). Very same symptoms as when I was gluttened! Could the cottage cheese have done this? The only other possibility would be the egg drop soup (I gave in to a craving) I ate from the chinese place the day before yesterday. But what could that have in it? Anyone have ideas about casein symptoms? Are they the same as Gluten symptoms? :(

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mom23boys Contributor
I am casein intolerant and have gone very light on the casein, but have not given it up completely. Last March I went gluten free and casein light. For the first time since March I ate cottage cheese. Only 1/2 cup. Within minutes my tongue was sore (geographic tongue) and today I have undereye bags, hand is numb, lump in throat, chest/back pressure, rapid pounding heart beat and cramping stomach (not intestines). Very same symptoms as when I was gluttened! Could the cottage cheese have done this? The only other possibility would be the egg drop soup (I gave in to a craving) I ate from the chinese place the day before yesterday. But what could that have in it? Anyone have ideas about casein symptoms? Are they the same as Gluten symptoms? :(

Thanks

Casein symptoms can vary. You may think about getting testing done for casein. It sounds like you had a rather intense reaction.

hathor Contributor

I can tell you from experience that having a lot of casein after not having much can make you sick. I've been on a pretty much vegan diet for years, but had little bits of casein from time to time. (OK, the restaurant put parmesan cheese on my dish, I didn't send it back -- that sort of thing.) At Thanksgiving, I had a slice of cheesecake (this was before I tested as intolerant to casein). I was sick for a week.

Symptoms can vary. My gluten and casein reactions are similar. My soy reaction is subtle. My egg reaction is actually the worst of the bunch. But then people all seem to react in different ways.

However, you could be reacting to the egg drop soup. I googled for recipes and found some contain wheat flour for thickening. Also, could it have contained MSG? Some react rather strongly to that.

I hope you get feeling better.

hathor Contributor

Deletion of inexplicable double post ...

horsegirl Enthusiast

Are you sure the cottage cheese was gluten free? Not all brands are, from research I've done in the past. Also, could the soup have had MSG in it? Maybe that's another sensitivity (or the eggs themselves). Good luck - hope you feel better soon!

7-cody Apprentice
Are you sure the cottage cheese was gluten free? Not all brands are, from research I've done in the past. Also, could the soup have had MSG in it? Maybe that's another sensitivity (or the eggs themselves). Good luck - hope you feel better soon!

I was going to say the same thing.

"Word."

tom Contributor
I am casein intolerant and have gone very light on the casein, but have not given it up completely.

Suz . . .gotta tell ya - I don't understand this at all.

Why not completely?

I've been 100% dairy-free for years and it's a breeze.

I DID recently find that goat cheese is fine for me. It seems pretty common for the casein-intolerant to really just have trouble w/ cow casein.

Every goat cheese I've tried has been fantastic, tho I'm only trying 'fresh' varieties, as opposed to 'aged', but that's due to a different problem w/ mold.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,566
    • Most Online (within 30 mins)
      7,748

    Rrenee2990
    Newest Member
    Rrenee2990
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.