Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Severity Of Symptoms Related To Sensitivity Toward Gluten?


lilgreen

Recommended Posts

lilgreen Apprentice

My symptoms aren't severe, but I'm wondering if that means that it likely requires more gluten for me to show symptoms than for someone with severe symptoms.

I'm wondering because I haven't gotten an official diagnosis, so I'm still second-guessing myself. It's in my family and my son was just diagnosed and every time I've been tested I've been on a gluten-restricted diet, so I've had negative results. I've been feeling notably better since going strictly gluten-free and I'd only had one notable instance of symptoms, which I think I traced to some chips I ate.

But, yesterday I had full-out stomach pains like I hadn't had in ages - not since going gluten-free - and I used to get them often. But I can't think of what I ate. The only possible thing was that I noticed the corn cereal I ate says "produced in a plant that processes wheat." I've been eating this cereal (without realizing this, obviously) for weeks without a reaction, though.

So, if the bowl of cereal I ate yesterday had a trace of wheat, could that really have cause my stomach pains? I know some people are super sensitive, but I always thought they also had super severe symptoms. Also, I know in the recent past I've accidentally used margarine with wheat bread crumbs in it for my toast with no reaction. So, can my reactions be this inconsistent, too?

Ahhh! I'm starting to think I should just go hard core gluten for three-four months to get a proper test done. But then I know how bad I'd feel. What gives??

This has turned into a ridiculously long post for something so basic... sorry! And, thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

It's my understanding that for many people the longer they are gluten-free the more sensitive they get. Perhaps that box had more CC than others???

Darn210 Enthusiast

If you've been eating out of the same box . . . I wouldn't think so. Don't forget that sometimes, you can have stomach pains without it being caused by gluten. Did you have any spicy food or questionable leftovers?

Could also be a delayed reaction from the day before.

Could also be something totally not expected . . . I just realized the other day that I needed to throw out the kids' old chapsticks - because they were using them before they went gluten free and may have contaminated them.

You can always do a trial of not eating out of the box for awhile and then having some cereal to see if you set it off again.

2kids4me Contributor
My symptoms aren't severe, but I'm wondering if that means that it likely requires more gluten for me to show symptoms than for someone with severe symptoms.

Outward symptoms are no indciation of the damage that may be occuring in your intestine. My son did not have any serious symptoms - only vague complaints that in hindsight were from undiagnosed celiac). His intestine was a mess - visible damage during endoscopy. His sister was diagnosed first - we were only testing him because GI recommended testing family members...

Sandy

elye Community Regular

I can second that...I had no obvious GI symptoms when I was diagnosed (it was a miracle I even was diagnosed) through the blood panel, and the ensuing biopsy showed significant damage. I now get the abdominal cramping and bloating if I accidentally consume gluten, because my lower intestine has healed and I now really feel it. And it can be fairly intense cramps from just cross-contamination...a few bread crumbs, even.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

    2. - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    4. - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748

    Michelle C.
    Newest Member
    Michelle C.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.