Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Severity Of Symptoms Related To Sensitivity Toward Gluten?


lilgreen

Recommended Posts

lilgreen Apprentice

My symptoms aren't severe, but I'm wondering if that means that it likely requires more gluten for me to show symptoms than for someone with severe symptoms.

I'm wondering because I haven't gotten an official diagnosis, so I'm still second-guessing myself. It's in my family and my son was just diagnosed and every time I've been tested I've been on a gluten-restricted diet, so I've had negative results. I've been feeling notably better since going strictly gluten-free and I'd only had one notable instance of symptoms, which I think I traced to some chips I ate.

But, yesterday I had full-out stomach pains like I hadn't had in ages - not since going gluten-free - and I used to get them often. But I can't think of what I ate. The only possible thing was that I noticed the corn cereal I ate says "produced in a plant that processes wheat." I've been eating this cereal (without realizing this, obviously) for weeks without a reaction, though.

So, if the bowl of cereal I ate yesterday had a trace of wheat, could that really have cause my stomach pains? I know some people are super sensitive, but I always thought they also had super severe symptoms. Also, I know in the recent past I've accidentally used margarine with wheat bread crumbs in it for my toast with no reaction. So, can my reactions be this inconsistent, too?

Ahhh! I'm starting to think I should just go hard core gluten for three-four months to get a proper test done. But then I know how bad I'd feel. What gives??

This has turned into a ridiculously long post for something so basic... sorry! And, thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

It's my understanding that for many people the longer they are gluten-free the more sensitive they get. Perhaps that box had more CC than others???

Darn210 Enthusiast

If you've been eating out of the same box . . . I wouldn't think so. Don't forget that sometimes, you can have stomach pains without it being caused by gluten. Did you have any spicy food or questionable leftovers?

Could also be a delayed reaction from the day before.

Could also be something totally not expected . . . I just realized the other day that I needed to throw out the kids' old chapsticks - because they were using them before they went gluten free and may have contaminated them.

You can always do a trial of not eating out of the box for awhile and then having some cereal to see if you set it off again.

2kids4me Contributor
My symptoms aren't severe, but I'm wondering if that means that it likely requires more gluten for me to show symptoms than for someone with severe symptoms.

Outward symptoms are no indciation of the damage that may be occuring in your intestine. My son did not have any serious symptoms - only vague complaints that in hindsight were from undiagnosed celiac). His intestine was a mess - visible damage during endoscopy. His sister was diagnosed first - we were only testing him because GI recommended testing family members...

Sandy

elye Community Regular

I can second that...I had no obvious GI symptoms when I was diagnosed (it was a miracle I even was diagnosed) through the blood panel, and the ensuing biopsy showed significant damage. I now get the abdominal cramping and bloating if I accidentally consume gluten, because my lower intestine has healed and I now really feel it. And it can be fairly intense cramps from just cross-contamination...a few bread crumbs, even.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,124
    • Most Online (within 30 mins)
      7,748

    YaYa629
    Newest Member
    YaYa629
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.