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I Dont Understand

Shotzy1313

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Shotzy1313 Apprentice
Shotzy1313
Posted

I just came back with a positive blood work and now i am going for my biopsy at the end of the month. Anyway, I have been doing a lot of reading on these forums and educating myself about this disease because most likely I have it with all my symptoms and blood test.

My question I don

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buffettbride Enthusiast
buffettbride
Posted

Celiacs by nature are very food-sensitive. Because the gluten has unthoughtfully chopped the tips of your villi from your small intestine, it is very hard for your body to absorb nutrients, especially in hard to digest foods such as dairy (remember, cow's milk is supposed to be for baby cows!) and soy.

Some Celiacs have no problems with dairy or soy, but some do--especially when sticking to a faithful gluten free diet, but still not feeling their best, many find removing dairy and soy to be helpful to feel "normal" again.

Sure, it makes it a pain to eat, but it just depends on how you want to balance that with quality of life.

jerseyangel Proficient
jerseyangel
Posted

Dairy is a common problem for newly diagnosed Celiacs especially, because the tip of the villi that secrete lactase are damaged. This makes for a lactose intolerant situation--most times, it's temporary and after the villi have healed the person can resume dairy. My suggestion would be to forgo dairy for 3 months and then, if you want, try some and see how you do with it.

Celiacs can also be intolerant to the protein in dairy (casein) and the protein in soy. These are most likely caused by a leaky gut--and may be permanent, as the body reacts to the protein every time.

This is highly individual, though--I was intolerant to corn and after not consuming it for over a year, I can now tolerate it. I've not been as lucky with some of my other sensitivites.

Good luck with your biopsy :)

mtraezme Newbie
mtraezme
Posted

I've eliminated soy because it makes my gut feel almost like I've eaten gluten. If it makes me feel bad, I cut it out of my diet. ;) Everyone is different, you may not have problems with soy or dairy, but a lot of celiacs do.

Shotzy1313 Apprentice
Shotzy1313
Posted
  • Author

Thanks, I guess I am just worried when trying to go from glutened to gluten free because I don

ladybugs Newbie
ladybugs
Posted

:) Hi Kristin..

I am fairly new to this...I haven't officially been diagnosed yet...still waiting on enterolabs..but I am also almost 100 % positive I have at least gluten-intolerance. I looked on the Nutric Lab web page as I was very interested in the supplements you were referring too. However....I found that wheatgrass is one of the ingredients in the one that has 55 fruits and veggies. Isn't this something people with gluten sensitivity or celiacs should stay away from?

jmd3 Contributor
jmd3
Posted
:) Hi Kristin..

I am fairly new to this...I haven't officially been diagnosed yet...still waiting on enterolabs..but I am also almost 100 % positive I have at least gluten-intolerance. I looked on the Nutric Lab web page as I was very interested in the supplements you were referring too. However....I found that wheatgrass is one of the ingredients in the one that has 55 fruits and veggies. Isn't this something people with gluten sensitivity or celiacs should stay away from?

Wheat grass is something that I can not have with my celiac disease.... it is gluten to me

I had to eliminate dairy because my guts were still churning and it hurt so bad. If I am off for a while perhaps I can retry at a later date. I could hardly eat corn for a while....but now I can so far.

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    • Mari
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      By Mari · Posted

      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      Patiently Waiting to See Results

      By catsrlife · Posted

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
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    • Mari
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