Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ignorant Relative.....

LoveBeingATwin

Recommended Posts

LoveBeingATwin Enthusiast
LoveBeingATwin
Posted

Hi Everyone!

I haven't checked in for a while but new right where to go to get advise. Last night my ignorant cousin said something to me and I almost fell out of my chair. We were all having dinner...brought my own noodles so I too could enjoy the spahetti dinner. We were eating and she said to me " I cant wait to get sick like you so I can lose weight". I was almost dumb founded at first. I told her first of all I am not "sick" , secondly I have an autoimmune disorder wich obviously like everyone knows a modification in your diet is the only way to go and thirdly, I have never eaten so healthy since being diagnosed that I feel really good and I actually am starting to lose weight from all of the bloating, malabsoption, etc.

She was like "oh". I said you to could lose weight if you wanted to. First you would obviously need to change your diet. I told her I get to treat myself also, but I don't eat near as much junk and I use to. I just thought it was kind of rude, hence the lack of knowledge she has, that she would say I was sick. I have known people that have been sick, my friend with breast cancer, and I told her she should never wish upon herself or anyone for that matter for a sickness, just to lose weight. Let me tell you I piped right up after her comment to inform her of what is "really" wrong with me. I was not rude, yet I new I had to stick up for myself. At the end she was like, "ya, I guess that didn't sound right". I told her she needed to look up Celiac Disease so she new what was going on with me.

Just thought I would share with all of you because I know it has happened to you. Take care.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

I get that from my husband! Gain a few pounds, just eat a pizza and there goes the weight. Nice huh!

Family sucks sometimes! Eventually they wake up.

Glad to hear you explained life and included the little -stop eating the junk food and eat healthier and you too can drop some pounds. Perfect!

kbtoyssni Contributor
kbtoyssni
Posted

Nice job explaining why she doesn't want to be sick like you. I think people don't realize that this more than "oh, I got the flu and couldn't eat for three days and lost five pounds." It might be because most people didn't see how sick we were for so long. I used to stay in when I was very sick and tried to put on a happy face when I was just a little sick. The trade-off for losing weight by eating gluten is cancer, depression, brain fog, Alzheimer's, etc. That's not worth the weight lost, imo.

melmak5 Contributor
melmak5
Posted

I second the "you did a great job responding/explaining"

I think it is really telling about our society (I am making a broad-sweeping generalization here) that "thin" is so valuable that sickness and thin is preferable to healthy and fat. (even if there is a misunderstanding about the illness)

I cannot tell you how many people have come up to me and said "you don't LOOK sick" or complimented me on loosing weight or said "well, at least you are loosing weight, you cannot be mad at that"

I was not as classy as you and would respond with an extended fist: "why yes, it is FANTASTIC having to go to the bathroom, with urgency, 5-8x a day, I just LOVE this weight loss plan of eat and it feels like someone is punching me in the gut. Want to try?"

bakingbarb Enthusiast
bakingbarb
Posted

Very intresting how people respond. I think some people just don't get it. Wonder what else they just don't get. Actully my other half forgets all the time. I am not hurt by it, he is so good to me and I know he doesn't do to be mean. I mentioned that last night to him and his buddy says "you don't know men very well do you." He said they forget stuff literaly all the the time.

My ex husbands mother stayed with us once and I took her to get her hair cut. The girl doing the hair cut says something like, she has a terrible hair cut what do you expect me to do with this. She had been just able to grow her hair to barely neck lenght after cancer treatment. :angry: People choose to be ignorant but men I just don't know about them! LOL

Centa Newbie
Centa
Posted
I told her first of all I am not "sick" , secondly I have an autoimmune disorder wich obviously like everyone knows a modification in your diet is the only way to go and thirdly, I have never eaten so healthy

This is a hotbutton item for me, too. I've been called "disabled", too, and had my stories of recuperation waved away...creepy: they refused to acknowledge my return to wellbeing. What, they preferred me sickly?? Don't like that attitude....

That hairdresser was pretty insensitive, bakingbarb...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,953
    • Most Online (within 30 mins)
      7,748
    ramonaja
    Newest Member
    ramonaja
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.