Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got To Be More Careful And More Aware


Kathy'sUnicorns

Recommended Posts

Kathy'sUnicorns Apprentice

I've only been on a gluten free diet for a week now. I was at my sister-in-law's house Saturday and they got Famous Daves for dinner. I was like I can eat that stuff it's meat. I had three bites and was in such pain and discomfort. I started to read the barbeque sause packet and it has wheat in it. I know I'm new to this and won't know a lot of stuff that has gluten in it within the first week or two but I was totally not thinking and paid the price.

We had a potluck at work today and I brought a veggie platter with dip so I could have something to eat. Someone brought fried chicken so I had a piece with the skin removed and it didn't seem to bother me. My husband was teasing me about talking non-stop about gluten and what products have it and which don't (he has been great even found three or four things for me to try that are gluten free) have gluten. I guess we really do have to obsess about it for a while.

Thanks for letting me rant.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MNBeth Explorer
We had a potluck at work today ... Someone brought fried chicken so I had a piece with the skin removed and it didn't seem to bother me.

Oh, please don't do this! Whether you noticed a reaction or not, you definitely put gluten into your system when you ate that chicken. Your food must not come in contact with gluten-containing foods. Ever. At all. Gluten cannot be removed from any food item. Once it's there, that food is not for you.

It's mightily inconvenient, but very important.

Hang in there!

Beth

kbtoyssni Contributor

Please don't pick the breading off the chicken! There's no way you can get all the gluten off. Even if you don't feel sick, you are damaging your intestines.

It will sound like you're obsessing over what has gluten and what doesn't for the first few weeks. It takes a lot of research to get the hang of the diet! For now, I'd just bring your own safe food until you know what to look for when you're eating out.

codetalker Contributor
I guess we really do have to obsess about it for a while.

If you think obsessing is bad, wait until you start dreaming about gluten. I've had dreams where I'll eat something and suddenly realize that it contains gluten and I shouldn't be eating it.

Virgie Apprentice

This is very true. My daughter got glutened at a restaurant because a onion ring accidently got put into her fries. Even though they use a dedicated fryer for the french fries and we told them about Celiac and not having gluten, etc. And she did quit eating the fries the minute she saw the onion ring but still it had touched other fries that she had eaten. So we too will have to be more careful.

It does seem awfully inconvenient for us at the moment because we are still fairly new to the gluten-free lifestyle but we keep telling ourselves that after we learn more it will get easier.

Take care & please be careful :) .

Virgie

Oh, please don't do this! Whether you noticed a reaction or not, you definitely put gluten into your system when you ate that chicken. Your food must not come in contact with gluten-containing foods. Ever. At all. Gluten cannot be removed from any food item. Once it's there, that food is not for you.

It's mightily inconvenient, but very important.

Hang in there!

Beth

hathor Contributor

In addition to the gluten sticking to the chicken, how was the skin taken off? Using either your fingers or silverware, those things then get gluten on them. Your plate probably had gluten on it from the chicken sitting on it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

    2. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,399
    • Most Online (within 30 mins)
      7,748

    Hoyt Marquis
    Newest Member
    Hoyt Marquis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.