Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Interpreting Blood Work


borst

Recommended Posts

borst Newbie

Update after a little over 3 weeks on a gluten-free diet...

I've been as strict as possible and careful with CC.. but haven't really felt a positive change. I think i'm still continuing to lose weight as well which is disconcerting.

I have my GI appointment on monday, hoping to get somewhere with that.

I'm also starting to suspect candida as a possibility as well (my bowel symptoms began during a round of antibiotics)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Borst,

I don't remember......did you go dairy free as well.

Candida is often a problem if there is something else going on......with my family metals. The body allows the candida to overgrow to absorb the metals. Candida is bad too, but not as bad as if the metals were circulating.

Something we've been talking about alot on the OMG thread is humaworm. Seems to be helping a lot of people who've just started it. It's for parasites. Most of us have them to some extent, so that may be something you want to look into. Just google humaworm. I think the site is www.humaworm.com but I'm not sure.

Another thing to consider is a holistic doctor/naturopath or LLMD to do a lot of different testing to get a view of what's going on. Mainline tests don't usually show much.

borst Newbie
Borst,

I don't remember......did you go dairy free as well.

Candida is often a problem if there is something else going on......with my family metals. The body allows the candida to overgrow to absorb the metals. Candida is bad too, but not as bad as if the metals were circulating.

Something we've been talking about alot on the OMG thread is humaworm. Seems to be helping a lot of people who've just started it. It's for parasites. Most of us have them to some extent, so that may be something you want to look into. Just google humaworm. I think the site is www.humaworm.com but I'm not sure.

Another thing to consider is a holistic doctor/naturopath or LLMD to do a lot of different testing to get a view of what's going on. Mainline tests don't usually show much.

Thanks for the reply!

I am going to try and get my GP to refer me to a naturopath (insurance only covers naturopaths if referred to by doctor)..

Yes i went dairy free as well (only the last two weeks though) ..

If my GI wants to do an endoscopy, should i go back on gluten, and for how long before a biopsy would show celiac?

AndreaB Contributor
If my GI wants to do an endoscopy, should i go back on gluten, and for how long before a biopsy would show celiac?

For a biopsy you need to consume gluten. Probably depends on how long you are off of it before the biopsy would be. I think they say it needs to be equivalent to 4 slices of bread a day for six months......

Remember biopsies are hit and miss and just because a biopsy may be negative doesn't mean you don't have a problem with gluten. Something in the gluten and candida is similar (Rachel--24 posted something about this) so if you think you have candida you'll want to remain gluten free until the cause is found for the candida and you've healed.

With a worsening of symptoms after abx I'm wondering about the possibility of lyme. Seems to be a common thing. Don't dismiss it as an impossibility. There have been quite a few diagnosed who've never seen a tick or live in supposedly "safe" areas. It is more widespread (just like celiac) than people think.

I'd like to invite you over to the OMG....I Might Be On To Something thread. Many on there have experience from different angles and would probably be able to give you more things to look for/test for.

aprilh Apprentice
Hi, new member here.

I've been trying to tackle my health issues for about 4 years now with no definitive answer. This is my history that i typed up for my new physician that i'm seeing (trying to seek a second opinion). I tried to make it as concise as possible but i have a complicated history.

Anyway, the first thing my new physician wanted to do was run some general bloodwork as well as a celiac panel. I got the results back today:

So my Glidin IgA is positive, my Gliadin IgG borderline, and my Transglutaminase IgA looks negative.

My doctor said I may have a gluten sensitivity but not "full blown Celiac". What do you guys think?

The rest of my bloodwork showed some spikes as well..

The bloodwork also included a random glucose test, calcium, vitamin b12, Ferriton, sTSH, T4 Free, Free T3, GGT, AST, Alkaline Phosphatase, all came back within normal range.

I'm getting a referral back to the same gastroenterologist that i had before, hopefully will get some more answers this time

Any advice/suggestions/insight would be appreciated.

Thanks

Hey Borst!

I just wanted to suggest a GI panel by Diagnos Techs. This testing can detect all kinds of bacterial, yeast, and other infections that could be troubling you. If you are interested I can dig up the link and post it for you.

I am not sure if this new gastro will use this specialty lab but you could request that it be done through them. Insurance may not pay for it, but sometimes I feel its best to go out of "insurance" because they do not always use the best labs or the best forms of testing available. That is, if you can afford it.

A good ND might be able to help with this if your gastro dr dismisses your concerns or if you find you are unhappy with the results of your consult.

Good luck and I hope you find results!!!

April

ksb43 Apprentice

For t-Transglutaminase, the test I got had this on the results:

Units - U/mL

Negative: 0-3

Weak Positive: 4-10

Positive: >10

And my doctor said most people without celiac would below below 1. Mine was 14 and I was diagnosed with it (all the other antibody ones were negative and my biopsy didn't really show any damage). So what's the deal? Why are the ranges different?

dadoffiveboys Rookie
For t-Transglutaminase, the test I got had this on the results:

Units - U/mL

Negative: 0-3

Weak Positive: 4-10

Positive: >10

And my doctor said most people without celiac would below below 1. Mine was 14 and I was diagnosed with it (all the other antibody ones were negative and my biopsy didn't really show any damage). So what's the deal? Why are the ranges different?

There are different ranges based on the lab. For my test, a TTG <=20 was normal. My TTG was 20. For IgA a score of <20 was normal, 20-50 equivocal and >50 positive. I was 46 on the IGA Anti-gliadin and went for a biopsy - actually several biopsies. They were all negative and showed only mild signs of Gastritis and GERD. I went gluten-free and it made a HUGE difference.

My wife had the SAME IgA tests and her value was 1.0. So I clearly know what someone w/o a problem should score and I would consider 46 pretty high in that case!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

    2. - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

    3. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    4. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,996
    • Most Online (within 30 mins)
      7,748

    Gail Schoeninger
    Newest Member
    Gail Schoeninger
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.