Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

Interpreting Blood Work

borst

Recommended Posts

borst Newbie
borst
Posted
  • Author

Update after a little over 3 weeks on a gluten-free diet...

I've been as strict as possible and careful with CC.. but haven't really felt a positive change. I think i'm still continuing to lose weight as well which is disconcerting.

I have my GI appointment on monday, hoping to get somewhere with that.

I'm also starting to suspect candida as a possibility as well (my bowel symptoms began during a round of antibiotics)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

Borst,

I don't remember......did you go dairy free as well.

Candida is often a problem if there is something else going on......with my family metals. The body allows the candida to overgrow to absorb the metals. Candida is bad too, but not as bad as if the metals were circulating.

Something we've been talking about alot on the OMG thread is humaworm. Seems to be helping a lot of people who've just started it. It's for parasites. Most of us have them to some extent, so that may be something you want to look into. Just google humaworm. I think the site is www.humaworm.com but I'm not sure.

Another thing to consider is a holistic doctor/naturopath or LLMD to do a lot of different testing to get a view of what's going on. Mainline tests don't usually show much.

borst Newbie
borst
Posted
  • Author
Borst,

I don't remember......did you go dairy free as well.

Candida is often a problem if there is something else going on......with my family metals. The body allows the candida to overgrow to absorb the metals. Candida is bad too, but not as bad as if the metals were circulating.

Something we've been talking about alot on the OMG thread is humaworm. Seems to be helping a lot of people who've just started it. It's for parasites. Most of us have them to some extent, so that may be something you want to look into. Just google humaworm. I think the site is www.humaworm.com but I'm not sure.

Another thing to consider is a holistic doctor/naturopath or LLMD to do a lot of different testing to get a view of what's going on. Mainline tests don't usually show much.

Thanks for the reply!

I am going to try and get my GP to refer me to a naturopath (insurance only covers naturopaths if referred to by doctor)..

Yes i went dairy free as well (only the last two weeks though) ..

If my GI wants to do an endoscopy, should i go back on gluten, and for how long before a biopsy would show celiac?

AndreaB Contributor
AndreaB
Posted
If my GI wants to do an endoscopy, should i go back on gluten, and for how long before a biopsy would show celiac?

For a biopsy you need to consume gluten. Probably depends on how long you are off of it before the biopsy would be. I think they say it needs to be equivalent to 4 slices of bread a day for six months......

Remember biopsies are hit and miss and just because a biopsy may be negative doesn't mean you don't have a problem with gluten. Something in the gluten and candida is similar (Rachel--24 posted something about this) so if you think you have candida you'll want to remain gluten free until the cause is found for the candida and you've healed.

With a worsening of symptoms after abx I'm wondering about the possibility of lyme. Seems to be a common thing. Don't dismiss it as an impossibility. There have been quite a few diagnosed who've never seen a tick or live in supposedly "safe" areas. It is more widespread (just like celiac) than people think.

I'd like to invite you over to the OMG....I Might Be On To Something thread. Many on there have experience from different angles and would probably be able to give you more things to look for/test for.

aprilh Apprentice
aprilh
Posted
Hi, new member here.

I've been trying to tackle my health issues for about 4 years now with no definitive answer. This is my history that i typed up for my new physician that i'm seeing (trying to seek a second opinion). I tried to make it as concise as possible but i have a complicated history.

Anyway, the first thing my new physician wanted to do was run some general bloodwork as well as a celiac panel. I got the results back today:

So my Glidin IgA is positive, my Gliadin IgG borderline, and my Transglutaminase IgA looks negative.

My doctor said I may have a gluten sensitivity but not "full blown Celiac". What do you guys think?

The rest of my bloodwork showed some spikes as well..

The bloodwork also included a random glucose test, calcium, vitamin b12, Ferriton, sTSH, T4 Free, Free T3, GGT, AST, Alkaline Phosphatase, all came back within normal range.

I'm getting a referral back to the same gastroenterologist that i had before, hopefully will get some more answers this time

Any advice/suggestions/insight would be appreciated.

Thanks

Hey Borst!

I just wanted to suggest a GI panel by Diagnos Techs. This testing can detect all kinds of bacterial, yeast, and other infections that could be troubling you. If you are interested I can dig up the link and post it for you.

I am not sure if this new gastro will use this specialty lab but you could request that it be done through them. Insurance may not pay for it, but sometimes I feel its best to go out of "insurance" because they do not always use the best labs or the best forms of testing available. That is, if you can afford it.

A good ND might be able to help with this if your gastro dr dismisses your concerns or if you find you are unhappy with the results of your consult.

Good luck and I hope you find results!!!

April

ksb43 Apprentice
ksb43
Posted

For t-Transglutaminase, the test I got had this on the results:

Units - U/mL

Negative: 0-3

Weak Positive: 4-10

Positive: >10

And my doctor said most people without celiac would below below 1. Mine was 14 and I was diagnosed with it (all the other antibody ones were negative and my biopsy didn't really show any damage). So what's the deal? Why are the ranges different?

dadoffiveboys Rookie
dadoffiveboys
Posted
For t-Transglutaminase, the test I got had this on the results:

Units - U/mL

Negative: 0-3

Weak Positive: 4-10

Positive: >10

And my doctor said most people without celiac would below below 1. Mine was 14 and I was diagnosed with it (all the other antibody ones were negative and my biopsy didn't really show any damage). So what's the deal? Why are the ranges different?

There are different ranges based on the lab. For my test, a TTG <=20 was normal. My TTG was 20. For IgA a score of <20 was normal, 20-50 equivocal and >50 positive. I was 46 on the IGA Anti-gliadin and went for a biopsy - actually several biopsies. They were all negative and showed only mild signs of Gastritis and GERD. I went gluten-free and it made a HUGE difference.

My wife had the SAME IgA tests and her value was 1.0. So I clearly know what someone w/o a problem should score and I would consider 46 pretty high in that case!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to yellowstone's topic in Coping with Celiac Disease
      3

      Has someone experienced discrimination because of their illness?

      Regarding the discrimination you asked about, it is a lot more easy now to discriminate when you're supposed to answer whether or not you have celiac disease on job applications, and from what I've seen, MANY companies now include this question on their applications:
    2. Scott Adams
      - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      2

      When Home Isn't Safe: Celiac Disease, Cross-Contamination, and the Right to a Gluten-Free Space

      It's too bad relationships end because of this disease, but I suppose that being healthy may be more important than being married or living with someone who isn't on board with the gluten-free diet.
    3. Flash1970
      - Flash1970 commented on Scott Adams's article in Spring 2026 Issue
      2

      When Home Isn't Safe: Celiac Disease, Cross-Contamination, and the Right to a Gluten-Free Space

      This is a huge topic. My ex husband didn't care. Even though I had my own area where his food wasn't allowed, I'd find crumbs. I was always constantly cleaning. I threw a lot of food away because I wouldn't be sure if he had contaminated it. It really showed what a narcissistic person he was and is. Now I'm in my own home. Much better. I do have dogs...
    4. Russ H
      - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

      People with coeliac disease have an altered gut biome compared with those who do not, which may be associated with gut inflammation. Although the gut biome recovers on a gluten-free diet, there are still significant differences at 2 years. In a mouse model of coeliac disease, supplementation with the soluble dietary fibre, inulin, increased the number...
    5. suek54
      - suek54 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      46

      Shaking/Tremors and Off Balance

      Hi Ginger38 Well done you for pushing through the pain barrier of eating gluten, when you know each mouthful is making you poorly. I went through the same thing not long ago, my biopsy was for dermatitis herpetiformis. Result positive, so 95% certain I have gut coeliacs too. But my bloods were negative, so very pleased I went for the gluten challenge...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,942
    • Most Online (within 30 mins)
      10,442
    Sensible
    Newest Member
    Sensible
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Has someone experienced discrimination because of their illness?

      By Scott Adams · Posted

      Regarding the discrimination you asked about, it is a lot more easy now to discriminate when you're supposed to answer whether or not you have celiac disease on job applications, and from what I've seen, MANY companies now include this question on their applications:  
    • Russ H
      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

      By Russ H · Posted

      People with coeliac disease have an altered gut biome compared with those who do not, which may be associated with gut inflammation. Although the gut biome recovers on a gluten-free diet, there are still significant differences at 2 years. In a mouse model of coeliac disease, supplementation with the soluble dietary fibre, inulin, increased the number of beneficial microbes and reduced gut inflammation. Inulin is used by some plants as carbohydrate store, it is a complex polymer of fructose in the same way that starch is a complex polymer of glucose. Inulin cannot be digested by humans but serves as food source for some gut bacteria. Inulin is present in many vegetables but the richest sources are (g/100g): chicory root 41.6 Jerusalem artichoke 18.0 dandelion greens 13.5 garlic 12.5 leeks 6.5 onions 4.3 The Scientist: Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease    
    • suek54
      Shaking/Tremors and Off Balance

      By suek54 · Posted

      Hi Ginger38 Well done you for pushing through the pain barrier of eating gluten, when you know each mouthful is making you poorly.  I went through the same thing not long ago, my biopsy was for dermatitis herpetiformis. Result positive, so 95% certain I have gut coeliacs too. But my bloods were negative, so very pleased I went for the gluten challenge and biopsy.  Hang on in there. Sue
    • Scott Adams
      Has someone experienced discrimination because of their illness?

      By Scott Adams · Posted

      When symptoms like fatigue, brain fog, or low energy change how we interact, others sometimes misinterpret that as disinterest, rudeness, or negativity—especially if they don’t understand the underlying condition. That doesn’t make their behavior okay, though. You don’t deserve to be treated poorly for something outside your control. Often, it reflects a lack of awareness or empathy on their part, not a fault in you. It can help to explain your condition to people you trust, but it’s also completely valid to set boundaries and distance yourself from those who respond with hostility. Your experience—and your reaction to it—makes sense. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      HLA-DQ2 POSITIVE it's nothing

      By Scott Adams · Posted

      Being HLA-DQ2 positive doesn’t diagnose celiac disease by itself, but it does mean he has the genetic potential for it, so it absolutely deserves careful follow-up if symptoms or concerns are present. You’re right that celiac is often downplayed, but it’s a serious autoimmune condition—not an allergy—and it can affect the brain, nervous system, and overall health if untreated. Given everything your son has been through, you’re doing the right thing by advocating and asking questions. I would strongly recommend getting a full copy of his records, and if possible, consulting a gastroenterologist who understands celiac disease well so you can get clear answers and, if needed, proper testing and monitoring.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.