Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heart Problems?

143horses

By 143horses
in Related Issues & Disorders

Recommended Posts

143horses Rookie
143horses
Posted

Hi-I am new here and am so excited with all the info I have found that there are others like me!! I am Celiac amoung other things. But I wanted to ask if there is anyone who has suffered from cardiac problems from this? I have. I read that palpations and such can go with this but wanted to know if ya'll have had it?

liv

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Centa Newbie
Centa
Posted

Welcome 143horses, glad you're here!

Are you asking has anyone suffered from cardiac problems from the celiac disease itself? Or from being gluten free?

You're asking in an area that interests me a lot, since I've got a history of heart disease on both sides of my family: strokes on my father's side; my mother has had the full gamut, but is still alive at 94....strokes, heart attack, heart failure & a pacemaker. It runs back in both families.

So I figure I'm a statistical candidate for this kind of thing later on....all I can report in is a very definite drop in total cholesterol count and definite increase in HDL (good cholesterol) after I went gluten free. Knowing that I was headed into later in life probability of heart problems, I had tracked my cholesterol for oh, a good 15 years, so by now have enough evidence to say that it's not a blip, not a drop just one year.

That's all I can report for now, but like I say I'm interested in what you ask. What connection are you asking about? Celiac disease + heart problems?

Centa Newbie
Centa
Posted

Here's a link that may be of interest. Open Original Shared Link

143horses Rookie
143horses
Posted
  • Author
Welcome 143horses, glad you're here!

Are you asking has anyone suffered from cardiac problems from the celiac disease itself? Or from being gluten free?

You're asking in an area that interests me a lot, since I've got a history of heart disease on both sides of my family: strokes on my father's side; my mother has had the full gamut, but is still alive at 94....strokes, heart attack, heart failure & a pacemaker. It runs back in both families.

So I figure I'm a statistical candidate for this kind of thing later on....all I can report in is a very definite drop in total cholesterol count and definite increase in HDL (good cholesterol) after I went gluten free. Knowing that I was headed into later in life probability of heart problems, I had tracked my cholesterol for oh, a good 15 years, so by now have enough evidence to say that it's not a blip, not a drop just one year.

That's all I can report for now, but like I say I'm interested in what you ask. What connection are you asking about? Celiac disease + heart problems?

Hi-I was asking if anyone with Celiac has also heart problems. And if they had fewer symptoms after becoming gluten-free.......................good to hear that your cholestrol went down I have read that it could go up and that ruffeled my feathers!! I see someone has posted a link Ill go in there and you may want to as well ;o)

Centa Newbie
Centa
Posted

Hi again 143horses...I'm due to head off line now, but I'll check back in on you tomorrow :) Let me type out something quick for you here...

I'm not suggesting that my genetic profile for heart complications is yours, but I guess for me the sum total of things that I know affect me that relate to heart and a gluten free diet are two:

1) Absorption issues. Look up JNBunnie's recent posts...and do a google search for the Wikipedia article on cholesterol.

2) Ingestion of fats, especially trans fats

All best.

UR Groovy Explorer
UR Groovy
Posted
Hi-I am new here and am so excited with all the info I have found that there are others like me!! I am Celiac amoung other things. But I wanted to ask if there is anyone who has suffered from cardiac problems from this? I have. I read that palpations and such can go with this but wanted to know if ya'll have had it?

liv

Hi, Welcome,

If you're talking about palpatations / erratic heart beat type stuff, that's my first indication that I've been glutened now (BTW, I have reason to believe that I'm not Celiac, but have wheat allergy or intolerance). For a couple of months before I discovered that my problems were due to gluten (elimination diet), I was regularly having a very specific arrhythmia (usually at night) which my doctor never picked up on because it never happened when I was there (presumably because I hadn't had wheat before my appointments). These went away immediately after I went gluten-free. When I challenged gluten, I got it the worst ever - about 5 hours after the pasta dinner. We were up all night because I was afraid to go to sleep that my heart would stop and not start again. Now (almost a year later), when I get glutened just a little, it appears that about 24 hours later, I get the "heart drop" (that's what it feels like - like my heart is dropping).

I've noticed that my reactions to gluten never seem to follow the same pattern they did the previous time. I never know what's going to happen when I get glutened anymore.

If you're talking about heart disease, or other specific conditions, this doesn't really apply, as my heart appears to work perfectly when I'm at the docs or not eating wheat.

take care,

k

143horses Rookie
143horses
Posted
  • Author

Hi, Welcome,

If you're talking about palpatations / erratic heart beat type stuff, that's my first indication that I've been glutened now (BTW, I have reason to believe that I'm not Celiac, but have wheat allergy or intolerance). For a couple of months before I discovered that my problems were due to gluten (elimination diet), I was regularly having a very specific arrhythmia (usually at night) which my doctor never picked up on because it never happened when I was there (presumably because I hadn't had wheat before my appointments). These went away immediately after I went gluten-free. When I challenged gluten, I got it the worst ever - about 5 hours after the pasta dinner. We were up all night because I was afraid to go to sleep that my heart would stop and not start again. Now (almost a year later), when I get glutened just a little, it appears that about 24 hours later, I get the "heart drop" (that's what it feels like - like my heart is dropping).

I've noticed that my reactions to gluten never seem to follow the same pattern they did the previous time. I never know what's going to happen when I get glutened anymore.

If you're talking about heart disease, or other specific conditions, this doesn't really apply, as my heart appears to work perfectly when I'm at the docs or not eating wheat.

take care,

k

Hi k-WOW yes that happens to me as well :o I am so glad to heat this. I woundered about the relation and have read some on it althought it is not mentioned that often. That is one of the effects that I have. I to have the dropping feeling and at night it can be very bad. I have been dx with cardiac conditions though that may or may not be related and that was the reason for my posting. At least now I know that the palpatations are linked. Thank you for sharing that with me......

Liv :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


UR Groovy Explorer
UR Groovy
Posted

Hi,

Just a little CYA here (I just hate to be misunderstood), I'm not saying that I believe that eliminating wheat, etc. will fix a heart problem. It's certainly nothing to mess around with. I just know that in my case, the heart dropping is definitely a sign that I've been glutened and that it went away absolutely and completely (except glutenings) when I eliminated it (just before I cut out the gluten, it was happening almost every night). I've tested it a few times - there's no doubt. It's really the only thing that keeps me in line, because I think I'd probably be less strict with the food if it weren't for the heart thing at this point. I don't get the tummy problems nearly as bad as before from glutenings. It's just so darned scary when it happens. I can literally feel my heart stop beating, immediately thereafter feel like I'm going to pass out, and then it pumps like mad when it starts again. It happens over & over again about every 30 seconds until it stops. It's pretty weird.

I was wondering - you didn't mention (or maybe you did & I missed it): Since you've been avoiding gluten (if you've been avoiding gluten(?) ) has it gone away for you?

cyberprof Enthusiast
cyberprof
Posted

I had weird things prior to diagnosis that have ALL gone away. I would get chest pressure and a feeling of anxiety, like my heart was pounding and I could feel the blood rushing through my body. My heart beat faster and sometimes skipped beats. The stomach pain, combined with the heart stuff, got me in to see the doc. I didn't want to say "I think I'm having a heart attack" because it didn't seem like I was having enough or the right kind symptoms but I didn't want to ignore it. It caused me a lot of anxiety and lost sleep because I would feel so bad when I laid down to go to sleep.

Not that any of this is something to self-diagnose or mess around with. See your doc if you are still having weird symptoms, with or without gluten.

Joss Rookie
Joss
Posted

I get atrial fibrillation which is caused by food intolerances. Not sure if its gluten but I definitely react to certain addiitves.

143horses Rookie
143horses
Posted
  • Author

Hi k-WOW yes that happens to me as well :o I am so glad to heat this. I woundered about the relation and have read some on it althought it is not mentioned that often. That is one of the effects that I have. I to have the dropping feeling and at night it can be very bad. I have been dx with cardiac conditions though that may or may not be related and that was the reason for my posting. At least now I know that the palpatations are linked. Thank you for sharing that with me......

Liv :D

Hi-What you described is what happens to me-every bit of it. Only I do have more extensive symptoms that may or may not be linked. Chances are they are not linkned but I would like to think so because that means I will only get better with diet. :) When that feeling hits me the entire time I am sitting real quiet, still , breathing and praying. It will get much worse if I put some of my famous panic into it so I use a lot of prayer ;) And, yes and I am gluten free as I am a dx. Celiac and I have noticed a change with the pvc's and "dropping feeling".Also seem to have some relief from my panic feelings-only been gluten free for a bit over 1 week now. Feel free to email me if you want to talk more on this

kenlove Rising Star
kenlove
Posted

I had a lot of trouble with atrial fibrillation, 3 times to the ER from passing out. When I was finally diagnosed with celiac after 6 months of heart trouble, Went totally gluten free and have not had any trouble in 2 years. When I was strong enough for a strees test, I had no touble going to level 8 at which point the doc said my heart was fine and to stop taking all the meds I was on. I did and feel 1000% better than 2 years ago.

Ken

I get atrial fibrillation which is caused by food intolerances. Not sure if its gluten but I definitely react to certain addiitves.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,140
    • Most Online (within 30 mins)
      7,748
    KP009
    Newest Member
    KP009
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.