Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Couple Of Questions Because I Feel Like Screaming


FootballFanatic

Recommended Posts

FootballFanatic Contributor

Okay so I have anxiety and depression.

Mostly the anxiety is due to emetophobia and germophobia, and obviously feeling sick everyday doesn't help either of those....

My depression came after the anxiety....just got fed up with this BS. I used to be so healthy and feel so good.

I don't feel better yet on gluten-free, and almost Dairy Free. I just use a small amount of butter on a few things...but it seems like I feel worse when I feel anxiety or depression....

Do you think there is a chance I'm better as far as Celiac goes and that the mental stuff is causing my indigestion, constipation, headaches, acheyness and dizziness?

Are there any techniques anyone would recommend for not panicking when I'm feeling bad? Because with my phobia of being sick it's an endless cycle....

The more I notice I'm feeling crummy, the worse and worse I get.

Sorry this posting is all over the place, I'm feeling stir crazy and don't know quite how to say what's in my head.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

I so know how you feel. When i get glutened i freak completely out. One thing i do when im freaking out is throw something, i know not the best thing to do but it calms me down, dont ask me why.

I know i have a little bit of ocd so it makes things worse in many aspects of my life. There are days i can sweep 20 times a day and still find a crumb and it drives me nuts.

Have you tried meditation. One thing i am doind now is i get up at 5 am and do denise austin for 30 and then yoga or pilates and it makes me much beter threw out the day, if i miss one day it is bad.

Have u tried an hot bath when u are anxious, or read an good book or even go for an walk.

i would find an gluten and casein free butter that is what i do, if that is the only casein thing u use is butter then its best to just give it up, You will feel better. Of course the subsitute is not the same as butter but it works.

Or maybe when you feel sick and start to get anxiuos or depressed think of wonderful times in your life.

When i get an panic attack, i will sit and focus on different parts of the house or look at my kids and think of the wonderful things they do or say. I havent had a panic attack unless i get completely glutened but nothing like before going gluten free.

paula

hathor Contributor

If you are intolerant to casein, any little amount can cause the symptoms you describe. So that is the first thing to fix.

Second, you may have another intolerance operating that is preventing your recovery. Have you added more soy to your diet to replace the dairy? Soy is a common third problem. I know someone who continued to have symptoms despite being completely Gluten-free Casein-free for over a year. Then she took out soy and got completely better.

Enterolab also tests for egg, soy & yeast. It might be worth it to see if you have problems with any of these things.

Do you keep a food & symptom diary? Perhaps you can find some triggers.

In terms of coping, I find exercise to be wonderful. It improves my mood and makes me feel better. I would suggest at least going out for a walk every day if nothing else, assuming it isn't too cold.

You also might investigate herbal treatments for anxiety and depression, or try meditation.

Frankly, I think once you feel better, your mental state will also improve.

dangervolvo Rookie

I really get how you are feeling. I am a little over 2 months into cutting gluten out, and a month into cutting all dairy and soy out. I too wonder when I will finally start to feel better, physically and mentally.

I have been dealing with panic attacks for almost a year now, and I see a really strong connection between feeling sick and feeling anxious. Feeling sick makes me feel vulnerable, and feeling vulnerable triggers my anxiety.

The one thing that really helps me get through an anxiety producing event is to be aware of myself trying too hard to control the way I am feeling. For me anxiety really hinges on feeling out of control, but the more I try to control a situation that I really have no control over the worse the anxiety gets. So when I start to feel anxious the first thing I do is to remind myself that I will not always feel the way I feel in that moment, that seems to take some of power away from the fear. The second thing I do is to tell myself that I trust myself, that no matter what happens as a result of feeling sick or anxious or both, I will be ok. I tend to get panicked on a crowded bus when I am feeling sick, but I tell myself that if I have to get off the bus, I will be ok, or if I throw up on the bus, I will be ok, or if I pass out on the bus, I will be ok. They all sound like awful situations, but I know that if they happen I will be ok, I will hate life in that moment, but really in the end I will be ok. It seems to take the power away from the anxiety to allow the anxiety. The more I push the anxiety away, the more it comes up.

It can also calm me down to say over and over in my head, "I am safe, I am strong", or " I am ready to accept the calm that comes from trusting myself". I know it sounds cheesy, but telling myself those things really helps.

I still have anxiety, but it does not rule my life like it once did, and I really do have hope that as I start to adjust to this new diet, I will feel healthier in my head and in my gut,

-Sarah

  • 1 month later...
The One Apprentice

I know how you feel and I know it sucks, before I went gluten free I used to have a lot of anxiety and for about a year I had panic attacks, once I started on the diet they kind of went away for a while, then came back because of another health issue and, just like you, I would worry so much about being sick that i would start panicking all the time, I have a bad pain in my rib and that would trigger a lot of panic attacks and a few trips to the ER until they finally figured out they were in fact panic attacks and they gave me Xanax for it, it helps a lot, I still feel panicky in many situations, but if I feel the panic coming I try to breath deep, if you're alone you can try sitting down and concentrating in your breathing, laying down is even better though, it helps your body relax, think that this is only your mind playing tricks on you and that there's nothing to be afraid of, of course certain situations have no solution where you just can't control the panic attack and you have to ride it out, I hate them though because I feel as if I'm about to faint and I get very shaky. I do agree though that being glutened brings on panic attacks that is for sure, I guess it is because we know how bad we used to feel when we were eating gluten and deep inside we are afraid of going through that once again, but you have to think that it is just going to be for a few days and then you will be ok.

Eriella Explorer

I also get neurological symptoms (I become a giant witch). The best thing I have found is to run or swim until my nastiness is all out. After that I am normally so tired that I crash in front of the TV with a hard cider (if it is anxiety or soda if you have depression) and fall asleep, then wake up a few hours later and my symptoms go away.

Another thing that works (depending on where you are) is a snowball fight. Throwing things makes me feel better and it is more societally permissible to throw snow than rocks or plates :-)

BRUMI1968 Collaborator

I can really relate with your fear of vomiting/getting sick. Just a couple days ago a friend of mine told me that a virulent stomach virus was going around town, and my stomach started to hurt the instant he said it. Then, a few days later, he got it, and so did his live-in girlfriend. I was practically panic stricken - afraid to eat anything in case I would have to throw it up. Jeezopeet. Then I was in the public library and got the chills - and immediately, before my brain could do a darned thing about it, I was dizzy with a panic attack. I reasoned myself down - of course I wasn't sick. I went and washed my hands. then I went home and looked up the virus which has a incubation period of 24-48 hours. I was exposed to my friend five days ago, and I'm only now starting to feel safely like I'm not going to get it. What a pain.

As to anxiety attacks in general - mine disappeared virtually overnight when I quit gluten. But I had "generalized anxiety disorder", attacks would come on frequently with eating. I would definitely consider 1) physiological reasons behind it: dairy, soy, hidden gluten, lectin intolerate, etc., but also vitamin/mineral deficiency; 2) watch for patterns...for me it was eating, especially cooked tomatoes (I think from my childhood sick-fest every time we ate spaghetti or pizza - hmm, celiac...I wonder why) but also overeating, eating too fast, or eating when unhappy, stressed or with people I didn't like/was sick of/was arguing with, etc.

1) food intolerances

2) eat when totally calm; if can't be worked out, eat minimum amount to avoid hunger nausea

3) eat sitting down, maybe with calm music on - don't eat over sink or on the run

4) meditate or take naps every day. there are 20 minute tapes you can use like a nap, some which focus on body/mind stuff

5) get enough exercise

6) create a safe space for yourself, like a closet or a chair or make a fort or something - someplace safe to ride it out.

7) if it helps, call someone who supports you and talk about something else until you forget you're having an attack

8) try "calms" when you know you'll be in stressful situation. available at health food stores/coops and the like.

9) wash your hands a lot. keep lotion in your purse. gluten free of course.

If all else fails, consider getting on some anti-anxiety drugs. I personally don't like at all the ones that work in some mysterious way -- I like the valium/xanax famiily - they tone down your whole nervous system, turn the world down if you like. Doctors know how they function; there is no question about people killing their families and selves when taking it; relatively safe with side effects, at least in the stomach area. (I love it when they try to prescribe folks who have panic about food issues drugs that give them nausea.) I took Xanax for a few months quite successfully (couldn't eat at all I was so tense and upset, and was getting too thin - it really helped) - but now prefer to avoid it unless flying.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gentleheart Enthusiast

**

The One Apprentice

I, too lost weight because of anxiety, for about two weeks it got so bad I wasn't eating, just trying to eat watery stuff, otherwise it would make me sick, everything made me sick but that's the main thing with panic attacks, they give me pretty bad nausea so a lot of the times I throw up. For a while it was as if I was even afraid to eat, I've gotten a lot better though.

Lollie Enthusiast

Just wanted to tell you that I completely relate to this.... My little girl just got a virus (Christmas Eve of course....) I was completely shakey, I find it hard to even function.... I get that way just from the news of someone, whom I have had no contact, coming down with a stomach virus.... It is a very hard way to live... And then with Celiac and gastro problems it just makes it worse. I do alot of what the other posters have said, I take warm showers, I try to do something else, I try to relax, and when all else fails i take a muscle relaxer. I know that it was much worse before I went gluten-free, but it does seem to still happen with the fear of a stomach virus. The good thing is, that I no longer think that everything I eat is going to give me food poisoning!

I hope that this helps, sometimes, I think is good to know that you are not alone!

Lollie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748

    Jeanette K.
    Newest Member
    Jeanette K.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.