Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wow!


ShayBraMom

Recommended Posts

ShayBraMom Apprentice

So today we went shopping for Glutenfree stuff. I had asked yesterday waht the main stuff asked for is for making your own bread. I got gluten-free Bread Mix, gluten-free Chocolate Chip Cookie Mix, gluten-free Brownie Mix, gluten-free All Purpose Baking Flour, Tapioca Flour, got a Box of Egg-REplacer (oh my how expensive 7$ for 1lb, got Glutino Honeynut Cereal, I got the pure Gelatin some had recommended here, and Guar Gum as well as one pack of PastaJoy Fussili noodles!

Is it true that Guar Gum does the same as X-Gum (Xanthan)?

then, on the gluten-free Bread Mix it says on what you need 1 Egg and enough Eggwhites, aehm, i screened and sscreened it's to go in the batter not on top of the bread or so , so I wonder how much are enough EggWhites?

Has anyone ever tried noodles from bionaturae Organic Glutenfree noodles (from Italy) made with rice, potatoe and soy? Beware, those are by far the most nastiest noodles I've ever had. Even overcooked so they'd be softer they still tasted undercooked and like cartboard! Any recommendations for better ones?

Overall I gotta admit, the diet for Celiac is VERY expensive, oh my! No wonder that in Italy diagnosed Celiacs get all their food for free in Pharmacies, that ought to help out a lot, they even get extra funds a month AND two days of a month for appt.s preparing and shopping for food! Having a Celiac of even two in your family here with low income families gotta be extremely hard!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dandelionmom Enthusiast

It is pricey. One thing that helps is to search these boards before buying a new product so that you can find out if it is awful or not before spending the money. Another thing is to try eating more naturally Gluten-free foods instead of the replacements.

Lisa Mentor

I rather like Bionaturae. :o

Two years ago the gluten free foods were just awful. Trust me, there have been MAJOR improvements in taste, texture and availability. Hopefully, the price will be next.

blueeyedmanda Community Regular

I do hear the Glutino cereals are decent. Pricey though. The noodles I found which I like the most are Tinkyada.

taweavmo3 Enthusiast

It can be pricey....I think everyone spends an arm and a leg in the beginning, I know I sure did. I remember spending close to $100 at Whole Foods, for one bag of groceries!

I have a family of six to feed gluten and casein free, and I am now doing it for around $150 a week. I think the key to not spending a fortune on this diet is to not try and replicate what you ate before. Our dinners are much more simple now, but I have found that kids really like simple, lol. I don't buy many specialty foods anymore. I'll buy a bag of pasta a week (Tinkyada rocks!), one Namaste mix a week for dessert, and once every couple of weeks I'll buy a bag of Bette Hagmans featherlite mix ($9). I mostly make a meat, veggies, and rice or potatoes for dinner. Lunches are pretty much the same.....but faster meats, like sausages or just leftover chicken with microwaved veggies. Not the most elaborate meals by any means, but the kids don't seem to mind.

Tonight I made salmon patties and the kids loved them. I used instant potato flakes instead of bread crumbs, they worked out great and they were much cheaper. I made extra so the kids can have them for lunch tomorrow....luckily they don't mind taking leftovers. They were taking sandwhiches everyday, but I was spending a small fortune on bread at the rate the kids were flying through it. I finally just quit buying it, and now they fill up on other things, lol.

Hope that helps some, I know it's so hard in the beginning. You'll figure out how to spend less, it just takes some adjusting!

ptkds Community Regular

Yep, Tinkyada is the best gluten-free pasta. You can order it from Vitacost.com for about $2.69 a pkg, and shipping is a flat rate. So if you order alot at once, you save a bundle. We usually use asian noodles, though. You have to play around to find the ones you like, but they are less than $1 a bag. Just be careful because some of them do contain wheat.

I prefer to make my cookies, cakes and brownies from scratch. They are cheaper and taste better. I do have some mixes, but I only use those if I am in a hurry or I don't have all the necessary ingredients for my "from scratch" recipe. Pillsbury frosting is gluten-free (read the label in case they change the ingredients!)

Find an Asian grocery store, and stock up on your rice flour, potato starch, and tapioca starch. Each package is less than a dollar for a pound of flour or starch. It is triple that price from a regular grocery store.

Buying bulk may seem expensive at first, bur later you will only stock up on 1 or 2 things a month, and the cost evens out over time. The only things I buy from health food stores (or online) is Xanthan gum, potato flour (which is rare since I don't use much), brown rice flour, and egg replacer. Everything else is a special treat (such as cookies or mixes). When I go to asian stores, I get the rice flour, potato starch, tapioca starch, sweet rice flour (they sometimes call it glutinous rice flour, but don't confuse that with gluten!), and noodles. Everything else I buy is naturally gluten-free.

I can send you my collection of links to my favorite online shops if you want! Just PM me.

ptkds

kbtoyssni Contributor

It's pricey at first because most people are going to buy a bunch of substitutes or specialty gluten-free foods. It's so much easier to buy something that says gluten-free on the package than to try to call every company in the first week. And it's hard to figure out what to eat at first - you want to continue to eat your morning cereal and lunchtime sandwich and pasta for dinner. But now that I know the safe brands, I don't even bother with the specialty stuff. Too expensive and I don't want to make a trip to a different grocery store - I don't have time for that! If I can't get it at Super Target or Cub Foods, I don't eat it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,407
    • Most Online (within 30 mins)
      7,748

    H2HPizzaWagon
    Newest Member
    H2HPizzaWagon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.