Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wow!


ShayBraMom

Recommended Posts

ShayBraMom Apprentice

So today we went shopping for Glutenfree stuff. I had asked yesterday waht the main stuff asked for is for making your own bread. I got gluten-free Bread Mix, gluten-free Chocolate Chip Cookie Mix, gluten-free Brownie Mix, gluten-free All Purpose Baking Flour, Tapioca Flour, got a Box of Egg-REplacer (oh my how expensive 7$ for 1lb, got Glutino Honeynut Cereal, I got the pure Gelatin some had recommended here, and Guar Gum as well as one pack of PastaJoy Fussili noodles!

Is it true that Guar Gum does the same as X-Gum (Xanthan)?

then, on the gluten-free Bread Mix it says on what you need 1 Egg and enough Eggwhites, aehm, i screened and sscreened it's to go in the batter not on top of the bread or so , so I wonder how much are enough EggWhites?

Has anyone ever tried noodles from bionaturae Organic Glutenfree noodles (from Italy) made with rice, potatoe and soy? Beware, those are by far the most nastiest noodles I've ever had. Even overcooked so they'd be softer they still tasted undercooked and like cartboard! Any recommendations for better ones?

Overall I gotta admit, the diet for Celiac is VERY expensive, oh my! No wonder that in Italy diagnosed Celiacs get all their food for free in Pharmacies, that ought to help out a lot, they even get extra funds a month AND two days of a month for appt.s preparing and shopping for food! Having a Celiac of even two in your family here with low income families gotta be extremely hard!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dandelionmom Enthusiast

It is pricey. One thing that helps is to search these boards before buying a new product so that you can find out if it is awful or not before spending the money. Another thing is to try eating more naturally Gluten-free foods instead of the replacements.

Lisa Mentor

I rather like Bionaturae. :o

Two years ago the gluten free foods were just awful. Trust me, there have been MAJOR improvements in taste, texture and availability. Hopefully, the price will be next.

blueeyedmanda Community Regular

I do hear the Glutino cereals are decent. Pricey though. The noodles I found which I like the most are Tinkyada.

taweavmo3 Enthusiast

It can be pricey....I think everyone spends an arm and a leg in the beginning, I know I sure did. I remember spending close to $100 at Whole Foods, for one bag of groceries!

I have a family of six to feed gluten and casein free, and I am now doing it for around $150 a week. I think the key to not spending a fortune on this diet is to not try and replicate what you ate before. Our dinners are much more simple now, but I have found that kids really like simple, lol. I don't buy many specialty foods anymore. I'll buy a bag of pasta a week (Tinkyada rocks!), one Namaste mix a week for dessert, and once every couple of weeks I'll buy a bag of Bette Hagmans featherlite mix ($9). I mostly make a meat, veggies, and rice or potatoes for dinner. Lunches are pretty much the same.....but faster meats, like sausages or just leftover chicken with microwaved veggies. Not the most elaborate meals by any means, but the kids don't seem to mind.

Tonight I made salmon patties and the kids loved them. I used instant potato flakes instead of bread crumbs, they worked out great and they were much cheaper. I made extra so the kids can have them for lunch tomorrow....luckily they don't mind taking leftovers. They were taking sandwhiches everyday, but I was spending a small fortune on bread at the rate the kids were flying through it. I finally just quit buying it, and now they fill up on other things, lol.

Hope that helps some, I know it's so hard in the beginning. You'll figure out how to spend less, it just takes some adjusting!

ptkds Community Regular

Yep, Tinkyada is the best gluten-free pasta. You can order it from Vitacost.com for about $2.69 a pkg, and shipping is a flat rate. So if you order alot at once, you save a bundle. We usually use asian noodles, though. You have to play around to find the ones you like, but they are less than $1 a bag. Just be careful because some of them do contain wheat.

I prefer to make my cookies, cakes and brownies from scratch. They are cheaper and taste better. I do have some mixes, but I only use those if I am in a hurry or I don't have all the necessary ingredients for my "from scratch" recipe. Pillsbury frosting is gluten-free (read the label in case they change the ingredients!)

Find an Asian grocery store, and stock up on your rice flour, potato starch, and tapioca starch. Each package is less than a dollar for a pound of flour or starch. It is triple that price from a regular grocery store.

Buying bulk may seem expensive at first, bur later you will only stock up on 1 or 2 things a month, and the cost evens out over time. The only things I buy from health food stores (or online) is Xanthan gum, potato flour (which is rare since I don't use much), brown rice flour, and egg replacer. Everything else is a special treat (such as cookies or mixes). When I go to asian stores, I get the rice flour, potato starch, tapioca starch, sweet rice flour (they sometimes call it glutinous rice flour, but don't confuse that with gluten!), and noodles. Everything else I buy is naturally gluten-free.

I can send you my collection of links to my favorite online shops if you want! Just PM me.

ptkds

kbtoyssni Contributor

It's pricey at first because most people are going to buy a bunch of substitutes or specialty gluten-free foods. It's so much easier to buy something that says gluten-free on the package than to try to call every company in the first week. And it's hard to figure out what to eat at first - you want to continue to eat your morning cereal and lunchtime sandwich and pasta for dinner. But now that I know the safe brands, I don't even bother with the specialty stuff. Too expensive and I don't want to make a trip to a different grocery store - I don't have time for that! If I can't get it at Super Target or Cub Foods, I don't eat it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    2. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    3. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,901
    • Most Online (within 30 mins)
      7,748

    kharvey
    Newest Member
    kharvey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.