Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Actually Feel 100% Better?!?!?!


LilyCeliac

Recommended Posts

loco-ladi Contributor

I am currently standing at about 9 months 100% gluten free, prior to that I was unsuccessfully gluten free, I didnt know about the "hidden" gluten and was partially free.

My beggining was not as successful but was "better" since going 100% gluten-free earlier this year I see even more improvement..

My best improvement is the fact I dont have to wait to eat until I can "take the chance" of becoming ill after eating...... I get hungry I eat its that simple.

I think the second best thing that happened was the first time I had to "grunt" when in the bathroom, such a glorious sound comapred to what I had before, yeah yeah I know TMI, lol

Third would be finding I did not have to "go without" some of my favorite foods, I have my cookies, brownies and pancakes back! I had missed them so!

I cant say I feel 100% better but a steady 75% at this time, I still have an occational glutening mostly when forced to eat out and am greatful that during my vacation and having 5 houseguests and eating out multiple times I managed NOT to get struck with a poisoning! Cant say all my meals were the best but hey I survived!

It takes time and lucky for me I have the rest of my life to get to 100% but I am enjoying my 75% every day!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

I second the casein and the soy as possible culprits. If you don't want to just blindly experiment, you could try the Enterolab testing. Also there are food allergy tests out there as well, could help you find some things to try.

Soy has been shown in research to causing villi blunting, as I have read here.

Some great responses here, I have appreciated reading them, as I am also still struggling with symptoms.

  • 1 month later...
kimberly-10 Newbie

I feel sooooo much better! for years i had horrible hip and knee joint pain and cronic constipation. I now have normal bm's consistently! more than one day in a row! my bloating and gas went away and the only time I have problems is when I have been glutend. :lol:

nutralady2001 Newbie

I am some-one that went 47 years without a diagnosis

Here in Australia glucose syrup/dextrose/maltodextrin from wheat is said to have "no detectable gluten" because of the processing renders it at 0.0002% ( 2 parts per million) and is considered "safe" by the Coeliac Society

After chatting in my Aussie Coeliac Yahoogroup I decided as an experiment to cut out any food containing these as well................

The results are positive, brain fog is even less, fatigue lessened even more, depression/mood has lifted...........very subtle differences but noticeable all the same

So I am a Coeliac who can't have these in my diet either . Whether it was because I went for so many years undiagnosed and it has made me even more sensitive I don't know

I don't buy anything that has been processed on any equipment that also processed gluten containing items, my personal care items make-up/skin care etc don't contain gluten

McGluten Newbie

Wow, such great reading here! It looks like this multi-sensitivity to various foods is more the norm and not my own personal nightmare!

Before I forget: the posters asking about the abdominal pain...I had this and still do somewhat. Try a liver/gallbladder cleanse. It worked for me. I had off and on tightness/cramping for years until last Feb. it became servere cramping that didn't go away. I'd be lying fetal on the floor for hours eventually. Open Original Shared Link (you don't need the ornithine or black walnut)

I'm thinking I've always been sensitive to gluten. It just built up so much over 30 years of eating it that it's finally manifested with DH rash on my hands and various other food intolerances.

Good(sad) to hear others have the issue with fruits.

Foods I'm trying to cut out are: gluten, sugars (fruit too), eggs, most dairy (goat milk seems great).

I'm eager to test the age - 20 formula for months. I'm about half way there hopefully!

Ps. Anyone find anywhere to buy Redbridge beer in Calgary?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748

    CRae
    Newest Member
    CRae
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.