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I Cant Do This Anymore

confused

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confused Community Regular
confused
Posted

Last night my ss had an sandwhich before basektball practice. WEll he came home 2 hours later and went out of control. We told him to take an shower and go to bed and he flipped out, he went into my other two boys rooms and threw everything around and in his room to. Then he kept sitting in his room screaming i hate you and f-you and so forth, you get the gist of it. For about 2 hours.

I know its the gluten but i just dont know what to do anymore. I know we see an gi on the 26th, but he still isnt going to do the scope then, not for another month or 2 after that. I cant have him still on gluten during the holidays. Life will be terrible for everyone if he is.

I feel we have to have the scope to be definitie for his sake, to get him to follow the diet, but what about ur sake.

I am just at my wits end.

paula

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dandelionmom Enthusiast
dandelionmom
Posted

I'm sorry. It is so hard. The wait for a scope is one of the reasons we opted not to have it done. My little girl was just way too sick.

Kibbie Contributor
Kibbie
Posted

I called every day to see if they had a cancellation 2 times a day... and was able to get my daughter in for her scope in under less than 2 weeks! It's wroth a try

hollyres Explorer
hollyres
Posted
Last night my ss had an sandwhich before basektball practice. WEll he came home 2 hours later and went out of control. We told him to take an shower and go to bed and he flipped out, he went into my other two boys rooms and threw everything around and in his room to. Then he kept sitting in his room screaming i hate you and f-you and so forth, you get the gist of it. For about 2 hours.

I know its the gluten but i just dont know what to do anymore. I know we see an gi on the 26th, but he still isnt going to do the scope then, not for another month or 2 after that. I cant have him still on gluten during the holidays. Life will be terrible for everyone if he is.

I feel we have to have the scope to be definitie for his sake, to get him to follow the diet, but what about ur sake.

I am just at my wits end.

paula

Have you thought about having the DNA test from a swab on his cheek? The results are within 24 hours - you just request a packet and mail back the swab. It is really fast. Open Original Shared Link

Also, I am the mother of 2 teenage boys. You are the boss - remember that. You buy the food. I know you shouldn't go off gluten before the test, but let's be reasonable. I never was positive from any test, but it is 100% that if I eat or breathe gluten I become a crazy, sick mess who can't go to the bathroom for a week. I understand you want the scope, so maybe waiting to get the dr.'s advice would be good, but you will need to advocate for speed, or just try the diet and see what his reaction is. Comfort him the best you can - calm him with a soothing voice. That isn't my first reaction, but when I think about it, I know that is what I need to do when my kids are acting out.

There is no good answer. Try to be strong and loving and firm in your authority. Just because a kid is older (at least I think so, from your post), doesn't mean that they are any different than when the were really little. Good luck! I understand your pain.

Holly

Lisa Mentor
Lisa
Posted

Paula,

I sympathize so much for you and I have no answers. Without creating a new level of conflict for you, but what role does his father have in this situation. Certainly, I do hope that he is sharing some of this difficult time with you and the family.

While he is in school, treat yourself to something wonderful. Get a manicure, a massage, a great lunch with a great book and a better glass of wine. Treat yourself to that something special you were wishing for for Christmas, just because.

And if you want to yell and scream, I will send you a PM. ;)

confused Community Regular
confused
Posted
  • Author
I called every day to see if they had a cancellation 2 times a day... and was able to get my daughter in for her scope in under less than 2 weeks! It's wroth a try

The thing is we are 5 hours away, and hubby has to have his days off 2 weeks in advance to get them off, but it is worth an try, im even going to call and see if we can have the consulatation and scope done on the same day, cause driving in colorado this time of yr is not fun when u have to travel 5 hours one way with 5 kids.

paula

confused Community Regular
confused
Posted
  • Author
Have you thought about having the DNA test from a swab on his cheek? The results are within 24 hours - you just request a packet and mail back the swab. It is really fast. Open Original Shared Link

Also, I am the mother of 2 teenage boys. You are the boss - remember that. You buy the food. I know you shouldn't go off gluten before the test, but let's be reasonable. I never was positive from any test, but it is 100% that if I eat or breathe gluten I become a crazy, sick mess who can't go to the bathroom for a week. I understand you want the scope, so maybe waiting to get the dr.'s advice would be good, but you will need to advocate for speed, or just try the diet and see what his reaction is. Comfort him the best you can - calm him with a soothing voice. That isn't my first reaction, but when I think about it, I know that is what I need to do when my kids are acting out.

There is no good answer. Try to be strong and loving and firm in your authority. Just because a kid is older (at least I think so, from your post), doesn't mean that they are any different than when the were really little. Good luck! I understand your pain.

Holly

He is dq2 positive, we have tested him threw enterolab, but he would not follow the diet. So we thought the scope would be the best way to go. . He is 14, so between the hormones, gluten and his bio mom that comes in and out of his life, he isnt the normal teenage boy. I do try to be patient and loving with him, but he will just scream more. finally last night hubby and i just let him be, and after 45 minutes he went to sleep.

paula

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confused Community Regular
confused
Posted
  • Author
Paula,

I sympathize so much for you and I have no answers. Without creating a new level of conflict for you, but what role does his father have in this situation. Certainly, I do hope that he is sharing some of this difficult time with you and the family.

While he is in school, treat yourself to something wonderful. Get a manicure, a massage, a great lunch with a great book and a better glass of wine. Treat yourself to that something special you were wishing for for Christmas, just because.

And if you want to yell and scream, I will send you a PM. ;)

thank you lisa. Yes hubby is with me every step of the way threw this. He dont know what to do anymore either. He stayed home from work today so we can figure out what to do .

My dad is coming up to bring up some stuff to us today, and I am leaving him with hubby and the girls and im going to a craft show. Hubby gave me a 100 bucks to buy what i want, I really need this.

paula

Juliet Newbie
Juliet
Posted

Paula -

I so sympathize. My son is only 4, but last week he got some gluten through cross contamination at pre-school (much smaller amount) and he went crazy - pulled out some of my hair, scratched me until I bled, tried choking me with my shirt - literally crazy. And it took him several days to get past it, too - we only had one day where it was that extreme, but the rest of the days was like a kid with ADHD with a violent streak. Gluten can be terrible when someone has this disease; it literally makes them crazy.

FYI, my son had been off gluten for 3 1/2 weeks before we had him scoped, and he still was positive. The damage in the intestines takes anywhere from 6 months to a year to heal. And also, PESTER THE DOCTOR! I was given a name of a g.i., after insisting to my pediatrician my son was sick and I wanted a name now whether or not the referral was approved, then told the g.i.'s assistant when I called that if I couldn't get an appointment that week to give me the name of a doctor who can see me right away. I called on a Monday and had an appointment that Friday. He was hospitallized a few days later, then had a scope scheduled 4 weeks later. But I was told about the possibility of Celiac Disease a couple of days after he left the hospital. He went gluten free that very day, at the suggestion of our g.i. He felt that if it was Celiac, he'd still be positive with the scope after only a few weeks of being gluten free.

But pester your g.i. - call every day looking for a cancellation or a day when you can be squeezed in. Explain how bad it is and if they can't fit it in sooner, you'll go somewhere else. When they hear you're that serious, they often will accommodate you. In the end, most of them (despite what it may seem like, I know, no matter how bad they are) actually are in this to help people. It's just that even the best of them get caught up in the routine like the rest of us.

Good luck, and I really feel for you. It's great to know what I have to look forward to.... <_<

Ursa Major Collaborator
Ursa Major
Posted

Your son knows he has the celiac disease gene, and he knows he has tested positive via Enterolab. Personally, I don't believe a positive biopsy would make any difference in his attitude towards the gluten-free diet. It will just mean more torture and expense for nothing.

He is a stubborn teenager who is in denial. No amount of testing will change that. Believe me, he knows perfectly well that he has celiac disease!

I suggest you stop supplying his 'poison' (namely gluten) to him at home. Make him eat gluten-free at home, to let him know you are serious about this. If he comes home and is obviously glutened, having obtained gluteny food elsewhere, he should be confined to his room until he can behave normally.

kbtoyssni Contributor
kbtoyssni
Posted
But pester your g.i. - call every day looking for a cancellation or a day when you can be squeezed in. Explain how bad it is and if they can't fit it in sooner, you'll go somewhere else. When they hear you're that serious, they often will accommodate you. In the end, most of them (despite what it may seem like, I know, no matter how bad they are) actually are in this to help people. It's just that even the best of them get caught up in the routine like the rest of us.

Anther option is to have the referring doctor call the GI to get you in for a scope. I've had waiting time reduced from 2 months to 2 weeks this way.

But I agree with Ursa - is a positive scope really going to make a difference in this situation? This does seem like more of a teenage rebellion than a uncertainty in whether he has the disease. And what will you do if the scope comes back negative (a strong possibility since you've been trying to keep him gluten-free for a while)? I would also recommend setting clear consequences/punishments for him eating gluten while you feed him only gluten-free meals and make sure there are plenty of gluten-free foods for him to snack on when he gets hungry. If there are gluten foods that he tends to cheat on, I'd get those out of the house.

confused Community Regular
confused
Posted
  • Author

Thanks everyone, We are still trying to figure out what is best for him right now. He has been keeping busy the last few days and he is doing much better. I am not sure if the reaction he had to the allergy shot this week, made him go the way he went. Or if he is really bipolar and not just celiac. Hubby and I have been doing alot of soul searching the last few days on what to do. We keep going back and forth on what is best,

I havent been forcing him to eat any gluten. all my dinners are gluten free and he has been eating them. But he did stay at his friends last night so no idea what he ate. But they are aware of his possible celiac.

I just wanted to thank all of you that helped me with all of this with him the last few months, you dont know how much i appreciate it.

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