Urine Creatine, Any Opinions/experiences

[Guest Maggi315]

HI,

I am getting tested for a bunch of things, so far all celiac type tests are negative. My vitamin b12 is low, low ferritin, and now my 24 hour urine showed very high creatine (not creatinine) levels, 4X normal. Someone mentioned to me this can be seen in celiac. Anyone else know anything about this? My creatinine was normal.

thanks

Maggi315

[ravenwoodglass]

HI,

I am getting tested for a bunch of things, so far all celiac type tests are negative. My vitamin b12 is low, low ferritin, and now my 24 hour urine showed very high creatine (not creatinine) levels, 4X normal. Someone mentioned to me this can be seen in celiac. Anyone else know anything about this? My creatinine was normal.

thanks

Maggi315

I think, I am not a doctor, that this is showing an impact on your kidneys. This is not unusual for celiac people that are not on the gluten free diet. Your other testing also points that way. Are you gluten free yet? I can tell you, unfortunately from personal experience that the tests are not as accurate as we would like. I was misdiagnosed for over 15 years because doctors just blood tested and said 'the test was negative, heres some more pills. I now have permanent kidney damage because of the damage the antibodies did to them. There are some indications that if the damage is caught soon enough it can reverse but mine went on too long.