Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

In Utero Behavior!


skikat

Recommended Posts

skikat Apprentice

My son has a gluten problem at 11 months old and when I was breastfeeding had a lot of problems. I remember him being VERY active when I was pregnant, almost so much that I talked to the doc about it on several occasions. I even asked the doc if he was having seizures or something because it was so much movement.

Has anyone else experienced this when they were pregnant? Was he reacting to all the gluten foods in utero? Did this cause damage even then?

Also- from about 3 months to 10 months he had a strange head "sway" like he was saying no, but completely involuntary and not prompted. Sometimes it was more jerky and odd like a "tick". Since we began the gluten-free/CF diet it has gone away. He also had weird tongue twisting recently for about 2 weeks, where his tongue would twist upside down and stay that way for most of the day. We had a swallow study, and an MRI. All normal. The tongue has improved now as well.

Just curious, Has anyone's children ever experienced this too?

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

My second oldest daughter (now 26) was overactive before she was born. She had colic as a baby, and projectile vomiting as a two-year-old. They never figured out what was wrong with her. Of course, they also never tested her for gluten intolerance.

She was always very hyperactive. Fortunately, she was also shy, and therefore quiet in school (so never any mention of wanting her on crap like Ritalin). She'd just go absolutely berserk for several hours after getting home.

She and both her babies (17 months and 4 months) are now gluten-free. Her mother-in-law has celiac disease as well, and those children are obviously gluten intolerant. My daughter is feeling so much better off gluten!

Izak's Mom Apprentice
My son has a gluten problem at 11 months old and when I was breastfeeding had a lot of problems. I remember him being VERY active when I was pregnant, almost so much that I talked to the doc about it on several occasions. I even asked the doc if he was having seizures or something because it was so much movement.

Has anyone else experienced this when they were pregnant? Was he reacting to all the gluten foods in utero? Did this cause damage even then?

My son (now about 2 1/2) has celiac and I'm pregnant now with #2 (a girl!), due in March. I specifically asked my OB about eating gluten while pregnant - if that could affect her if she turned out to have celiac as well. My doc said that my eating gluten while pregnant would not affect my baby in utero, but would definitely get transmitted during breastfeeding. I recall Izak (son) being pretty active, although the main disturbance was that he seriously had hiccups in the womb for the last 3 months I was preg! SO annoying. ;-) anyway, hope that helps...

Ursa Major Collaborator
My son (now about 2 1/2) has celiac and I'm pregnant now with #2 (a girl!), due in March. I specifically asked my OB about eating gluten while pregnant - if that could affect her if she turned out to have celiac as well. My doc said that my eating gluten while pregnant would not affect my baby in utero, but would definitely get transmitted during breastfeeding. I recall Izak (son) being pretty active, although the main disturbance was that he seriously had hiccups in the womb for the last 3 months I was preg! SO annoying. ;-) anyway, hope that helps...

I don't think your doctor knows what he is talking about. How could gluten NOT affect a baby in the womb? If it is in breastmilk, I expect that it will be in the blood nourishing an unborn baby as well. I have read that when a baby has hiccups before being born, that signals food intolerances/allergies.

ravenwoodglass Mentor

There is at least one celiac gene that can be triggered before birth. I believe this occured with my DS but not my DD. My DS was over 6 weeks overdue and in utero he had some of the 'autistic' repetitive behaviors that he showed as an infant. He was very active and he began pulling his hair before he was born. It created some interesting startle reactions when he was real little because he would pull his hair and there was no longer the uterine wall to 'bounce' off of. I was sure he would snatch his little head bald. He was born a small but normal weight and length in the 65th percentile but by a year and dropped off the charts to -10. He would never regain any ground size wise. At a year he only weighed 12 lbs and when his sister was born when he was three she was already 10 lbs. That was when we really noticed how small he was. He was very colicy but very bright. Later he would show definate signs of Aspergers, he formed his first three word sentence before 11 months and could name every car made by 2.5. I fought throughout his entire childhood and teen years to find out what was wrong. It wasn't till after I was diagnosed that we found out he was celiac. The turn around in him has been amazing. Both health and in OCD and autistism features. Knowing what I do now I personally would not consume gluten when pregnant if celiac ran strongly in the family. I know this most likely goes against what they teach but there is so much we have left to learn about this genetic difference.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,915
    • Most Online (within 30 mins)
      7,748

    marcusdarrell1
    Newest Member
    marcusdarrell1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
    • Xravith
      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.